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Search: Posts Made By: aaklwalker
Forum: her2group 04-24-2007, 07:00 PM
Replies: 1
Views: 874
Posted By aaklwalker
Smile Mildly Her2+

I was originally diagnosed her2+ and have enrolled in a trial which required FISH, which came back negative - however, trial is very promising - Erbitux, Irinotecan and Carboplatin. After six weeks...
Forum: Clinical Trials 04-24-2007, 06:47 PM
Replies: 0
Views: 2,091
Posted By aaklwalker
Erbitux+Irinotecan+Carboplatin

I am mildly her2+ IHC, Fish Negative and have been on a trial with the above for 6 weeks. I have had a severe rash reaction to the Erbitux (which is a sign that I am responding to meds). Got the...
Forum: her2group 04-11-2007, 11:55 AM
Replies: 10
Views: 1,180
Posted By aaklwalker
Working vs. Leave of Absence

I would like input from those of you who were in high stress jobs during treatment. Did you continue to work? Did you take a leave of absence? If you took a leave of absence was it difficult to...
Forum: her2group 03-26-2007, 06:02 PM
Replies: 8
Views: 1,542
Posted By aaklwalker
I have 3 spots on my right lung. I started a...

I have 3 spots on my right lung. I started a trial with Irinotecan (sp?), erbitux and carboplatin. My her status is borderline so I can't have herceptin or Tykerb. Will have a pet scan next week...
Forum: her2group 03-12-2007, 06:55 PM
Replies: 6
Views: 1,339
Posted By aaklwalker
New Her2 Testing Guidelines

I was at MD Anderson a couple of weeks ago and the doctor told me there were new testing guidelines for her2+ that came out in February. He said that there are borderline positives who should be...
Forum: her2group 03-01-2007, 07:33 PM
Replies: 32
Views: 4,120
Posted By aaklwalker
I was 2.1 and they are re-running path tests to...

I was 2.1 and they are re-running path tests to determine if I am really her2/neu positive or negative. I will get this second round of results on Monday. I started herceptin in June - have had 2...
Forum: her2group 02-25-2007, 02:18 PM
Replies: 3
Views: 931
Posted By aaklwalker
Anyone in these shoes?

All of this time I have been treated for her2+ disease and saw a new oncologist last week who thinks I am triple negative - - has anyone had this happen?
Forum: her2group 02-18-2007, 08:00 PM
Replies: 198
Views: 34,128
Posted By aaklwalker
What an inspiring bunch you all are. I am a...

What an inspiring bunch you all are. I am a commercial property manager. I manage shopping centers in the north Dallas area. I am 43, have been fighting this for a year and was just diagnosed...
Forum: her2group 02-14-2007, 06:33 PM
Replies: 3
Views: 1,571
Posted By aaklwalker
I had a lung needle biopsy today. It was CT...

I had a lung needle biopsy today. It was CT guided and I had no problems at all. The doctor told me to expect to cough up blood, but there was none. They went through the back and I have a little...
Forum: her2group 02-07-2007, 07:59 PM
Replies: 1
Views: 865
Posted By aaklwalker
Mets treatment

Results of latest PET/CT reflects positive fore three nodules on my rt. lung, an internal mammory lymph and a small node along the esophogas. I have had acx4, taxolx12 and have been on weekly...
Forum: her2group 12-14-2006, 07:33 PM
Replies: 9
Views: 2,246
Posted By aaklwalker
I had the same thing happen, went from 3 week...

I had the same thing happen, went from 3 week dose to weekly and it has made a huge difference. No rapid heartbeat anymore, will repeat echo soon, expect all to be fine.
Forum: Profiles In Courage 11-07-2006, 08:00 PM
Replies: 0
Views: 5,649
Posted By aaklwalker
my profile

Diagnosed 1/06 - 42 years
initially dcis w/microinvasion,
2/06 left mastectomy (13 cm (huge) tumor) with sentinel node biopsies 2/4 positive. Immediate diep free flap reconstruction.
tumor stage...
Forum: her2group 11-07-2006, 07:29 PM
Replies: 3
Views: 1,520
Posted By aaklwalker
Herceptin interrupted by heart problems

I am new to this site. Have finished a/c and taxol. Was taking herceptin every three weeks. Had an ecg that was abnormal, suspended herceptin, repeat ecg was still slightly abnormal. Has anyone...
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