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Forum: her2group

11-20-2008, 03:24 PM

Replies: 2

Air ionizer

Views: 1,480

Posted By OzzieSue

Thanks Jackie, I can find a bit on the web...

Thanks Jackie,
I can find a bit on the web about it being helpful for respiratory problems, but not a lot about cancer. Haven't had any other responses here so maybe its not worth pursuing.

Forum: her2group

11-19-2008, 04:18 PM

Replies: 2

Air ionizer

Views: 1,480

Posted By OzzieSue

Air ionizer

I'm probably clutching at straws, but after over 2 years of constant chemo, the present one Herceptin, Navelbine, Xeloda, now probably not working after only 6 weeks I'm feeling like nothing is going...

Forum: her2group

10-06-2008, 03:09 PM

Replies: 3

Another interesting article from OncologyStat

Views: 1,217

Posted By OzzieSue

Another interesting article from OncologyStat

HER2 Conversion May Account for Trastuzumab Resistance

Elsevier Global Medical News. 2008 Sept 4, K Wachter

HER2-positive tumors can convert to HER2-negative status in women receiving...

Forum: her2group

10-06-2008, 03:06 PM

Replies: 28

Bisphosphonates as preventative

Views: 3,913

Posted By OzzieSue

Bisphosphonates as preventative

Just came across this on OncologyStat. I'm sure I've seen threats asking about this option. Thought there might be some interested members.

A New Approach to Adjuvant Therapy for Breast Cancer
...

Forum: her2group

09-16-2008, 04:58 PM

Replies: 15

The Supplements To Down=regulate Her2

Views: 2,073

Posted By OzzieSue

Hi freyja, Just registered with the...

Hi freyja,
Just registered with the oncologystat.com site but I'm having trouble finding the articles you mentioned. Any idea where they are. I could only find the section called 'alternative...

Forum: Herceptin / Tykerb

08-04-2008, 08:14 PM

Replies: 10

Tykerb and turning yellow/ dark skin?

Views: 2,410

Posted By OzzieSue

My skin definitely turned darker while I was on...

My skin definitely turned darker while I was on T/X. I went away for a week to the beach and when I returned I was black. I looked like a dark skinned person, palms and soles of my feet pale pink...

Forum: Herceptin / Tykerb

08-04-2008, 12:02 AM

Replies: 3

herceptin and St John's Wort

Views: 2,237

Posted By OzzieSue

I came across this website in another forum. It...

I came across this website in another forum. It is very negative towards alternatives. The url is http://www.virtualmedicalcentre.com/news.asp?artid=11662....

Forum: Herceptin / Tykerb

08-03-2008, 10:26 PM

Replies: 6

Advice from learned members pls

Views: 2,200

Posted By OzzieSue

Thanks ladies. I've printed out your info and...

Thanks ladies. I've printed out your info and will keep it for the Onc. I'm also on an Aus breastcancer website and a member there said that here if you've been on Herceptin then Tykerb you can't...

Forum: Herceptin / Tykerb

07-30-2008, 04:58 PM

Replies: 6

Advice from learned members pls

Views: 2,200

Posted By OzzieSue

Advice from learned members pls

A brief history. Bone/liver/lung mets. T’tere/herc till liver prog. Lung mets gone. Tyk/Xel until bone progression. Moved house and Oncs. At initial consultation he suggested trying Caelyx at...

Forum: Herceptin / Tykerb

10-15-2007, 02:43 PM

Replies: 10

Need to get onto Tykerb

Views: 3,123

Posted By OzzieSue

Hi Brony I've been on the Tykerb/Xeloda EAP...

Hi Brony
I've been on the Tykerb/Xeloda EAP since Jan through Dr Jodi Lynch in Sydney. My Onc in Canberra mentioned to me about 3 months ago that all oncs would soon be able to prescribe it. T/X...

Forum: Herceptin / Tykerb

09-22-2007, 04:19 PM

Replies: 46

I just want to be normal

Views: 6,521

Posted By OzzieSue

Having read all these posts it has inspired me to...

Having read all these posts it has inspired me to fight on to the next step of my journey. I received the email below today and thought it appropriate for this thread

A 92-year-old, petite,...

Forum: Herceptin / Tykerb

08-31-2007, 03:28 PM

Replies: 10

Tykerb cramps?

Views: 1,805

Posted By OzzieSue

Hi, I too have had cramps. I read that...

Hi,
I too have had cramps. I read that normally cramps can be a sign of magnesium defiency, so I started eating more magnesium rich foods and rarely get them now. I think when I do I'm probably...

Forum: Herceptin / Tykerb

08-12-2007, 03:31 PM

Replies: 12

Toenails sensitive...

Views: 1,885

Posted By OzzieSue

Hi, I've bben on t/x since beginning of Feb. ...

Hi,
I've bben on t/x since beginning of Feb. In March I got my first split down the side of one of my toes. Gradually they have gotten worse. I now have a big toe that weeps down both sides and...

Forum: Herceptin / Tykerb

05-10-2007, 04:18 PM

Replies: 4

Making Choices

Views: 2,397

Posted By OzzieSue

Hi Brony I live in Canberra and started on...

Hi Brony

I live in Canberra and started on the Tykerb/Xeloda EAP with Dr Jodi Lynch at Sutherland Hospital in Feb.
I did Taxotere/Herceptin from July til Jan this year. I had the Taxotere weekly...

Forum: her2group

03-17-2007, 04:13 PM

Replies: 25

starting weekly Taxol & Herceptin - hair loss?

Views: 17,906

Posted By OzzieSue

I was on Taxotere/Herceptin weekly for 6 months. ...

I was on Taxotere/Herceptin weekly for 6 months. I didn't lose my hair, it thinned a lot but noone else noticed except me. I missed quite a few weeks of Taxotere because of low white blood count so...

Forum: her2group

02-14-2007, 06:53 PM

Replies: 2

Lapatinib/Xeloda EAP

Views: 840

Posted By OzzieSue

Lapatinib/Xeloda EAP

I started on the L/X EAP nearly 2 weeks ago. Persevered with diahhrea and mild nausea for a week then rang my Onc. She sent me to GP to be checked out and have a blood test for electrolytes and...

Forum: her2group

01-10-2007, 02:59 PM

Replies: 6

Some questions on treatment 'cocktails'

Views: 1,326

Posted By OzzieSue

Thanks for the info - everything is a help. I'm...

Thanks for the info - everything is a help. I'm pretty sure my Onc hasn't had anyone not respond to Herceptin, so I'm a guinea pig. A few weeks ago he was saying I was medically boring - things...

Forum: her2group

01-09-2007, 08:58 PM

Replies: 6

Some questions on treatment 'cocktails'

Views: 1,326

Posted By OzzieSue

Some questions on treatment 'cocktails'

I have been lurking on the forum since June 06. I have found it most helpful re treatment and side effects. Decided to join as now I have some questions I hope someone out there can answer.

I...

Showing results 1 to 18 of 18

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