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Search: Posts Made By: MaineRottweilers
Forum: her2group 01-12-2018, 03:56 PM
Replies: 129
Views: 58,097
Posted By MaineRottweilers
Re: Need input!

Olive Oil, YUM! Salt and a little red pepper ground over the top, dip bread and you're in Heaven and lowering bilirubin. A few tablespoons will not be enough. :)

I'm still flying under the...
Forum: her2group 01-11-2018, 04:39 PM
Replies: 129
Views: 58,097
Posted By MaineRottweilers
Re: Need input!

Bummer, Juls. I can hear your frustration. Are you doing anything to support your liver so you can get back on Kadcyla post haste?

Beets, milk thistle, radishes and barley are things I have...
Forum: her2group 01-10-2018, 05:28 PM
Replies: 129
Views: 58,097
Posted By MaineRottweilers
Re: Need input!

Juls, that's the way of trials, you never really know if it's the right thing. However, your willingness to contribute to the body of evidence (good, bad or indifferent) is pretty heroic, in my...
Forum: her2group 10-10-2017, 09:42 AM
Replies: 129
Views: 58,097
Posted By MaineRottweilers
Re: Need input!

Pretty smoothly for the most part. GI issues and the itch they say is not related to Perjeta and is not a neuropathy...even though it follows a nerve up my left arm and across my collar bone. I'll...
Forum: her2group 10-05-2017, 04:00 PM
Replies: 129
Views: 58,097
Posted By MaineRottweilers
Re: Need input!

Fingers crossed that things stay good for you, Juls.
Forum: her2group 11-12-2016, 11:23 AM
Replies: 129
Views: 58,097
Posted By MaineRottweilers
Re: Need input!

How incredibly frustrating, Juls. I'm so sorry for your plight. I think we are supposed to withhold Zometa for six months before an extraction and and six months after. I could be wrong. Are you...
Forum: her2group 10-18-2016, 05:37 PM
Replies: 129
Views: 58,097
Posted By MaineRottweilers
Re: Need input!

Ah, Juls, I am so relieved for you but also annoyed as he'll that your MO team worked you over so and on such a special day. Onward!
Forum: her2group 10-12-2016, 05:20 PM
Replies: 129
Views: 58,097
Posted By MaineRottweilers
Re: Need input!

Juls, I'm so sorry. It should have been a better day. You have my prayers.
Forum: her2group 03-26-2016, 01:36 AM
Replies: 129
Views: 58,097
Posted By MaineRottweilers
Re: Need input!

How about SAMe?
The Zometa infusion made me feel awful too, I had increased nausea and lots more pain than I am used to. Enough that I am grateful for scans on Monday to rule out progression, my...
Forum: her2group 03-25-2016, 12:24 PM
Replies: 129
Views: 58,097
Posted By MaineRottweilers
Re: Need input!

Glad you got Zometa, I finally did too. My Calcium is still borderline low but they went ahead with the infusion because my PHOS and MG were better and I haven't had an infusion since December.
...
Forum: her2group 03-08-2016, 10:54 AM
Replies: 129
Views: 58,097
Posted By MaineRottweilers
Re: Need input!

I'll find out on Thursday. Fingers crossed.
Forum: her2group 02-18-2016, 06:09 PM
Replies: 129
Views: 58,097
Posted By MaineRottweilers
Re: Need input!

I'm so sorry you feel so awful. Maybe it's time to look for someone who will listen to you. Can you go somewhere else?

As an aside, I haven't been able to take Zometa or Xgeva since Dec. My...
Forum: her2group 12-30-2015, 06:14 AM
Replies: 129
Views: 58,097
Posted By MaineRottweilers
Re: Need input!

Becky gave really good advice and asked pertinent questions. I would add, they can't definitively say it's cancer without a biopsy or at very least a PET scan. I would imagine a biopsy would be an...
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