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Forum: Herceptin / Tykerb 05-14-2007, 03:22 PM
Replies: 6
Views: 2,158
Posted By jessica
To Tykerb...or not to Tykerb...

Hi All~
Jessica here, joining you at this "To Tykerb or not" crossroads. I feel so fortunate to have your experience & guidance, but would appreciate more of your insight...
I just had a my regular...
Forum: her2group 04-30-2007, 06:36 AM
Replies: 5
Views: 1,110
Posted By jessica
I have 2 tatoos & get MRI's pretty regularly &...

I have 2 tatoos & get MRI's pretty regularly & have noticed that question on the intake sheet.
But no worries...apparently, 20 years ago,tattoo dyes contained metal fragments & ostensibly could...
Forum: her2group 04-29-2007, 05:26 AM
Replies: 4
Views: 1,241
Posted By jessica
30 vs. 90 min infusion

Hey Erin~
Funny you should mention this...Way back when I was first dx'd, first time NED & on Herceptin solo, I was always told that whether you're on qweekly or q3week Herceptin, the infusion time...
Forum: her2group 04-19-2007, 04:49 AM
Replies: 14
Views: 1,359
Posted By jessica
Q3week Herceptin -30mins or 90 mins?

I don't think you have anything to worry about, Caroline.
I wish I could get my q3week Herceptin dose in 30mins!!
At the previous onc I was seeing, my Herceptin infusions were always only...
Forum: her2group 04-16-2007, 06:25 PM
Replies: 11
Views: 2,343
Posted By jessica
Hi~ I've come out of chemopause each time after...

Hi~
I've come out of chemopause each time after finishing chemo. After the 1st year of chemo, it was ~3 months after my last tx before my cycle returned.
But it totally took me by surprise...I...
Forum: her2group 04-11-2007, 09:00 PM
Replies: 5
Views: 1,381
Posted By jessica
Thanks so much ladies for your wisdom! I've...

Thanks so much ladies for your wisdom!
I've discovered "TUMMY TIME" - lying on my belly & chest to keep the capsule stretched out. It feels very odd & uncomfortable, b/c I can't rest my head on the...
Forum: her2group 04-11-2007, 07:55 PM
Replies: 14
Views: 2,339
Posted By jessica
RFA & Liver Resection

Hey Adriana~
I had two surgical procedures to address the single liver met (in addition to lots o'chemo - 81 total weeks).
The 1st surgical procedure was RFA - Radio Frequency Ablation. It's an out...
Forum: her2group 04-11-2007, 01:49 PM
Replies: 14
Views: 2,339
Posted By jessica
Out, out damn spot!

Hi Julie~
UGH! Spot's back...I'm so sorry. What a bummer.
BUT - Thank God it's just one spot. Thank God TYKERB is available to you. I do hope this combo will make swift work of that damn spot & NED...
Forum: her2group 04-02-2007, 12:13 PM
Replies: 30
Views: 2,840
Posted By jessica
Take THAT you stinky old skin mets!

Reading your post I got this great image of Dorothy in The Wizard of Oz tossing water on Elphaba-the Green Wicked Witch of the West! Remember, Elphaba gave one, last ear-piercing SHRIEK before...
Forum: her2group 04-02-2007, 12:02 PM
Replies: 5
Views: 1,381
Posted By jessica
Capsular contracture, anyone?

Hi All~
I feel so very fortunate to find myself preoccupied with this rather light topichttp://www.her2support.org/vbulletin/images/smilies/wink.gif...just wondering, anyone else out there with...
Forum: her2group 04-02-2007, 11:15 AM
Replies: 15
Views: 2,097
Posted By jessica
Hi Georgie~ While I don't have any specific...

Hi Georgie~
While I don't have any specific advice or knowledge to offer, rest assured that someone here will!
I'm inclined to assume that an ER neg tumor during pregnancy (when hormone levels are...
Forum: her2group 03-30-2007, 01:18 PM
Replies: 34
Views: 2,529
Posted By jessica
stupid little spot

Oh Chrisy~
I'm so sorry! It absolutely totally completely SUCKS to get this news & I so feel for you.
I once upon a time had "innumerable, immeasureable" liver mets too. After a year of chemo, I...
Forum: her2group 03-26-2007, 06:00 AM
Replies: 10
Views: 1,349
Posted By jessica
Hi~ I just had my expander "swap out" 3 weeks...

Hi~
I just had my expander "swap out" 3 weeks ago after a L skin sparing mastectomy. In the process, my R side was augmented (slightly-just 250cc's) to match the L.
My implants are silicone & I am...
Forum: her2group 03-23-2007, 05:22 AM
Replies: 14
Views: 1,794
Posted By jessica
Kerry~ Sending you positive, calming waves of...

Kerry~
Sending you positive, calming waves of comfort today!
I was dx'd in 2002, 33years old & Stage IV. I get scanned ~q12 weeks. I've definitely gotten better managing nerves & anxiety @ScanTime,...
Forum: her2group 03-21-2007, 09:17 PM
Replies: 5
Views: 1,512
Posted By jessica
Adjuvant Herceptin - HERA trial

Ismary~
Sorry you've had to join us here, but you'll find lots & lots of great advice & wisdom from this group. You're right, Her2+ tumors are typically more aggressive & insidious w/a higher...
Forum: her2group 03-18-2007, 07:56 PM
Replies: 25
Views: 17,900
Posted By jessica
TH-my "magic" cocktail~

I have a strange LOVE & FONDNESS for Taxol+Herceptinhttp://www.her2support.org/vbulletin/images/smilies/wink.gif
I was on the dose-dense (qweekly) dosage too. I had been on other chemo combos for 8...
Forum: her2group 03-16-2007, 03:02 PM
Replies: 12
Views: 1,805
Posted By jessica
RFA & many other options still available!

Eric & Caryn~
I'm so sorry you guys are going through this! This discovery is a scary period, but hang in there, you'll find your way & we are all here to help! You've already gotten some great...
Forum: her2group 03-14-2007, 09:12 PM
Replies: 10
Views: 2,107
Posted By jessica
a matter of semantics...

"Disease progression" is NOT synonymous w "DEATH SENTENCE"
Many of us here have beat back disease that has "progressed" multiple times, and lived to tell about it!
Thank God for Tykerb & all the...
Forum: her2group 03-14-2007, 07:19 AM
Replies: 9
Views: 1,541
Posted By jessica
Just want to help clarify... A recurrence can...

Just want to help clarify...
A recurrence can be LOCAL or DISTAL
A DISTAL recurrence is considered metastasis - this is Stage IV disease.
This disease can be really unpredictable & unfortunately,...
Forum: her2group 03-14-2007, 06:43 AM
Replies: 11
Views: 1,674
Posted By jessica
...speaking of verbose...Hope this helps!

Hey Bob~
Your mom is clearly a SURVIVOR & A FIGHTER.It must bring her much peace & confidence to have you by her side! Having someone to help maneuver the confusion of a new diagnosis is so helpful!...
Forum: her2group 03-11-2007, 06:28 PM
Replies: 4
Views: 1,378
Posted By jessica
Yeah-Clean path!!

Hey Skeetur~
Glad to hear you're doing well! Great path report- Yeah!
I had my expander swap out & augmentation of my other breast the same last Friday (3/2) too. I hope you are healing as quickly...
Forum: her2group 03-07-2007, 05:38 PM
Replies: 14
hi
Views: 1,353
Posted By jessica
Lucky Fairies!

Keep your spirits up, Joy!
Sounds like you had a great day, inspite of tomorrow's pending results.
Thanks for sharing it with us.

Keeping you in thoughts & prayers~

Jml
Forum: her2group 03-07-2007, 05:29 PM
Replies: 10
Views: 1,417
Posted By jessica
CT/PET combo?

So sorry you guys are going through this again!

Any chance of getting a CT/PET combo?
A combo study cuts out the add'l anxiety of having a CT that reveals something, then going in for a PET and...
Forum: her2group 03-07-2007, 08:31 AM
Replies: 17
Views: 1,948
Posted By jessica
Rhonda~what a thoughtful post...

Rhonda-so insightful...
I feel like the boards have been a little "heavy" & uninspired lately...
I'd love to see us all get on a positive role again. There's been some great stuff going on like,...
Forum: her2group 03-07-2007, 07:56 AM
Replies: 19
Views: 3,143
Posted By jessica
Sage advice"...more flies w/honey vs. vinegar..."

I have to say, I absolutely agree with AnneMarie...however, that doesn't mean I disagree w/Chelee, or her frustrations or attempts to resolve her grievance.
We've all had great challenges w/our...
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