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Search took 0.01 seconds. Search: Posts Made By: Emmay
Forum: her2group 09-03-2010, 07:07 AM
Replies: 139
Views: 19,624
Posted By Emmay
Re: Joe passed on this evening

I was completely stunned to read of Joe's passing, and my thoughts, prayers and sincere condolences go to Christine, Danielle, and Deborah, who so generously shared their husband and father with the...
Forum: her2group 06-14-2009, 08:36 PM
Replies: 91
Views: 9,385
Posted By Emmay
Dear Marie, In April '08 my sister's MRI...

Dear Marie,

In April '08 my sister's MRI looked very bad -- brain mets appeared to be suddenly growing very quickly and spreading in new areas, and she'd already had 2 brain surgeries, Whole Brain...
Forum: her2group 06-01-2009, 06:59 PM
Replies: 9
Views: 3,444
Posted By Emmay
Hi, I agree with Bill; my sister has been on...

Hi,
I agree with Bill; my sister has been on the steroid Decadron on and off over the past 5 years, and it definitely weakens the muscles, and recovering strength can take a while even after the...
Forum: her2group 05-15-2009, 08:32 PM
Replies: 7
Views: 1,866
Posted By Emmay
My sister was on CPT-11(aka Irinotecan) + Avastin...

My sister was on CPT-11(aka Irinotecan) + Avastin + Herceptin for a year; A year ago her MRI was very worrisome with multiple enhancing brain mets. After starting the above therapy, her 1st followup...
Forum: her2group 05-14-2009, 05:39 AM
Replies: 29
Views: 3,133
Posted By Emmay
Dear Marie, I hope and pray that the treatment...

Dear Marie,
I hope and pray that the treatment today goes smoothly, and that Ed will soon be feeling stronger. You both have been dealing with so much all at the same time -- I hope having Ed's...
Forum: her2group 05-08-2009, 06:55 AM
Replies: 33
Views: 3,151
Posted By Emmay
Dear Marie, Sending prayers for strength,...

Dear Marie,

Sending prayers for strength, fortitude, grace, and a swift and effective therapy for Mighty Oak and you. You have support and heartfelt wishes from all of us.

Emmay
Forum: her2group 05-04-2009, 06:04 PM
Replies: 12
Views: 2,308
Posted By Emmay
Darlene, thanks very much. I've passed your...

Darlene, thanks very much. I've passed your information on to my sister; we really appreciate your sharing what worked for you.
Emmay
Forum: her2group 04-30-2009, 10:23 PM
Replies: 12
Views: 2,308
Posted By Emmay
My sister was in Florida on vacation with her...

My sister was in Florida on vacation with her family from the 4/17 to 4/24 -- she was experiencing regular nausea (even though Zofran was supposed to help prevent it) so her oncologist switched her...
Forum: her2group 04-19-2009, 08:45 PM
Replies: 12
Views: 2,308
Posted By Emmay
Thanks so much for all your wonderful support,...

Thanks so much for all your wonderful support, prayers, and detailed suggestions, PattyZ, Chrisy, Mary Anne and Believe51 -- I truly appreciate your sharing your experience and wisdom, and will keep...
Forum: her2group 04-17-2009, 07:59 AM
Replies: 12
Views: 2,308
Posted By Emmay
Brain stable, but new Torso Mets - What's Working for You?

My sister had been on CPT-11 (Irinotican) + Avastin + Herceptin since May '08, and the combination did an immediate and consistent (and miraculous) job of eliminating&stopping brain mets, so much so...
Forum: her2group 03-09-2009, 08:23 PM
Replies: 33
Views: 5,109
Posted By Emmay
What about Cyberknife focalized radiation?

Carla,
If you just have one stubborn met left, and it's not too big, I'd urge you to look for Cyberknife or Gamma Knife focalized radiation therapy. It's easy, virtually painless, and the mets that...
Forum: her2group 03-09-2009, 08:04 PM
Replies: 33
Views: 5,109
Posted By Emmay
Check out my sister's history...

Hi Carla,
Do read through my sister's history to see the therapies that have worked for her for varying lengths of time. She has been getting infusions of CPT-11(aka Irinotecan) plus Avastin plus...
Forum: her2group 02-13-2009, 04:08 PM
Replies: 16
Views: 2,788
Posted By Emmay
Since my sister's diagnosis of brain mets 16...

Since my sister's diagnosis of brain mets 16 months after being diagnosed with Stage II Her2+ breast cancer (almost 6 years ago), she has had an MRI done every 6-8 weeks, and it has been key in...
Forum: her2group 09-29-2008, 06:43 AM
Replies: 61
Views: 5,355
Posted By Emmay
Congratulations Christine and Joe! What...

Congratulations Christine and Joe!
What wonderful news!! We are all so happy for you! Your story has spread such hope and inspiration to countless people around the world through this website. Your...
Forum: her2group 09-25-2008, 11:19 AM
Replies: 32
Views: 2,881
Posted By Emmay
Regarding chemo agents that cross the...

Regarding chemo agents that cross the BloodBrainBarrier: another option that is currently showing startling success for my sister (since May '08) and three other women with breast cancer brain mets...
Forum: her2group 09-15-2008, 12:45 PM
Replies: 15
Views: 3,397
Posted By Emmay
Hi Judi, My sister received CyberKnife...

Hi Judi,

My sister received CyberKnife treatments a number of times, whenever new small mets appeared, and we found the treatment very effective. It is a painless, straightforward therapy used...
Forum: her2group 09-02-2008, 03:11 PM
Replies: 23
Views: 2,365
Posted By Emmay
Marie, Sorry I am just catching up with...

Marie,

Sorry I am just catching up with this post, have been away for a bit... My sister has had WBR and then multiple CyberKnife treatments (a brand of Gamma Knife, I believe) at Beth Israel...
Forum: her2group 08-04-2008, 07:06 PM
Replies: 8
Views: 1,227
Posted By Emmay
A slight typo in website address: it's...

A slight typo in website address: it's Anokhiusa.com, not Anohki... the scarves are beautiful, and many come in two sizes: square @ 30"x30", and rectangular @ 15"x72". Thank you for posting this,...
Forum: her2group 06-29-2008, 06:47 PM
Replies: 12
Views: 1,808
Posted By Emmay
Hi Dee1969, I am sorry to hear that your dr....

Hi Dee1969,

I am sorry to hear that your dr. suspects 2 new brain mets, but if they are in fact mets, it's good that they are small and easily treated with Stereotactic RadioSurgery. You don't...
Forum: her2group 06-24-2008, 07:52 PM
Replies: 12
Views: 1,808
Posted By Emmay
Brain Mets MRI shows great improvement

My sister has been on a new experimental therapy for bc brain mets of CPT-11 (a.k.a. Irinotecan) plus Avastin for 6 weeks (=two infusion sessions, not including yesterday's). Today's MRI showed...
Forum: her2group 06-12-2008, 09:19 AM
Replies: 1
Views: 835
Posted By Emmay
Reassuring findings re. Brain mets risk of intracranial bleeding...

...when on Anti-VEGF Therapy (antiangiogenesis therapy) such as Avastin (and presumably Sorafenib, etc.)

This information was just posted 6/9/08 on The Musella Foundation website on Clinical...
Forum: her2group 06-11-2008, 11:53 AM
Replies: 15
Views: 2,041
Posted By Emmay
Reassuring findings re. risk of intracranial bleeding...

...when on Anti-VEGF Therapy (antiangiogenesis therapy) such as Avastin (and presumably Sorafenib, etc.)

This information was just posted 6/9/08 on The Musella Foundation website on Clinical...
Forum: her2group 06-08-2008, 10:28 AM
Replies: 15
Views: 2,041
Posted By Emmay
Dear PattyZ, So sorry for the misleading...

Dear PattyZ,

So sorry for the misleading title. The first article is about Avastin and recurring brain cancer (not breast cancer mets to the brain); the second article notes that of the patients...
Forum: her2group 06-06-2008, 02:14 PM
Replies: 15
Views: 2,041
Posted By Emmay
bc brain mets info from asco

Thanks to each and every one for your kind words and thoughts.

PattyZ, thanks especially to you for sharing your course of therapies. I too had read about the concerns about Avastin, and worry...
Forum: her2group 05-29-2008, 11:42 AM
Replies: 15
Views: 2,041
Posted By Emmay
brain mets update -- follow-up

While Temodar/Sorafenib worked well in holding back brain mets in my sister from Feb07 - Sept07, slight indications of growth eventually appeared on the MRI.

She then switched to Tykerb/Xeloda,...
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