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Forum: her2group 03-17-2006, 10:33 PM
Replies: 53
Views: 14,492
Posted By SusanAnne
Dr. Carney, That is a very interesting use...

Dr. Carney,

That is a very interesting use of the serum Her2 neu test. My concern is that a lot of women who are certifiably Her2 positive are having a hard enough time getting their oncologists...
Forum: her2group 03-17-2006, 11:00 AM
Replies: 7
Views: 1,400
Posted By SusanAnne
For those whose liver spots were cancerous

If spots on your liver were cancer, did it show up in your blood chemistry that something was up in the liver? Just wondering how far along do the mets have to be inorder to show up in bloodwork?
...
Forum: her2group 03-16-2006, 07:18 AM
Replies: 7
Views: 1,400
Posted By SusanAnne
Need advice about liver spot

Since my dx in March '03 all has been well. I was stage IIIa, had mastectomy and was in the herceptin trials (got it with the taxol). My onc. doesn't do routine scans but does do tumor markers. ...
Forum: her2group 03-13-2006, 06:52 AM
Replies: 8
Views: 1,288
Posted By SusanAnne
Hi Deborah, I believe you are referring to...

Hi Deborah,

I believe you are referring to a DIEP flap. I had a TRAM but my cousin had the DIEP and I know others who've had it as well. The DIEP is a longer operation due to all the...
Forum: her2group 03-12-2006, 10:10 PM
Replies: 22
Views: 7,280
Posted By SusanAnne
No problem

Hi Julie,

I was 9 months into my 1 year of herceptin and I had TRAM flap reconstruction. My plastic surgeon just requested a note from my oncologist that it was OK to proceed and my onc....
Forum: her2group 03-12-2006, 06:30 PM
Replies: 14
Views: 1,737
Posted By SusanAnne
I love it too!

Maryann,

I totally agree with you about the Tempur-Pedic bed! Every night getting in it(and we've had the bed for 3 yrs. now) my husband and I say it was one of the best purchases we have ever...
Forum: her2group 03-11-2006, 02:01 PM
Replies: 53
Views: 14,492
Posted By SusanAnne
Dr. Carney, Thank you so much for your...

Dr. Carney,


Thank you so much for your time. You stated:

Studies have now shown that 10-40% or metastatic breast cancer patients with a negative IHC or FISH test can have an elevated serum...
Forum: her2group 03-05-2006, 07:59 PM
Replies: 6
Views: 1,675
Posted By SusanAnne
Thank you everyone for your answers. Nicola, it...

Thank you everyone for your answers. Nicola, it is not me with the DCIS, I was asking for someone else. I will certainly pass along the information and I wish you well with your treatment. It...
Forum: her2group 03-03-2006, 10:25 PM
Replies: 53
Views: 14,492
Posted By SusanAnne
When I first asked my onc. last year about this...

When I first asked my onc. last year about this test, he did not know of it. After reading the material I had Bayer send to him, he felt that it was useful to only stage 4 patients (I'm stage 3) so...
Forum: her2group 03-02-2006, 09:28 PM
Replies: 6
Views: 1,675
Posted By SusanAnne
Quick question on DCIS

I know DCIS is tested for ER/PR but is it tested for Her2?

Thanks,
Susan
Forum: her2group 02-23-2006, 02:06 PM
Replies: 36
Views: 4,940
Posted By SusanAnne
Hi Rachel, You don't say if your mom has...

Hi Rachel,

You don't say if your mom has been diagnosed with lymphedema and what treatment she's had. Anyone who has had lymph nodes removed must be very careful with that arm/leg. Any...
Forum: her2group 12-02-2005, 08:30 AM
Replies: 1
Views: 1,131
Posted By SusanAnne
Lymphedema trial

Lymphedema has been a topic of discussion lately and today I ran across this trial in the Philadelphia area looking at how strength training may reduce or prevent lymphedema.

Wish I lived...
Forum: her2group 11-30-2005, 06:27 PM
Replies: 12
Views: 1,721
Posted By SusanAnne
Cognitive Therapy

I was feeling the same way so I tried a couple of things. I went back to my part time job (2x/wk) to get out of the house. I also tried eating better. Another big help for depression is exercise! ...
Forum: Clinical Trials 11-24-2005, 08:20 AM
Replies: 10
Views: 3,647
Posted By SusanAnne
Hi Anne, Sorry for the late reply, haven't...

Hi Anne,

Sorry for the late reply, haven't been signing in as frequently. I have decided to wait on the vaccine. When the trial results came out in May regarding herceptin I weighed my options...
Forum: her2group 11-12-2005, 11:38 AM
Replies: 36
Views: 4,940
Posted By SusanAnne
Recently diagnosed with Lymphedema

I was dx with mild lymphedema this past August. My right arm was about 2 inches larger than the left. I went for lymphedema therapy 5 days a week, 1 1/2 to 2 hrs a day for the month of September....
Forum: her2group 11-12-2005, 09:36 AM
Replies: 5
Views: 1,200
Posted By SusanAnne
Hi Sassy, Same thing happened to me. Call...

Hi Sassy,

Same thing happened to me. Call your radiation oncologist and ask him to prescribe a cream called Biafine. It helped me tremendously. Good luck.

Susan
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