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Forum: Herceptin / Tykerb 12-19-2009, 08:20 AM
Replies: 17
Views: 6,286
Posted By robind
Re: Herceptin/MUGA Scan

I'm going to take the advice of Joe and not worry about this. Based on all the ejection factor results from each MUGA being consistently in the 60's range...I'm comfortable in the belief that my...
Forum: Herceptin / Tykerb 12-18-2009, 06:25 PM
Replies: 17
Views: 6,286
Posted By robind
Re: Herceptin/MUGA Scan

Sandra in GA. Thanks for answering and sharing. So, now I have a question and I never thought of this before. Why do a muga is an echocardiogram is the same or as effective???
I've been most...
Forum: Herceptin / Tykerb 12-18-2009, 06:17 PM
Replies: 17
Views: 6,286
Posted By robind
Re: Herceptin/MUGA Scan

Thanks Joe. Actually all the muga's I had, including the base were in the 60's. There was never any concern while on Herceptin. It just troubles me that my oncologist who mentioned I would have to...
Forum: Herceptin / Tykerb 12-17-2009, 05:15 PM
Replies: 17
Views: 6,286
Posted By robind
Re: Herceptin/MUGA Scan

Thanks Midwest Alice. I've been thinking about this most of the day today. Part of me feels that because all the muga scans showed no concerns whatsoever, that perhaps I should just leave it at that....
Forum: Herceptin / Tykerb 12-16-2009, 05:48 PM
Replies: 17
Views: 6,286
Posted By robind
Question Herceptin/MUGA Scan

http://her2support.org/vbulletin/images/icons/icon5.gif Need help...advice how to handle this.http://her2support.org/vbulletin/images/icons/icon5.gif
My oncologist in Sept. told me that when I was...
Forum: her2group 12-16-2009, 05:48 PM
Replies: 3
Views: 1,151
Posted By robind
Question Herceptin/MUGA Scan

http://her2support.org/vbulletin/images/icons/icon5.gif Need help...advice how to handle this.http://her2support.org/vbulletin/images/icons/icon5.gif
My oncologist in Sept. told me that when I was...
Forum: her2group 10-19-2009, 05:59 AM
Replies: 13
Views: 1,986
Posted By robind
Re: Would Love your 2 cents....

I also researched the jaw concern...that was actually a huge issue for me. The information I assertained...there is a SLIGHT chance of jaw degeneration. One professional I spoke with told me that...
Forum: her2group 10-16-2009, 12:55 PM
Replies: 24
Views: 3,120
Posted By robind
Re: Who else has a Power Port?

Rich66, not sure, I do feel it depends on the training of the person who is inputting the port. Interventional radiologists - that's who put mine in at Sloan Kettering, didn't ask me. The center that...
Forum: her2group 10-16-2009, 11:54 AM
Replies: 13
Views: 1,986
Posted By robind
Re: Would Love your 2 cents....

I was taking Boniva for osteopenia. Got finished with chemo and after taxol/herceptin combo continued with Herceptin. My oncologist felt strongly that I should be on Zometa. I've been post menopausal...
Forum: her2group 10-16-2009, 10:49 AM
Replies: 24
Views: 3,120
Posted By robind
Re: Who else has a Power Port?

The Bard power port is the newest kind, state of the art. These can be accessed for just about every need/test that either has to have a blood draw or receive medications.
Forum: her2group 10-14-2009, 03:54 PM
Replies: 24
Views: 3,120
Posted By robind
Re: Who else has a Power Port?

Hi Chelee; I had a power port (Bard) up until yesterday. I was "deported". Mine was on my left but placed very differently from where yours is located. Mine was sort of close to my armpit, about...
Forum: Herceptin / Tykerb 09-02-2009, 06:24 AM
Replies: 17
Views: 3,616
Posted By robind
Re: Aromatase Inhibitors/Weakly ER +

I'm going to look into the spray/gel form of magnesium. Thanks for the info. Don't really want to take another vitamin or have any issues with my stomach so the spray/gel/creams is something I will...
Forum: Herceptin / Tykerb 08-29-2009, 05:33 AM
Replies: 17
Views: 3,616
Posted By robind
Re: Aromatase Inhibitors/Weakly ER +

Hello Diannes;
Hmmm, magnesium - how much do you take, how often. Not heard anything about that for joint discomfort.
I'm afraid the Strontium wouldn't be enough for me as I already have...
Forum: Herceptin / Tykerb 08-28-2009, 04:44 PM
Replies: 17
Views: 3,616
Posted By robind
Re: Aromatase Inhibitors/Weakly ER +

Hi Diannes;
My oncologist had said the same is true in my case in having a small benefit. Tamoxifen has been around for over 20 years and there is data out there. I am taking Femera, yes it can...
Forum: Herceptin / Tykerb 08-18-2009, 04:08 PM
Replies: 17
Views: 3,616
Posted By robind
Re: Aromatase Inhibitors/Weakly ER +

I cannot comment on Arimidex but know many who take it. I take Femera and decided a small benefit is better than none.
Herceptin is a godsend for us all, no question.
Forum: Herceptin / Tykerb 08-18-2009, 02:19 PM
Replies: 17
Views: 3,616
Posted By robind
Re: Aromatase Inhibitors/Weakly ER +

Diannes; as I said previously, it is a personal choice to make. As mentioned, there is a benefit, albiet a small one. I cannot give you a percentage however. I'm not quite sure what you are...
Forum: Herceptin / Tykerb 08-16-2009, 06:14 PM
Replies: 17
Views: 3,616
Posted By robind
Re: Aromatase Inhibitors/Weakly ER +

Hi Karen.
It truly is a personal decision to make. For me, I decided to err on the professionals where this was concerned. It was said to me that the benfit would be small, but it still would be a...
Forum: her2group 08-06-2009, 06:07 PM
Replies: 3
Views: 978
Posted By robind
Re: Zometa question

I have osteopenia and osteoporosis (mild) but the fosamax and then boniva along with taking additional daily calcium didn't do very much. My oncologist and primary doctor both felt the Zometa was the...
Forum: Herceptin / Tykerb 08-06-2009, 05:34 PM
Replies: 17
Views: 3,616
Posted By robind
Re: Aromatase Inhibitors/Weakly ER +

Sorry I didn't see your post sooner. I take Femara and I am weakly er+and as pr+. Although it is true that there is a small benefit...there is a benefit. I was taking Boniva before I started and my...
Forum: General Cancer News 07-31-2009, 01:49 PM
Replies: 0
Views: 1,152
Posted By robind
Post Reimbursement services, financial help & more

Sanofi-aventis brochure highlights many alternatives and services to patients who need help. This includes co-pay assistance as just one service available. Contact PACTPLUS 1800/996-6626,...
Forum: Herceptin / Tykerb 07-09-2009, 05:18 PM
Replies: 5
Views: 2,244
Posted By robind
Herceptin - Study

I did check this. There is a study currently going on that is to be completed around Oct/Nov. and that's the study I am trying to get some information about. I'm not sure if it is in Europe or the US.
Forum: Herceptin / Tykerb 07-09-2009, 05:09 PM
Replies: 5
Views: 2,244
Posted By robind
Talking Herceptin info.

I think this is one that I have identified but will definitely check it out again. Thanks so much for answering.
Forum: Herceptin / Tykerb 07-09-2009, 04:53 PM
Replies: 31
Views: 12,225
Posted By robind
Post Herceptin - nose that constantly drips

Don't have any eye concerns but...my nose just runs, constantly. I may have my head down reading and I have to run to wipe my nose. My 97 year old grandmother had this when she was alive ... it's...
Forum: Herceptin / Tykerb 07-09-2009, 04:36 PM
Replies: 5
Views: 2,244
Posted By robind
Question Herceptin - Study to determine benefits of continuing beyond one year

Does anyone know about this current study to determine if there is a benefit to continue receiving Herceptin beyond the one year? My oncologist has referenced this study (several times). I've...
Forum: her2group 03-12-2009, 10:04 AM
Replies: 40
Views: 4,455
Posted By robind
Prayers are for Caryn, thanks and I will will...

Prayers are for Caryn, thanks and I will will your prayers to go for her!
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