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Search: Posts Made By: rinaina
Forum: her2group 04-05-2017, 09:49 PM
Replies: 36
Views: 13,382
Posted By rinaina
Re: Add me to the 10 Years Out Club!

Mazel Tov Caya. I also hit 10yrs last April 2017. So thankful for this support group, for joe and Christine, for herceptin and for my Drs. My oncologist just said that while I'm always welcome to see...
Forum: her2group 08-20-2016, 05:42 PM
Replies: 3
Views: 3,176
Posted By rinaina
Thank you

I want to thank all who remembered my birthday it's a special one for many reasons. A few are I'm now a 10 yr survivor. I'm also now 65 and have joined the Medicare club! Yippee, saving a lot on...
Forum: her2group 04-06-2016, 12:06 AM
Replies: 3
Views: 2,332
Posted By rinaina
Been a while, been very busy medically

Not even sure where to begin but I will try and bring you up to date as to why I've been absent for quite a while other then a few peeks here and there.
My history is rich with medical issues ever...
Forum: her2group 04-05-2016, 11:44 PM
Replies: 10
Views: 2,869
Posted By rinaina
Re: Remembering Our Sister Sheila on her 64th birthday

Most definitely witll do in your mom, Sheila's memory. I had the pleasure of meeting her for lunch and enjoyed our friendship. She was a wonderful woman.
Forum: her2group 01-19-2016, 06:45 PM
Replies: 12
Views: 3,608
Posted By rinaina
Re: Radiation repercussions almost 10 years later

Agness,
What is craniosacrral therapy and why would I need it and also DO?
Forum: her2group 01-19-2016, 04:18 PM
Replies: 12
Views: 3,608
Posted By rinaina
Re: Radiation repercussions almost 10 years later

Thanks Sarah for your reply. Sorry to hear that you have dealt also with the serious ramifications of radiation. It's so frustrating that we do what we are suppose to and yet years later we have...
Forum: her2group 01-18-2016, 07:57 PM
Replies: 12
Views: 3,608
Posted By rinaina
Radiation repercussions almost 10 years later

September 17 I was hospitalized following an ER visit due to heart symptoms. I have good blood pressure and no previous heart history. I do have Sjogrens Syndrome, an auto-immune disease.
My...
Forum: her2group 02-15-2015, 11:31 AM
Replies: 12
Views: 2,053
Posted By rinaina
Re: 8yrs later I am gearing up for double Mastectomy

Thank you for all the replies and support. It feels so good to have so many caring sisters during this most difficult and unfortunate times in my life. I haven't been coping well and with each set...
Forum: her2group 02-13-2015, 11:37 PM
Replies: 12
Views: 2,053
Posted By rinaina
Re: 8yrs later I am gearing up for double Mastectomy

Thanks Bonnie for sharing your experience with me. I am glad you have found a comfortable place for yourself. At this point I feel I must try to fix this but not until I am completely healed. One...
Forum: her2group 01-11-2015, 11:11 PM
Replies: 21
Views: 4,062
Posted By rinaina
Re: failed reconstruction following prophylactic mastectomy

Well I had radiation to the right breast but the mastectomy removed the radiated tissue as did the debridement of the necrotic tissue after reconstruction, so now that breast still has some wound...
Forum: her2group 01-11-2015, 05:03 PM
Replies: 21
Views: 4,062
Posted By rinaina
Re: failed reconstruction following prophylactic mastectomy

Thank you everyone for the replies. I too am so afraid for the future surgeries I will face to give me breasts. The left needs a lift and a reduction following an unsuccessful diep flap that left me...
Forum: her2group 01-02-2015, 02:07 PM
Replies: 21
Views: 4,062
Posted By rinaina
Re: failed reconstruction following prophylactic mastectomy

Even if you've had a double mastectomy?
Forum: her2group 01-02-2015, 01:03 PM
Replies: 21
Views: 4,062
Posted By rinaina
Re: failed reconstruction following prophylactic mastectomy

Do you have to wait that long, until September? I thought my PS said a few months healing then the flap from shoulder blade then healing a few months then try expander which could take a few months...
Forum: her2group 01-02-2015, 12:59 PM
Replies: 21
Views: 4,062
Posted By rinaina
Re: failed reconstruction following prophylactic mastectomy

Good luck to you. I hope we both have success with our future surgeries and expanders and implants. It would be nice to look symmetrical.
Forum: her2group 12-28-2014, 12:48 AM
Replies: 21
Views: 4,062
Posted By rinaina
failed reconstruction following prophylactic mastectomy

Anyone else experience failed diep following double mastectomy? Had surgery on 10/17/14 and a little over a week later found myself back in the OR for deriding of necrotic tissue and lost all of the...
Forum: her2group 12-28-2014, 12:35 AM
Replies: 12
Views: 2,053
Posted By rinaina
Re: 8yrs later I am gearing up for double Mastectomy

On 10/17/14 I underwent a double mastectomy with immediate reconstruction using the diep flap skin and nipple sparing surgery. It failed and about a week later I was back in the OR for debridement...
Forum: her2group 10-07-2014, 08:18 PM
Replies: 14
Views: 1,529
Posted By rinaina
Re: CAYA gets to eat chocolate!

Happy belated birthday to Caya. Many more happy, healthy NED years.
Forum: her2group 10-07-2014, 08:15 PM
Replies: 12
Views: 2,053
Posted By rinaina
8yrs later I am gearing up for double Mastectomy

It has been 8 1/2 years since my Her2 + diagnosis. I always looked back and questioned if I should have had a mastectomy. Due to the damage from radiation to my cancer breast and the fact that for...
Forum: her2group 07-14-2014, 06:07 PM
Replies: 8
Views: 1,715
Posted By rinaina
Reflecting and sad

As I celebrate being fortunate enough to be cancer free for an amazing 8 years, I am so sad to think of all the wonderful angels we have lost over that short period of time. For quite a while I had...
Forum: her2group 07-14-2014, 05:56 PM
Replies: 23
Views: 3,020
Posted By rinaina
Re: Pre-Melanoma Mole

A few years ago I had basal cell carcinoma on the side of the bridge of my nose and had to have Mohl surgery. All is fine but I was told most skin cancers can be attributed to the sun exposer from...
Forum: her2group 02-16-2014, 01:15 PM
Replies: 16
Views: 2,811
Posted By rinaina
Re: Our Sweet Sheila

I think of Sheila so often and am so honored to have been able to meet her, only once, but that was all anyone needed to know what an amazing, strong, caring woman she was. She lived to support so...
Forum: her2group 09-25-2013, 10:07 PM
Replies: 2
Views: 909
Posted By rinaina
Re: Sheila

Shocking, I am so stupid. As sick as Sheila was and for how long of a fight she gave, I just never thought her final day would come. I had the privaledge of having lunch with her and talked to her...
Forum: her2group 09-22-2013, 02:59 PM
Replies: 98
Views: 6,854
Posted By rinaina
Re: Sheila has earned her wings

Jen, let me first extend my condolences to you and the entire family and say how sorry I am for your loss. I will never forget how kind, thoughtful and caring your mother was. She was one of the...
Forum: her2group 09-22-2013, 09:04 AM
Replies: 2
Views: 909
Posted By rinaina
Sheila

Did I miss something about our beloved her2 sister Sheila? Is she okay?
Forum: her2group 09-15-2013, 12:53 PM
Replies: 16
Views: 1,105
Posted By rinaina
Re: Caya's Birthday! Mmm Chocolate!!

Wishing you a wonderful and happy birthday. May all your wishes come true.
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