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Forum: Herceptin / Tykerb 07-05-2007, 03:25 PM
Replies: 689
Views: 293,138
Posted By bailey
Ladies - I'm sorry to hear about your Herceptin...

Ladies - I'm sorry to hear about your Herceptin side effects. I started on Herceptin in 2003 so it's not a new drug but I am now on Tykerb as they found spots on my lungs but I'm doing fine. With...
Forum: Herceptin / Tykerb 06-01-2007, 05:30 PM
Replies: 27
Views: 4,684
Posted By bailey
Andrea - I was on Effexor in 2003 when my cancer...

Andrea - I was on Effexor in 2003 when my cancer mets to lung and liver but I weaned myself off last year - it's an antidepressant and I wanted off - it did help with my hot flashes but I really have...
Forum: Herceptin / Tykerb 06-01-2007, 05:20 PM
Replies: 27
Views: 4,684
Posted By bailey
Lala - thank you so much for your response. ...

Lala - thank you so much for your response. Right now I am on 5 Tykerb/day and 6 xeloda/day - 3 in the morning and 3 in the evening - 14 days on and 7 days off of xeloda - right now I am off the...
Forum: Herceptin / Tykerb 06-01-2007, 09:44 AM
Replies: 27
Views: 4,684
Posted By bailey
Andrea - I was on Herceptin and did very well on...

Andrea - I was on Herceptin and did very well on it. I just started Tykerb and Xeloda and I hate it - first, not sure about the Tykerb and Herceptin as I thought the same as you but I'm hoping my...
Forum: her2group 05-14-2007, 12:24 PM
Replies: 68
Views: 10,879
Posted By bailey
Thanks Andi - you are so kind. Yes, as I say the...

Thanks Andi - you are so kind. Yes, as I say the dumbass left although it's been 2 years now but he left after I had just been off chemo for the 2nd time - he left 6 months after my last chemo - had...
Forum: Herceptin / Tykerb 05-12-2007, 01:16 PM
Replies: 689
Views: 293,138
Posted By bailey
Good luck with your scans - stay positive - you...

Good luck with your scans - stay positive - you have done so well.
When I was on Herceptin they told me I would have aches etc. - I found the one thing that really always has helped me was working...
Forum: her2group 05-12-2007, 10:36 AM
Replies: 68
Views: 10,879
Posted By bailey
Andrea - you are so wonderful - a true miracle...

Andrea - you are so wonderful - a true miracle and full of life - I LOVE IT!! Dede, hang in there and do what you need to do. I was on Herceptin since 2003 with my second go around of chemo and...
Forum: Herceptin / Tykerb 05-07-2007, 03:07 PM
Replies: 30
Views: 5,297
Posted By bailey
Ladies - do try the Jan Marini skin care line -...

Ladies - do try the Jan Marini skin care line - the Cesta cream and Bioclear are amazing and highly recommended for rosacea as well. If you go onto the Jan Marini website they will hook you up with...
Forum: Herceptin / Tykerb 05-07-2007, 05:53 AM
Replies: 27
Views: 4,684
Posted By bailey
I think that is from the xeloda but not sure -...

I think that is from the xeloda but not sure - goes along with the hand and foot thing. Try a good make of Vitamin C Cream - try Jan Marini C'esta Cream - you will have to find an aesthetician in...
Forum: Herceptin / Tykerb 05-05-2007, 08:06 AM
Replies: 27
Views: 4,684
Posted By bailey
Lolly - thank you so much for that. My Onc said...

Lolly - thank you so much for that. My Onc said I MAY loose some but not alot - I haven't heard of anyone else even mentioning it thinned a bit so not sure who else that has happened to. I'll...
Forum: Herceptin / Tykerb 05-03-2007, 03:32 PM
Replies: 27
Views: 4,684
Posted By bailey
Lolly (or anyone plse.) - I am starting xeloda...

Lolly (or anyone plse.) - I am starting xeloda and tykerb next Wed. Did you loose your hair with xeloda? They tell me there is a possibility one time when I called the company and the next time...
Forum: Herceptin / Tykerb 05-03-2007, 07:44 AM
Replies: 30
Views: 5,297
Posted By bailey
I'm curious to know what they think the B6 is...

I'm curious to know what they think the B6 is suppose to do for you? Also, have any of you heard of any hair loss. When I received my pills yesterday and the Onc. mentioned it they state some hair...
Forum: Herceptin / Tykerb 05-03-2007, 06:57 AM
Replies: 15
Views: 3,247
Posted By bailey
Andi - how are you handling the tykerb/xeloda...

Andi - how are you handling the tykerb/xeloda these last few days? There's been a real mix of the way to take it - some say take the tykerb at night which makes alot of sense to me - I"ll be...
Forum: Herceptin / Tykerb 05-02-2007, 05:08 PM
Replies: 30
Views: 5,297
Posted By bailey
I will be starting next Wed. There are a few...

I will be starting next Wed. There are a few different ways I've read to take all these meds - some swear by Tykerb at night but someone said they woke up a few times with the runs others take it in...
Forum: Herceptin / Tykerb 05-02-2007, 07:18 AM
Replies: 27
Views: 4,684
Posted By bailey
Adriana - although I have not started the ty/xel....

Adriana - although I have not started the ty/xel. combo I am still doing it. Everything I"ve read about it is so positive and I know the onc. can adjust your xeloda so that the side effects aren't...
Forum: Herceptin / Tykerb 05-02-2007, 07:15 AM
Replies: 689
Views: 293,138
Posted By bailey
Chrissy - not sure why you have the drippy nose...

Chrissy - not sure why you have the drippy nose maybe from the Taxol. I had no problem with that on Herceptin - could it be allergies at all? Just a thought?
Forum: her2group 05-01-2007, 07:33 PM
Replies: 68
Views: 10,879
Posted By bailey
My story: Diagnosed with BC in 2002 -...

My story:

Diagnosed with BC in 2002 - lumpectomy, 6 rounds chemo then radiation - put on tamoxifen
2003 - 4 tumors found in my ovaries, hysterectomy all tumors benign, mets to the lung and liver...
Forum: her2group 05-01-2007, 04:41 PM
Replies: 17
Views: 2,042
Posted By bailey
Sheila - you sound like an angel. I am just...

Sheila - you sound like an angel. I am just going to be starting tykerb/xeloda next week - tykerb will be 5 pills/day at 250mg each and xeloda will be 6pills/day - 3 a.m. and 3pm at 500mg each. Any...
Forum: Herceptin / Tykerb 05-01-2007, 04:31 PM
Replies: 27
Views: 4,684
Posted By bailey
Sherry and Esther - you can also try aloe...

Sherry and Esther - you can also try aloe gel/cream on the rash as that may help as well. I will be starting both next week so we'll see how it goes. I swear by vaseline petroleum jelly on my feet...
Forum: Herceptin / Tykerb 05-01-2007, 04:27 PM
Replies: 30
Views: 5,297
Posted By bailey
I will be starting the tykerb/xeloda combo early...

I will be starting the tykerb/xeloda combo early next week. I was told I will be taking 5 pills/day of tykerb at 250mg. each and with the xeloda I'll be taking 3 pills, 2 times/day at 500mg. each. ...
Forum: Herceptin / Tykerb 05-01-2007, 04:19 PM
Replies: 15
Views: 3,247
Posted By bailey
Another thing good to use for feet and hands with...

Another thing good to use for feet and hands with the xeloda is Vaseline petroleum Jelly - put it on feet after your shower and use alot, put socks on . At night do your hands and put cotton gloves...
Forum: Herceptin / Tykerb 05-01-2007, 04:13 PM
Replies: 689
Views: 293,138
Posted By bailey
Ladies - I am overwhelmed with what I'm reading...

Ladies - I am overwhelmed with what I'm reading about everyone's reaction to herceptin. I am Stage 4 mets BC - I started my chemo, second time around in 2003 for mets to the lung and liver. With...
Forum: Herceptin / Tykerb 04-30-2007, 02:17 PM
Replies: 9
Views: 3,696
Posted By bailey
That is weird because everything you will read...

That is weird because everything you will read about tykerb will tell you that it does cross the brain barrier - that's what is so great about tykerb to hopefully protect the brain from tumors. I...
Forum: Herceptin / Tykerb 04-30-2007, 01:25 PM
Replies: 4
Views: 2,694
Posted By bailey
Julierene - I'm sorry to hear of your...

Julierene - I'm sorry to hear of your reoccurrence of the Liver but thankfully there is Tykerb and Xeloda. I will be starting within the next couple of weeks - the pharm. co. just called today to...
Forum: Herceptin / Tykerb 04-27-2007, 08:00 AM
Replies: 8
Views: 2,629
Posted By bailey
Thank you all so much for your help. As you may...

Thank you all so much for your help. As you may recall from my previous info. when my cancer mets. to lung and liver in 2003 I was on Taxotere and Herceptin and then when I came off Taxotere stayed...
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