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Search: Posts Made By: Heathcliff4
Forum: her2group 07-07-2017, 01:11 PM
Replies: 9
Views: 4,596
Posted By Heathcliff4
Re: Really Scared - Pet Scan Ordered

Pet Scan "Pretty Good" according to my oncologist. I read it and it looks very good...with results consistent with Bursitis or Tendinitis. She wants me to do a follow up MRI just to be absolutely...
Forum: her2group 07-06-2017, 09:57 AM
Replies: 9
Views: 4,596
Posted By Heathcliff4
Re: Really Scared - Pet Scan Ordered

Thank you, ladies. I had my pet/ct last night and although I'm anxious, I feel somewhat that, "whatever will be will be." I really appreciate that you shared your stories. It helps me keep from...
Forum: her2group 07-03-2017, 07:28 PM
Replies: 9
Views: 4,596
Posted By Heathcliff4
Re: Really Scared - Pet Scan Ordered

Thanks Ariana. I'm sorry that happened to you, but glad it wasn't anything worse. It's hard to get used to a body that seems to break down so much more easily and so quickly! I was diagnosed at 43...
Forum: her2group 07-03-2017, 04:43 PM
Replies: 9
Views: 4,596
Posted By Heathcliff4
Really Scared - Pet Scan Ordered

Hi Ladies,

I haven't been on for a while...a sign of life moving on and being great. I was recently on a trip with my family and I noticed pain in my left hip after doing a lot of walking in the...
Forum: her2group 11-15-2015, 09:02 PM
Replies: 11
Views: 4,163
Posted By Heathcliff4
Re: Encouraging Survivor Stories

Triple positive, stage 2, grade 3 here. "Only" two years out but knocking wood and enjoying a very normal and very active life w. my husband and two boys (now 9 and almost 5).

Kathryn
Forum: her2group 11-13-2015, 06:00 PM
Replies: 4
Views: 3,563
Posted By Heathcliff4
Re: Adjuvant Perjeta/pertuzumab

I also had it in the adjuvant setting.
Forum: her2group 09-09-2015, 07:02 PM
Replies: 12
Views: 2,862
Posted By Heathcliff4
Re: Do you ever feel like enough it enough

Amy, your comment about being a cancer patient being "The world's worst part time job" is so hilarious and perfect. I laughed out loud.

Julie, I do know how you feel. In my mind, I often go over...
Forum: her2group 08-24-2015, 09:03 AM
Replies: 3
Views: 1,803
Posted By Heathcliff4
Re: To PET or not to PET?

Thanks Ladies. I emailed my oncologist to see if she wants to do this one. I had a suspicious CT Scan 6 months ago (which lead to a PET scan to show all was fine), so she may want to do it. But,...
Forum: her2group 08-22-2015, 03:45 PM
Replies: 3
Views: 1,803
Posted By Heathcliff4
To PET or not to PET?

Hi Ladies,

I'm coming up on my 2 year anniversary and my oncologist has me scheduled for one last PET scan next month. The last time she and I spoke, we mentioned that after this scan, we do a...
Forum: Diet and Nutrition 08-08-2015, 06:49 PM
Replies: 19
Views: 7,114
Posted By Heathcliff4
Re: Ever Expanding Waist line

Thanks Paul. My oncology nurse said, "Work out 2x as much and join weight watchers." I'll talk to them about the met form from a anti-cancer standpoint. I have found that most doctors expect you...
Forum: Diet and Nutrition 08-03-2015, 07:53 PM
Replies: 19
Views: 7,114
Posted By Heathcliff4
Ever Expanding Waist line

So, I read through some older posts on here and many of us complain about this weight gain that commonly happens after chemo and while on AI or tamoxifen. I am taking zolodex for ovarian suppression...
Forum: her2group 07-26-2015, 08:40 AM
Replies: 1
Views: 1,579
Posted By Heathcliff4
Re: Is anyone on the neratinib trial?

Hi Forher,

Where are you currently being treated? My onc. Dr. Michelle Melisko and her husband, Dr. John Park, are both at UCSF and they know quite a bit about neratinib and its use for Her2...
Forum: her2group 07-26-2015, 08:28 AM
Replies: 8
Views: 2,297
Posted By Heathcliff4
Re: Suggestions for Joint Pain?

Thanks everyone! So far, the only thing that has worked for me is to take a week or two off. But, I will try the above suggestions.

Kathryn
Forum: her2group 07-22-2015, 07:21 PM
Replies: 8
Views: 2,297
Posted By Heathcliff4
Suggestions for Joint Pain?

Hi Ladies,

I am on my 2nd AI, now Letrozole after Arimidex was intolerable. Once again, I'm finding my knees are so quick to injure and are basically always hurting. At this point, I find getting...
Forum: her2group 06-15-2015, 02:59 PM
Replies: 22
Views: 4,799
Posted By Heathcliff4
Forum: her2group 06-09-2015, 07:24 PM
Replies: 14
Views: 1,885
Posted By Heathcliff4
Re: 5 year cancerversary

Congratulations!!! Love reading these stories!
Forum: her2group 06-09-2015, 07:21 PM
Replies: 6
Views: 2,135
Posted By Heathcliff4
Re: Anyone else get this advice?

My understanding is that radiated skin is extremely unpredictable in how well it heals. Sounds like you had a lumpectomy? I think that if you are unhappy with how it looks and are hoping for some...
Forum: her2group 05-20-2015, 03:23 PM
Replies: 38
Views: 4,452
Posted By Heathcliff4
Re: So Very Upset

Sending along support and encouragement. Puck Cancer (as they say in the hockey community).
Forum: her2group 05-20-2015, 02:40 PM
Replies: 20
Views: 2,896
Posted By Heathcliff4
Re: 8 years!

Congratulations!!! What wonderful news. Love reading these updates.
Forum: her2group 05-19-2015, 05:48 PM
Replies: 5
Views: 1,503
Posted By Heathcliff4
Re: Prophylactic Ovary/Tube removal for ER/PR - ??

Hi Tinerkerbells,

An option would be to have monthly Zolodex shots to shut down your ovarian function, if you are considering the surgery but are unsure. I have been doing this for almost a year...
Forum: her2group 05-12-2015, 02:02 PM
Replies: 2
Views: 3,386
Posted By Heathcliff4
Should DCIS be renamed?

I'm just curious how you all feel about the debate around renaming DCIS to exclude the word carcinoma? I was diagnosed with both high grade DCIS and IDC, it was the DCIS that was caught on the...
Forum: her2group 04-23-2015, 07:12 PM
Replies: 10
Views: 1,490
Posted By Heathcliff4
Re: Frustrated

Becky, you made me tear up then laugh out loud. Karen, thank you for listening and being kind. I read your signature and think to myself, JESUS, HOW DOES SHE DO IT? But, also, wow…it can be done....
Forum: her2group 04-23-2015, 04:46 PM
Replies: 10
Views: 1,490
Posted By Heathcliff4
Frustrated

I am so angry about this damn disease I could just spit tacks. It's been 1.5 years of pain/fear/being positive/pretending it's nothing (with two young kids at home).

Today, I just want to be...
Forum: her2group 04-08-2015, 07:29 AM
Replies: 13
Views: 2,132
Posted By Heathcliff4
Re: Ovaries are being retired...chemically. Need advice

Hi Sassy,

Yes, I meant Zolodex. :) We also had the Zometa discussion yesterday (among other topics including Neratinib and possible vaccine trials). I left feeling very defeated, as I expected. ...
Forum: her2group 04-07-2015, 08:49 PM
Replies: 13
Views: 2,132
Posted By Heathcliff4
Re: Ovaries are being retired...chemically. Need advice

I just saw my oncologist today (ugh). I have had my ovaries suppressed with Zometa for about 8 months now. I was in chemopause for 6 months or so and we watched my estrogen levels to make sure I...
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