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Forum: her2group 08-29-2011, 04:30 PM
Replies: 14
Views: 4,294
Posted By D.W.
Re: Navelbin--hope I spelled it right.

Gail,

Thank you for responding to my message, Gail. My onc. schedules me for a CAT scan every six months. If the brain tumors are really tumors and not necrosis; my onc. will have to change up...
Forum: her2group 08-27-2011, 08:34 AM
Replies: 6
Views: 2,560
Posted By D.W.
Re: brain surgery and Gamma Knife

Joan,

Did you have symptoms before your surgery? My onc. has expressed surprise that I haven't.

D.W.
Forum: her2group 08-27-2011, 08:32 AM
Replies: 6
Views: 2,560
Posted By D.W.
Re: brain surgery and Gamma Knife

Thanks for responding, ladies. I sure appreciate your input and kind words. This is quite a journey, isn't it? If anyone else has some thoughts or experiences feel free to respond.

D.W.
Forum: her2group 08-25-2011, 07:44 PM
Replies: 6
Views: 2,560
Posted By D.W.
brain surgery and Gamma Knife

Hello All,

After having a regularly scheduled MRI it showed that some of the previously treated tumors are growing back. There is a new 5 mm growth too. The growths are on or near the...
Forum: her2group 05-18-2010, 06:26 AM
Replies: 2
Views: 1,041
Posted By D.W.
Necrosis of the hip

Hi all,

Just wondering if anyone can relate to this: The ortho tells me that my cartilage is destroyed in my hip because of radiation. So it is painful--bone on bone. He told me that it will...
Forum: her2group 03-19-2010, 05:37 AM
Replies: 26
Views: 3,438
Posted By D.W.
Re: Mets to bone

Hi Felicia,

I looked at your blog...do you live in Romania or are you an immigrant? Obviously I could not read your blog....I'm rusty on the Romanian language....ha ha!

Hope you are feeling...
Forum: her2group 03-18-2010, 07:57 PM
Replies: 26
Views: 3,438
Posted By D.W.
Re: Mets to bone

Hi Felicia,

I think you need to give yourself time to heal and feel better.

Tell your medical oncologist how lousy you feel. If he won't help you or understand how you feel, then tell...
Forum: her2group 03-12-2010, 09:42 AM
Replies: 26
Views: 3,438
Posted By D.W.
Re: Mets to bone

Hi Lopsided,

The mets went into my hip, brain, vertebrae. The only one of these that has caused me difficulties is the hip. The ortho guy said that my rt. hip has necrosis-meaning no blood...
Forum: My Healthcare Team 03-01-2010, 07:56 AM
Replies: 1
Views: 8,069
Posted By D.W.
Central Indiana

Medical oncologist: Dr. Andrew Greenspan

Radiation oncologist: Dr. Irene Minor

Breast surgeon: Dr. Patricia Kennedy
Forum: her2group 10-30-2009, 06:09 AM
Replies: 3
Views: 1,330
Posted By D.W.
Prayers for Dorothy

Hi all,

Please pray for my friend Dorothy (80 yrs old). Yesterday at chemo she told me that she asked the onc if this was a cure for her. He told her no, that this is to give her more time.
...
Forum: Herceptin / Tykerb 10-30-2009, 06:04 AM
Replies: 32
Views: 22,675
Posted By D.W.
Re: 3 years + on Herceptin, Why

Hi Alice,

I was on herceptin (still am) and got mets to the brain. It apparently does not cross the brain barrier, as you have said. I had gamma knife radiation to zap those things. I am...
Forum: her2group 10-30-2009, 05:48 AM
Replies: 28
Views: 2,624
Posted By D.W.
Re: Would appreciate any help or advice

Hi Tricia,

I shake a bit because of dystonia, so MRI's are awful. But what my docs decided to do was to give me anesthesia. I tolerate it very well. That may seem extreme, but it works for me.
...
Forum: Caregivers Corner 09-21-2009, 03:57 PM
Replies: 21
Views: 15,422
Posted By D.W.
Smile Re: Guy Recipes

My husband calls the sandwich an easy grilled cheese. I mentioned it to him and he said that he never thought to microwave it.
Forum: her2group 09-16-2009, 05:35 AM
Replies: 18
Views: 1,566
Posted By D.W.
Hey--some good news

It seems like I'm always on here with something icky. Well today I have something positive. My CAT scans show no more disease. The MRI of the brain shows no activity (oh, I mean tumor activity). The...
Forum: her2group 06-27-2009, 12:50 PM
Replies: 15
Views: 1,879
Posted By D.W.
Hi Darita, I just had Gamma Knife Radiation...

Hi Darita,

I just had Gamma Knife Radiation on my brain mets (4 lesions) two weeks ago.

I tried Xeloda/Tykerb but the side effects were too much for me. But don't let my problem keep you...
Forum: her2group 06-23-2009, 04:18 PM
Replies: 19
Views: 1,886
Posted By D.W.
Gamma Knife Girl

Thank you for all the well wishes and prayers. The procedure went well. I only have two complaints:

1. The device that attaches to the head left some big lumps on the back of my head
2. My...
Forum: her2group 06-09-2009, 06:18 AM
Replies: 19
Views: 1,886
Posted By D.W.
Gamma Knife Radiation

Hi All,

Just asking for prayers Thursday as I will have my brains radiated with Gamma Knife procedure. It's the only brain I have, such as it is, and I'd like to keep it! If you don't pray then...
Forum: her2group 05-07-2009, 05:56 AM
Replies: 18
Views: 2,055
Posted By D.W.
Gamma Knife

I have more mets in my brain--four to be exact. I am having a procedure called gamma knife. It is an intense form of radiation.

Has anyone had this procedure before???
Forum: her2group 03-23-2009, 07:37 PM
Replies: 10
Views: 2,000
Posted By D.W.
me too!

Janis,

I am 44 too!

and

Believe51,

Thank you for the prayers and hug.
Forum: her2group 03-15-2009, 02:16 PM
Replies: 10
Views: 2,000
Posted By D.W.
you are right

Lani,

You are right. The doctor has told me that I don't have to have this surgery. I can just go on. In fact, he said that if it was him; that he'd not have the surgery. I am on a...
Forum: her2group 03-14-2009, 12:45 PM
Replies: 10
Views: 2,000
Posted By D.W.
hip replacement

My orthopedic specialist tells me I need a hip replacement. The hip has no cartiledge because of its being destroyed by radiation. The problem is the blood supply to the hip is dead (necrosis). So he...
Forum: her2group 12-25-2008, 09:35 AM
Replies: 29
Views: 2,611
Posted By D.W.
Hi Sheila

Sometimes I get frustrated because I think, "When will life be easier?" This is too painful. One small suggestion is to have a friend or friends pick you up and go to lunch together. Even if you can...
Forum: Herceptin / Tykerb 11-11-2008, 04:32 PM
Replies: 9
Views: 2,170
Posted By D.W.
I live in Indianapolis; about 15 minutes from the...

I live in Indianapolis; about 15 minutes from the famous race track.

So glad to hear that you've almost gotten your daughter through high school. We will agree in prayer for you to get her...
Forum: Herceptin / Tykerb 11-11-2008, 01:21 PM
Replies: 9
Views: 2,170
Posted By D.W.
Koolmom, Wow--that must have been scary...

Koolmom,

Wow--that must have been scary reacting to the herceptin.

I believe that I get navelbine two weeks and than I am off one week. Herceptin every week.

So you are Koolmom, how many...
Forum: Herceptin / Tykerb 11-11-2008, 09:33 AM
Replies: 9
Views: 2,170
Posted By D.W.
signature

Hi Koolmom,

Click on User CP at the yellow bar on top, then click on edit signature and it will give you a screen to type your history.

D.W.
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