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Search: Posts Made By: LoriG
Forum: Inflammatory Breast Cancer 10-06-2011, 06:38 PM
Replies: 15
Views: 1,825
Posted By LoriG
Re: Midwest Alice checking in

Hi Alice,

I haven't been to this site in a long time, but tonight I felt compelled to take a peek. I have no idea why, but I am so glad to read your good news. Congrats!!

Lori
Forum: her2group 03-10-2011, 01:14 PM
Replies: 3
Views: 629
Posted By LoriG
Tdm-1??

I have failed Tykerb and Herceptin and would like to get in a TDM-1 trial or find compassionate use. I think a TDM-1 trial is opening up near my home ina few months, but that may be too late for me....
Forum: Herceptin / Tykerb 03-02-2011, 06:41 PM
Replies: 11
Views: 2,436
Posted By LoriG
Re: Bilateral pleural effusions

Hi all,

My effusions were malignant as I feared. Starting chemo and hoping for the best.

Lori
Forum: Herceptin / Tykerb 02-28-2011, 10:44 AM
Replies: 11
Views: 2,436
Posted By LoriG
Re: Bilateral pleural effusions

Thanks, Ellie and Amelia.

No results from cytology lab yet. I was hoping today but it may take longer.
Forum: Herceptin / Tykerb 02-27-2011, 10:12 AM
Replies: 11
Views: 2,436
Posted By LoriG
Forum: Herceptin / Tykerb 02-26-2011, 06:12 AM
Replies: 11
Views: 2,436
Posted By LoriG
Re: Bilateral pleural effusions

Thank you for your response, Jackie! I had over a liter drained off my left lung yesterday. waiting for cytology results that I am sure will not be good :-(

Thanks again!
Forum: Herceptin / Tykerb 02-25-2011, 07:51 AM
Replies: 11
Views: 2,436
Posted By LoriG
Bilateral pleural effusions

Hi all,

A little background....I have stage IV IBC with only a cross axillary metastatic lymph node making me stage IV. Up until now my organs have been clear. I have been NED since surgery...
Forum: her2group 01-11-2011, 06:32 AM
Replies: 18
Views: 1,003
Posted By LoriG
Re: Low dose aspirin

I take Aspirin (81 mg) every other day based on the Nurse study that showed decreased recurrence rates in women taking Aspirin 3-5 times per week. Note that this is a retrospective look at data not a...
Forum: Herceptin / Tykerb 04-04-2010, 06:16 PM
Replies: 4
Views: 792
Posted By LoriG
Re: Tykerb through mastectomy??

Ellie, Chelee, and Jackie,

Thank you so much for the advice! I would be extremely nervous to go off Tykeb for surgery since I am stage IV, and I think that would leave me uncovered systemically. ...
Forum: Herceptin / Tykerb 04-02-2010, 09:05 PM
Replies: 4
Views: 792
Posted By LoriG
Tykerb through mastectomy??

I have had a great response to Tykerb and Xeloda and am finally having my bilateral MRM this week. My onc told me to go off the Xeloda for the surgery (my last dose in this cycle was today, surgery...
Forum: Herceptin / Tykerb 03-19-2010, 08:24 PM
Replies: 19
Views: 3,683
Posted By LoriG
Re: Tykerb/Xeloda, side effects??

Just an update...went to MDA this week. My PET not only showed not evidence of mets but also no evidence of active cancer in the breast! I was SHOCKED. My ultraound confirmed scar tissue in the...
Forum: her2group 03-19-2010, 08:17 PM
Replies: 37
Views: 1,140
Posted By LoriG
Re: Great News !!!!

Wow, you are an inspiration!!
Forum: Herceptin / Tykerb 03-11-2010, 07:01 PM
Replies: 19
Views: 3,683
Posted By LoriG
Re: Tykerb/Xeloda, side effects??

Ellie,

Thanks so much! How are you doing?

Lori
Forum: Herceptin / Tykerb 03-07-2010, 06:39 PM
Replies: 19
Views: 3,683
Posted By LoriG
Re: Tykerb/Xeloda, side effects??

Liz- I must have chemo brain because I swear I posted my results on here! My brain MRI was clear, thank God. My vision is a mess but I can mentally deal with it much better knowing it is not being...
Forum: Herceptin / Tykerb 03-02-2010, 07:55 AM
Replies: 9
Views: 1,149
Posted By LoriG
Re: Started Tykerb today

Funny, when I took the Tykerb the first time I was expecting an immediate rash and diarrhea! I had one episode with a rash for a few days but no issues with diarrhea. I have been on the combo sicne...
Forum: Herceptin / Tykerb 03-02-2010, 07:52 AM
Replies: 19
Views: 3,683
Posted By LoriG
Re: Tykerb/Xeloda, side effects??

by the way, Susanne....love your siggy line "HER2 positive, and - as my diagnosis is 4 years old - I don't remember the rest."

LOL
Forum: Herceptin / Tykerb 03-02-2010, 07:51 AM
Replies: 19
Views: 3,683
Posted By LoriG
Re: Tykerb/Xeloda, side effects??

Thanks again, everyone.

Brain MRI last night so waiting for the results today. Waiting after the scan is done seems so much worse than waiting to have the scan! I keep telling myself that...
Forum: Herceptin / Tykerb 02-24-2010, 07:46 PM
Replies: 19
Views: 3,683
Posted By LoriG
Re: Tykerb/Xeloda, side effects??

Thanks, Ellie!

Liz, The T/X combo is very tolerable. My biggest definite side effect is the little cuts I get on the ends of my fingers...very annoying but in the grand scheme of things not a...
Forum: Herceptin / Tykerb 02-18-2010, 06:37 AM
Replies: 19
Views: 3,683
Posted By LoriG
Re: Tykerb/Xeloda, side effects??

Thanks, Elle! This vison thing is driving me crazy! Some days are more tolerable than others and if I can rest my eyes throughout the day (usually don't have time for this) and use drops constantly...
Forum: Herceptin / Tykerb 02-17-2010, 05:44 AM
Replies: 19
Views: 3,683
Posted By LoriG
Forum: Herceptin / Tykerb 02-15-2010, 12:42 PM
Replies: 19
Views: 3,683
Posted By LoriG
Tykerb/Xeloda, side effects??

I don't know if theses are potential side effects or I have new areas of mets. I have been on Tykerb/Xeloda since the last week in December. The breast "tumor" is FINALLY shrinking but I am having...
Forum: Herceptin / Tykerb 02-07-2010, 07:40 PM
Replies: 20
Views: 2,560
Posted By LoriG
Re: Cough from Tykerb...ANYONE???

Sorry, Shelia. Just saw your update about progression on tykerb. Hopefully the next combo will work better for you! Hugs.
Forum: Herceptin / Tykerb 02-07-2010, 07:35 PM
Replies: 20
Views: 2,560
Posted By LoriG
Re: Cough from Tykerb...ANYONE???

I have been on Tykerb for about 6 weeks and in the last two weeks have developed a cough like you describe...more of a tickle in my chest really. I don't have big coughing attacks, just a cough or...
Forum: Herceptin / Tykerb 01-06-2010, 07:00 PM
Replies: 12
Views: 2,048
Posted By LoriG
Re: Just started Tykerb/Xeloda and worried this combo won't work either :-(

Thanks for the advice, everyone! I am definitely trying to put some weight on and eating healthy but higher calorie stuff and good fats (not just fruits/veggies, promise!) I hate to complain when so...
Forum: Herceptin / Tykerb 01-04-2010, 06:44 PM
Replies: 12
Views: 2,048
Posted By LoriG
Re: Just started Tykerb/Xeloda and worried this combo won't work either :-(

Ellie- next appointment with loca onc about 1.5 weeks. See doc at MDA in 3 months.

Beth- thanks for the encouragement. My rational mind goes out the window occasionally! Can't beleive your...
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