Forum: Clinical Trials
10-13-2010, 09:35 AM
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Replies: 104
Views: 38,343
Re: Neratinib Clinical Trial
I just finished the trial on Oct 7- I had severe side effects so we knew I was on the real drug, was dose reduced twice and finally managed at 160 mg (4 pills)- I had diarrhea until the last month...
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Forum: Clinical Trials
09-12-2010, 05:35 PM
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Replies: 104
Views: 38,343
Re: Neratinib Clinical Trial
I am on the early stage trial and will actually finish on Oct 7. I take 160 mg after being dose reduced twice due to severe diarrhea which resulted in really low potassium levels. I have not had any...
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Forum: Clinical Trials
05-18-2010, 08:55 AM
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Replies: 104
Views: 38,343
Re: Neratinib Clinical Trial
I am approaching 8 months on the trial and I am definitely on the drug- had to be dose reduced twice to get to a tolerable level. My doc sees the side effects as knowing you are on the real deal but...
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Forum: Clinical Trials
03-02-2010, 03:10 PM
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Replies: 104
Views: 38,343
Re: Neratinib Clinical Trial
I have heard that too- all I really understand is that Herceptin blocks Her2 and neratinib blocks other HER receptors. My onc mentioned that many times when they have a HER2+ person with a recurrence...
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Forum: Clinical Trials
01-12-2010, 01:41 PM
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Replies: 104
Views: 38,343
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Forum: Clinical Trials
01-11-2010, 12:54 PM
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Replies: 104
Views: 38,343
Re: Neratinib Clinical Trial
Im not sure of the mechanism of the diarrhea but nothing I tried could control it. IF you have side effects on neratinib they normally tell you to eliminate dairy as it seems to make everything a lot...
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Forum: Clinical Trials
01-08-2010, 12:10 PM
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Replies: 104
Views: 38,343
Re: Neratinib Clinical Trial
Kriss,
I started the trial on Oct 7 and have the violent side effects like you did AND I ended up with severly depleted potassium and magnesium from the diarrhea. They found all that at my 1 month...
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