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Search: Posts Made By: laura4252
Forum: her2group 12-27-2015, 07:41 AM
Replies: 2
Views: 3,524
Posted By laura4252
Re: Hyperthermia treatment

A friend has been to Biomed Klinik in Germany and it cleared all tumors except some bone mets. My choice now in the U.S. is to start Carboplatin or try hyperthermia in Germany. I will be calling...
Forum: her2group 12-27-2015, 07:19 AM
Replies: 22
Views: 9,045
Posted By laura4252
Re: Approaching 5 yr cancerversary but running out of options

Dear Yanyan,
I was on oxygen for 6 weeks Spring 2015, 24/7, 10 liters (highest dose possible). I questioned whether it was time to gracefully surrender, but I decided to I wanted to live. I...
Forum: her2group 10-27-2015, 11:06 AM
Replies: 13
Views: 5,851
Posted By laura4252
Re: important-- turning her2+ Stage IV into chronic treatable disease

I agree with Amy-- We have similar history and diagnosis, and Herceptin stopped "cutting it" after two years....I tried all kinds of other targeted therapies, Xeloda, Navelbine, Gemzar- none worked....
Forum: her2group 06-03-2015, 07:39 AM
Replies: 13
Views: 5,851
Posted By laura4252
Re: important-- turning her2+ Stage IV into chronic treatable disease

I've been Stage 4 since 2009, with mets to the lungs in 2011. 2014 I noticed heaviness in upper respiratory area, then in April I decided I needed oxygen to deal with shortness of breath. I was on...
Forum: her2group 04-18-2015, 07:49 PM
Replies: 20
Views: 4,297
Posted By laura4252
Re: Looking at Clinical Trials

Careful with the Xeloda- After 10 days I had to stop due to foot blisters.....
Forum: her2group 04-14-2015, 07:16 AM
Replies: 15
Views: 13,832
Posted By laura4252
Re: Just Herceptin and Perjeta - side effects

thanks Debbie-- That is helpful information.
Forum: her2group 04-13-2015, 06:29 PM
Replies: 15
Views: 13,832
Posted By laura4252
Re: Just Herceptin and Perjeta - side effects

My lungs have gotten a lot worse since I started Perjeta three months ago......my onco has not suggested Perjeta might be implicated......I wonder......Looking at trying Abraxane in two weeks......
Forum: Articles of Interest 04-13-2015, 06:18 PM
Replies: 3
Views: 22,669
Posted By laura4252
Encouraging News

http://news.unchealthcare.org/news/2015/april/researchers-find-new-approach-to-treat-drug-resistant-her2-positive-breast-cancer#
Forum: her2group 04-10-2015, 08:13 PM
Replies: 15
Views: 13,832
Posted By laura4252
Re: Just Herceptin and Perjeta - side effects

I've been on Herceptin and added Perjeta in January 2015. I've had lung mets since 2011, but it's just in the last three months that I'm coughing a lot and experiencing shortness of breath with mild...
Forum: Articles of Interest 12-07-2014, 01:35 PM
Replies: 0
Views: 21,047
Posted By laura4252
New Drug Combo

http://medicine.dal.ca/news/news/2014/12/04/turning_off_the_power__dal_scientist_finds_drug_combination_that_stops_growth_of_breast_cancer_cells.html
Forum: her2group 09-30-2014, 12:53 PM
Replies: 58
Views: 10,336
Posted By laura4252
Re: Significant Progression-Going On Doxil

I have been on treatment vacation since Feb 2014, & the lung mets are progressing so I start Doxil and Herceptin next week. I'm trying the cold caps, and thank you Mamcazi from Berlin, CT for the...
Forum: her2group 07-02-2014, 05:51 PM
Replies: 389
Views: 154,029
Posted By laura4252
Re: Calling all stage iv sisters

I like that.....You can beat Her2---We need to hear more stories about this.
2005 I was diagnosed Stage 0, Her2+++, PR & ER-. Lumpectomy, radiation to right breast.
2009 March Metastisized,...
Forum: her2group 03-20-2014, 09:47 PM
Replies: 7
Views: 2,095
Posted By laura4252
Re: New Vaccine Trial Using Mushroom Tea & Peptide/Herceptin

Paul Stamets started a company called Fungi Perfecti. They sell medicinal mushrooms which have shown to have anti-tumor properties. His account of his mothers breast cancer is quite moving and you...
Forum: her2group 04-11-2013, 03:23 PM
Replies: 60
Views: 13,679
Posted By laura4252
Re: Sisters with Mets...should I stop Herceptin?

Kim from CT, Can you please give us an update on your status since you posted in 2012? Your diagnosis is very similar to mine, however I never did the taxanes since I'm allergic to them. Have used...
Forum: her2group 04-11-2013, 03:13 PM
Replies: 19
Views: 7,212
Posted By laura4252
Re: TDM1/Kadcyla Experiences

I am on cycle 4 of tdm1 after three years on herceptin, three months of navelbine in 2012, then 5 months of gemzar (hated both, but tolerate herceptin well). I have lung mets, and two large tumors...
Forum: her2group 02-20-2012, 08:54 PM
Replies: 389
Views: 154,029
Posted By laura4252
Re: Calling all stage iv sisters

I have been Stage IV since 2009. I am on Herceptin every 3 weeks, and just started Xeloda three weeks ago. Lung mets, two tumors in right breast. No MX. It's good to hear that we can live fully...
Forum: her2group 12-25-2011, 12:31 PM
Replies: 16
Views: 2,255
Posted By laura4252
Re: NED Stage IV? Chemoless stage IV?

Hi Kim, This is Laura in Colorado Springs, Colorado. As of April 2011 I am Stage 4 with two small lung lesions. I have been on Herceptin for two years (infusion every three weeks at University...
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