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Search: Posts Made By: GracePang
Forum: her2group 01-23-2013, 08:14 AM
Replies: 72
Views: 7,964
Posted By GracePang
Re: Pain? yes Appt? yes Relief? ????

Praying for you. The more you relaxed, the less pain. I know its easier to say, harder to do. you could try at least
Forum: her2group 01-21-2013, 10:31 AM
Replies: 6
Views: 1,158
Posted By GracePang
Re: Can TDM-1 be given with BBB crossing chemo agent like Temodar?

Thank you all for your reply. If tdm-1 is Herceptin bounded with Taxotere, for commonsense it should be safe to use other chemo agents that cross bbb. We brain mets sisters need innovative...
Forum: her2group 01-18-2013, 11:20 AM
Replies: 6
Views: 1,158
Posted By GracePang
Re: Can TDM-1 be given with BBB crossing chemo agent like Temodar?

Hi Julie,
Thank you, for your reply. I think our board member here are usually more resourceful and updated with new research. I am sure the q is also wonders others. We will hope and see if others...
Forum: her2group 01-17-2013, 09:25 PM
Replies: 6
Views: 1,158
Posted By GracePang
Question Can TDM-1 be given with BBB crossing chemo agent like Temodar?

As we all know, TDM-1 does not cross Brain Blood Barrier. for us brain mets with other mets sister, it doesn't hep much. does nay bosdy know if we can use TDM-1 in combine with other BBB crossing...
Forum: her2group 05-17-2012, 10:25 AM
Replies: 5
Views: 1,594
Posted By GracePang
Re: Afinitor/Herceptin/Tykerb

Hi Deena,
Interesting combination of Her2 drugs. Would like to know how you respond to this. Please have us updaed.
I am thinking to join a trial with Afinitor for brain tumors; but afraid to leave...
Forum: her2group 02-22-2012, 10:36 AM
Replies: 1
Views: 1,258
Posted By GracePang
Re: MD Anderson working on brain-penetration facilitating peptide-paclitaxel conjugat

Thank you, Lani,
for the news. Is there anyone on this board involves in this Phase 2 trial?
Grace
Forum: her2group 01-06-2012, 12:19 PM
Replies: 57
Views: 7,682
Posted By GracePang
Re: Courtney Needs Our Thoughts & Well Wishes

courtney,
I am thinking of you everyday. I know you will feel better soon. You inspired me so much and you are very much loved by everyone.
Grace
Forum: her2group 10-07-2011, 07:20 AM
Replies: 17
Views: 2,694
Posted By GracePang
Re: Chloroquine - Sounds promising!

Hi Courtney,
You are such an inspiration and your onc is a star as well. Please do let us updated about the results. Do you take it with other medications, such as chemo and herceptin?

Grace
Forum: her2group 08-29-2011, 07:47 AM
Replies: 26
Views: 6,200
Posted By GracePang
Re: Gamma Knife A Success but more brain mets

Hi Courtney,
I am actully the similar situation as yours. I keeping getting new tumors, even after WBR done last August. I had Gamma knife in Jan this year, zapped 3 tumors; Another Gamma knife last...
Forum: her2group 08-03-2011, 05:08 PM
Replies: 6
Views: 2,534
Posted By GracePang
Re: Sad news about the passing of Dr. Servan-Schreiber

Such a sad news. I love his book and was inspired by his own experience when I was diagnosed with Stage IV. I was so much encouraged by his book and his story; I feel so sad now that he is gone.
Forum: her2group 08-03-2011, 10:55 AM
Replies: 29
Views: 5,923
Posted By GracePang
Re: Darlene Denise is an Angel now

The news of her passing away really shocked me (I read it on breastcancer.org). She has inspired so much and I only expected her to fight a long journal for a lot of years to come. Darlene, rest in...
Forum: her2group 07-29-2011, 09:41 AM
Replies: 31
Views: 3,637
Posted By GracePang
Re: doctor update

Hi Pam,
Sorry to hear all the hurdles you've been through. I am sure the radiation will help and you will feel fine soon. I am sending you positive thoughts and hope you feel better soon. Love, Grace
Forum: her2group 06-17-2011, 02:52 PM
Replies: 19
Views: 4,285
Posted By GracePang
Re: Brain Necrosis - No Add'l Treatment - Your thoughts

Hi Kris,
I am also experiencing the same thing. I had Gamma Knife in January and the May MRI showed some increase of the tumor with inflammation. My nerosurgeon said he hoped those are the post...
Forum: her2group 04-15-2011, 08:27 AM
Replies: 46
Views: 6,736
Posted By GracePang
Re: Started Intrathecal Herceptin Today

Hi Courtney,
You look so beautiful on your new picture and thank you for your update. Always love to read your posts; you are so inspiritional. Would love to hear your update on the intrathecal...
Forum: her2group 03-12-2011, 05:17 PM
Replies: 77
Views: 9,486
Posted By GracePang
Re: brain mets

Pam, good to know you tolerate Decadron well. Take a lot of rest, eat well and you will beat it for sure! Grace
Forum: her2group 03-07-2011, 07:39 PM
Replies: 26
Views: 5,092
Posted By GracePang
Re: if had or brain mets please share your knowledge

Hi Pam,
Sorry for being late to chim in and sorry to hear the suck news about your brain mets. I understand your anxiety, since I experienced the same when mine was found last July. I had 12...
Forum: her2group 02-22-2011, 08:15 AM
Replies: 14
Views: 2,784
Posted By GracePang
Re: Severe Symptoms: Brain Mets & Decadron

I agree with Darlene and Becky that you need to find out where those symptoms come from, instead of assuming they are from the brain tumor. I had numerous brain tumors, gone through whole brain...
Forum: her2group 02-22-2011, 08:07 AM
Replies: 4
Views: 1,249
Posted By GracePang
Re: christine and family

every time I visit this site for information and support, I am thinking about Christine and her family. I also really appreciate what they have done for us Her2 positive ladies. Hope you and your...
Forum: her2group 02-21-2011, 10:47 AM
Replies: 27
Views: 2,605
Posted By GracePang
Re: Birthday wishes for Jackie07! :)

Jackie, Happy Birthday! Sorry for being late; felt some se from Tykerb and hasn't been online often.
Forum: her2group 02-14-2011, 12:00 PM
Replies: 30
Views: 4,969
Posted By GracePang
Re: High Dose Tykerb Experiment - wish me luck!

Courtey,
your doctor is so open minded and good for you. Best wishes for your little experiment and it seems you tolerate the drug well. I am on 5 pills a day now for 10 days; still adjust to...
Forum: her2group 02-06-2011, 12:26 PM
Replies: 70
Views: 10,629
Posted By GracePang
Re: Help! Brain mets besides lung mets

Hi Karla,
Great to hear that you had a successful X-knife. It was indeed a long day for you. When I had my Gamma knife, it took 6 hours overall and I felt exhausted afterward. My pin sites on...
Forum: her2group 01-29-2011, 10:15 AM
Replies: 17
Views: 2,844
Posted By GracePang
Re: Add me to the brain mets list

Hi Liz,
sorry to hear the news, but WBR will deal with it. As Jackie said, you may want to restart Tykerb to help zap them all. I have experienced both WBR and Gamma knife; and posted my experience...
Forum: her2group 01-29-2011, 10:05 AM
Replies: 25
Views: 3,684
Posted By GracePang
Re: Brain Mets came back -- Help Needed

I saw my onc yesterday and asked again about Tykerb. He finally agreed to add it to Xeloda. However, he said he has to cancel Herceptin, since there is no evidence that the two together is safe or...
Forum: her2group 01-20-2011, 01:04 PM
Replies: 70
Views: 10,629
Posted By GracePang
Re: Help! Brain mets besides lung mets

Hi Karla,
I understand how anxious you are and I would be the same. However, I read so many good stories about craniotomy on this and another site; plus, I know a lady who had craniotomy on Jan. 11...
Forum: her2group 01-16-2011, 05:36 PM
Replies: 25
Views: 3,684
Posted By GracePang
Re: Brain Mets came back -- Help Needed

Update on Me:
I just had Gamma Knife done last Thursday. Everything went smoothly and the doctors zapped 3 tumors, the biggest is around 1cm. They told me that the MRI showed that these 3 tumors did...
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