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Search: Posts Made By: linn65
Forum: her2group 09-15-2016, 03:22 AM
Replies: 20
Views: 8,786
Posted By linn65
Linn65.. sister

Hi everyone, this is linn65 sister. I wanted to tell you that my sister linn65 passed away on September 10th. She had brain metastasis that just never could get under control. She had lesions too...
Forum: her2group 06-12-2015, 11:10 PM
Replies: 22
Views: 3,949
Posted By linn65
Re: Stage IV. 3 years NED with Kadcyla/TDM1!

TDM1 started working for me by my first check up and 2nd infusion In March and still working as of today 6/12/15. ;) not long but working.
Forum: her2group 06-12-2015, 10:16 PM
Replies: 5
Views: 3,053
Posted By linn65
Re: another door to shut to keep the "puppy" from escaping to the yard to chase squir

Layman's Terms please.......what is the door we need to shut to keep the puppies from chasing those squirrels. ;)
Forum: her2group 05-30-2015, 09:15 PM
Replies: 44
Views: 60,054
Posted By linn65
Re: Kadcyla Side Effects

I do have dry mouth, so I brush my teeth several times a day and rinse with biotene. My biggest complaint is my knee's,ankle and feet are killing me. Someday's like tonight seem hardly bearable. I...
Forum: her2group 04-15-2015, 05:57 PM
Replies: 8
Views: 2,137
Posted By linn65
Re: important new study regarding prevention of resistance to treatment of her2+ bc

My puppy has grown and jumped on the dresser. How did you know this was going to happe. lani? Bad Puppy.......Soooo what happens after TDM1 a liter of pups?? ��
Forum: her2group 04-03-2015, 11:01 PM
Replies: 44
Views: 60,054
Posted By linn65
Re: Kadcyla Side Effects

I wondered the exact same thing about tdm1 passing the blood brain barrier. And so happy it does....right ??
Forum: her2group 04-03-2015, 10:48 PM
Replies: 32
Views: 8,529
Posted By linn65
Re: HER-2 Positive & Triple Negative = Cannabis Intervention

I have smoked pot but it makes me paranoid, so I don't really like it. BUT if it would
Cure me or make my body feel better I would smoke it, eat it, or drink it. ��. I wish I knew more.
Forum: her2group 03-13-2015, 04:41 PM
Replies: 19
Views: 2,880
Posted By linn65
Re: Advice needed ... Tamoxifen or AI?

Hi there,

I am not sure how old you are, but I had the same exact question. My first ONC did all those blood tests to see if I was post menopausal at 47 or 48 and they came back, and I was. ...
Forum: her2group 03-09-2015, 08:01 PM
Replies: 7
Views: 1,749
Posted By linn65
Re: Kernal size lump ....

Thank you for your responses....what sucks the constant runny nose will never end I guess. Also, my fingers are so stiff and my wrists and ankles hurt. This treatment gets old for sure!
Forum: her2group 02-20-2015, 05:51 AM
Replies: 7
Views: 1,749
Posted By linn65
Kernal size lump ....

Had my infusion yesterday and first off my eyes and noses are watering and itching like crazy. Feels kind of like a cold.....anyone have and if al what did they do??

Now since they found another...
Forum: her2group 12-19-2014, 03:01 AM
Replies: 19
Views: 2,074
Posted By linn65
Re: Asked why I am stage IV again - clearing up??

No clinical or radiographic evidence of distant metastases, but deposits of molecularly or microscopically detected tumor cells in circulating blood, bone marrow, or other nonregional nodal tissue...
Forum: her2group 12-18-2014, 05:28 PM
Replies: 19
Views: 2,074
Posted By linn65
Re: Asked why I am stage IV again - clearing up??

Gumby I had the year of herceptin alone for a year every 3 weeks and have had no treatment for a year until August 28, 2014 and now herceptin 415 mg and projecta 425 MG every 3 weeks. Are you Still...
Forum: her2group 12-18-2014, 02:00 PM
Replies: 12
Views: 2,070
Posted By linn65
Re: Is THIS the reason adding herceptin to chemo only improves OS by 40%?

That is a great analogy! Do pathologists always know what your tumor is made of?? Like all I know about mine is her2+++ and ER+ 55 on the last biopsy.
Forum: her2group 12-18-2014, 01:26 PM
Replies: 19
Views: 2,074
Posted By linn65
Re: Asked why I am stage IV again - clearing up??

It doesn't appear any of the people that responded need an infusion every 3 weeks. This is making me so confused about treatment. My doctor is supposed to be one of the best in Indiana. She is at IU...
Forum: her2group 12-18-2014, 01:12 PM
Replies: 19
Views: 2,074
Posted By linn65
Re: Asked why I am stage IV again - clearing up??

Do stage 3C have to get treatment every 3.weeka?? I have asked the the last two visits why I am stage IV it's not like I want to be.....

I am going to print this page out and take it too my doctor...
Forum: her2group 12-17-2014, 07:14 PM
Replies: 19
Views: 2,074
Posted By linn65
Asked why I am stage IV again - clearing up??

I had my every 3 week herceptin/projeta treatment today, but I always see the doctor first before treatment.

I asked these questions :

Why am I stage IV and not stage 111C:

1. Tumor size...
Forum: her2group 12-17-2014, 10:57 AM
Replies: 12
Views: 2,070
Posted By linn65
Re: Is THIS the reason adding herceptin to chemo only improves OS by 40%?

I don't understand this?? Can you break it down ??
Forum: Breast Cancer Newsfeed 12-16-2014, 11:54 AM
Replies: 2
Views: 1,144
Posted By linn65
Forum: her2group 12-04-2014, 07:30 PM
Replies: 1
Views: 1,099
Posted By linn65
Re: highly recommended article by M. Scaltriti re predicting those who respond best

Can't you break it down for us?? I rather eat all the above accept the puppy dog of course. ;)
Forum: her2group 12-03-2014, 05:38 PM
Replies: 49
Views: 6,487
Posted By linn65
Re: Prayers for Kristin Schwick

Very sad and so so sorry for her family! I read this and immediately it makes me cry. I just hate cancer.....
Forum: her2group 11-30-2014, 08:53 AM
Replies: 25
Views: 3,269
Posted By linn65
Forum: her2group 11-26-2014, 05:03 PM
Replies: 25
Views: 3,269
Posted By linn65
Re: Is it okay to cuss on here?? Cuz this is a Bitch

Coupon police you got a love them and you know the old saying you can't beat them join them. But hey I'm very proud of you working another Christmas season. Or you are glutton for punishment!!
...
Forum: her2group 11-26-2014, 12:46 PM
Replies: 25
Views: 3,269
Posted By linn65
Re: Is it okay to cuss on here?? Cuz this is a Bitch

ilzabeth.....I got your drama queen! Ms. Passive/aggressive !! ��

I am still trying to totally wrap my head around NED vs. stable. But I keep asking and the answer is....it's like you have a...
Forum: her2group 11-26-2014, 08:10 AM
Replies: 25
Views: 3,269
Posted By linn65
Re: Is it okay to cuss on here?? Cuz this is a Bitch

Really? You did? It's like I have been in a funk for 2 days and treatment is today. I want to live , and I am thankful for the meds. How long until gained acceptance?
Forum: her2group 11-26-2014, 07:11 AM
Replies: 25
Views: 3,269
Posted By linn65
Re: Is it okay to cuss on here?? Cuz this is a Bitch

Btw just saying what my doctor said.....treatment for life...no end game like before that's the difference this time.
Showing results 1 to 25 of 366

 
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