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Search took 0.02 seconds. Search: Posts Made By: Lida
Forum: her2group 06-28-2009, 02:51 PM
Replies: 12
Views: 2,371
Posted By Lida
Dear Marie and her2 friends, I have had 2 doses...

Dear Marie and her2 friends,
I have had 2 doses of Ixempra so far. My liver enzymes are still quite high, though they decreased a week ago. I have experienced low blood counts and edema. Lida
Forum: her2group 06-28-2009, 02:06 PM
Replies: 26
Views: 2,497
Posted By Lida
Marie, You are such an inspiration to me. Your...

Marie,
You are such an inspiration to me. Your persistence and outlook of hope is what we need! I am sure most of us would love to have you as a personal advocate, but VERY MUCH appreciate the love...
Forum: her2group 06-28-2009, 01:30 PM
Replies: 31
Views: 2,823
Posted By Lida
Smile Dear Chris, So happy to hear of your great...

Dear Chris,
So happy to hear of your great results! You have worked through challenges and are an inspiration to all of us. I would like to try T-DMI as soon as possible. Praying for continued...
Forum: her2group 06-23-2009, 04:35 PM
Replies: 91
Views: 9,536
Posted By Lida
Marie, I understand the tough challenges for...

Marie,
I understand the tough challenges for you and Ed with those brain mets. Sometimes a list geared towards brain tumors could help. (But don't leave our list!!) In case you have not checked, a...
Forum: her2group 06-21-2009, 08:57 PM
Replies: 2
Views: 1,223
Posted By Lida
T-DM1- Carolyn and OFF LABEL DRUGS

Carolyn and group,
T-DM1 seems like the most promising treatment for me too! But I have found these trials too often restrictive as to past mets, chemos , I have had many, and locations. Given...
Forum: her2group 06-08-2009, 08:49 PM
Replies: 2
Views: 1,795
Posted By Lida
BLOOD CLOT-Fragmin shots?

Hi Her2 friends,
Well, I was just changed from Lovenox to Fragmin shots for the left portal vein blockage. Anyone ever have Fragmin?
I was told to stay away from blood thinners like aspirin. Any...
Forum: her2group 06-03-2009, 06:06 PM
Replies: 6
Views: 1,372
Posted By Lida
Laurel and her2 friends, I am not sure how they...

Laurel and her2 friends,
I am not sure how they will monitor the clot, but imaging will be done often. They expect I will be on Lovenox 4-6 months! Anyone have more info on this, please post. Lida
Forum: her2group 06-02-2009, 06:36 PM
Replies: 6
Views: 1,372
Posted By Lida
Hi friends, I appreciate your advice and...

Hi friends,
I appreciate your advice and support regarding my scary blood clot in the left portal vein. Mjo, if you know, what med did your friend with the lung clots get -Heparin, Comadin, or...
Forum: her2group 05-31-2009, 02:44 PM
Replies: 12
Views: 2,371
Posted By Lida
Dear Her2 friends, Thank you so much for your...

Dear Her2 friends,
Thank you so much for your valuable advice in my Herceptin/Ixempra vs. Herceptin/Doxil decision. It seems both can have efficacy, but I chose Ixempra right now since I was still...
Forum: her2group 05-31-2009, 02:30 PM
Replies: 6
Views: 1,372
Posted By Lida
Scary - time blood clot anyone?

Hi her2 friends,
First, thanks for your input on Herceptin/Ixempra and Herceptin/Doxil; I did choose the Ixempra mainly because I was still a litle nervous of cardio risk form Herceptin/Doxil
...
Forum: her2group 05-31-2009, 02:04 PM
Replies: 32
Views: 3,937
Posted By Lida
Jennifer and Joy, Glad to hear Joy's good...

Jennifer and Joy,
Glad to hear Joy's good results. Hope that Ixempra is an effective chemo for her. I just had my first Ixempra Friday and it was pretty tolerable. I am receiving Neulasta shots...
Forum: her2group 05-31-2009, 01:55 PM
Replies: 23
Views: 3,605
Posted By Lida
Time for a change-Carolyn S.

Dear Carolyn,
I know what is like to be tolerating a chemo and almost forget about "the deep valleys". I was tolerating Herceptin/Taxatere/Carboplatin pretty well, but had major progression in my...
Forum: her2group 05-26-2009, 07:16 PM
Replies: 12
Views: 2,371
Posted By Lida
Must decide asap-ixempra or doxil

Dear Gemma and friends,
Thanks for your reply! I found it quite useful and interesting.I am glad you seem to have a combo that helps you. (except for that pesky lymph node) You are the first...
Forum: her2group 05-25-2009, 07:19 PM
Replies: 12
Views: 2,371
Posted By Lida
Rich, Thanks for your reply. I will be looking...

Rich,
Thanks for your reply. I will be looking through all of the sites you provided. I just finished Herceptin/Taxatere/Carboplatin which is now not working. For 9 years, I have had many...
Forum: her2group 05-25-2009, 07:04 PM
Replies: 12
Views: 2,371
Posted By Lida
Must decide asap ixempra or doxil+-herception

Believe,
Thanks for your reply. It is really helpful. I am glad Ed's first infusion went well; I was told by an onc that this could be a hard chemo to tolerate, but everyone is different!
Does...
Forum: her2group 05-24-2009, 03:34 PM
Replies: 12
Views: 2,371
Posted By Lida
MUST DECIDE ASAP-NEED INFO on IXEMPRA and DOXIL Doxil

Hi her2 friends,
Sorry not to have written in a while; I have been dealing with medical issues with me and my family (both parents in the hospital)!
My tumor markers and liver enzymes are...
Forum: her2group 03-01-2009, 11:15 AM
Replies: 25
Views: 3,680
Posted By Lida
blood test for vitamin d question

Hi Vickie and her2 friends,
My vit d. level was at 24, though I was taking over 1000 of d3 supplements per day. My prim. doc recommended taking weekly 50,000 iu d2 for 8 wks and then rechecking. I...
Forum: her2group 01-08-2009, 08:20 PM
Replies: 3
Views: 1,167
Posted By Lida
LOW, low platelets Taxatere& Carboplatin,anyone?

Hello fellow her2 friends,
Happy new year! (Hope you had a nice new year's celebration- I was booked at the treatment center new years eve.) I have had 2 treatment cycles of Herceptin,Taxatere,...
Forum: her2group 01-04-2009, 04:05 PM
Replies: 8
Views: 1,730
Posted By Lida
Neurapathy or TIA

Laurieanne,

When I was on Taxatere/Herceptin for several months, I did get tingling in my fingers and feet. ( I have heard Carboplatin can also cause this.) My neurapathy resolved when I...
Forum: her2group 12-24-2008, 10:13 PM
Replies: 6
Views: 1,024
Posted By Lida
Happy Holidays and update

To all my her2 friends,
I am grateful for all the kind support and knowledge that we share. Banding together gives us more strength, knowledge, and spirit to fight!
I want to thank Christine...
Forum: her2group 12-03-2008, 07:43 PM
Replies: 10
Views: 2,186
Posted By Lida
Carboplatin -Rough Side Effects-Bad taste how long??

Hi her2 friends,
Thanks for your messages regarding Carboplatin. I have had many chemos, but do not remember having loss of appetite or bad tastes. Sounds rough because we need good nutrition as...
Forum: her2group 12-03-2008, 07:29 PM
Replies: 10
Views: 2,186
Posted By Lida
Carboplatin -Rough Side Effects?

Celeste,
I am glad you managed with the Carbo. You said counts got low; did you require Neupogen, blood transfusions or platelet transfusions? Lida
Forum: her2group 12-02-2008, 06:41 PM
Replies: 10
Views: 2,186
Posted By Lida
Carboplatin -Rough Side Effects?

Hi her2 friends,
As you probably have noticed, I have to decide on a new treatment real soon! One of the combos (Herceptin/Taxatere/Carboplatin) has Carboplatin which I am unfamiliar with. What...
Forum: her2group 11-29-2008, 09:49 PM
Replies: 8
Views: 1,401
Posted By Lida
Scary Times Doxil Vs. Herceptin/taxatere/carbo

Donna and group, Thanks for the messages so far. It is so tough trying to get a fast treatment response, but also considering toxicity. I have to make the decision real soon, so I am grateful for...
Forum: her2group 11-29-2008, 09:42 PM
Replies: 8
Views: 1,401
Posted By Lida
Scary Times Doxil Vs. Herceptin/taxatere/carbo

Donna and group, Thanks for the messages so far. It is so tough trying to get a fast treatment response, but also considering toxicity. I have to make the decision real soon, so I am grateful for...
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