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Search: Posts Made By: Whonoze
Forum: her2group 03-25-2018, 06:19 AM
Replies: 14
Views: 6,922
Posted By Whonoze
Forum: her2group 03-23-2018, 04:11 PM
Replies: 14
Views: 6,922
Posted By Whonoze
Re: Anyone Stage IV De Novo With 10+ Years NED?

I am also Stage IV de novo and have been on Herceptin infusions for 11 years.
Forum: her2group 09-29-2017, 06:03 AM
Replies: 14
Views: 7,693
Posted By Whonoze
Re: Pathological complete response

10 years out from my PCR!!!
Forum: her2group 07-07-2017, 08:16 AM
Replies: 14
Views: 6,922
Posted By Whonoze
Forum: her2group 07-06-2017, 07:07 AM
Replies: 31
Views: 12,219
Posted By Whonoze
Re: 12 years, but who is counting?

Fantastic! Congrats!
Forum: her2group 07-06-2017, 07:02 AM
Replies: 14
Views: 6,922
Posted By Whonoze
Anyone Stage IV De Novo With 10+ Years NED?

I've been amazingly lucky with my treatment response and have been NED for over 10 years after being Stage IV de novo with mets to liver and bones.

I had one course of chemo with Herceptin and...
Forum: her2group 05-10-2017, 09:16 AM
Replies: 15
Views: 4,293
Posted By Whonoze
Re: twelve years !

Congratulations!!!!
Forum: her2group 03-02-2017, 09:51 PM
Replies: 14
Views: 6,731
Posted By Whonoze
Re: ANDI'S STORY 1995 - 2017 and still going strong

That's wonderful!! I have been on Herceptin for 10 years and am afraid to go off. I was Stage IV de novo and was NED at the end of my first round of chemo.

So very glad to hear how well you're...
Forum: her2group 02-02-2017, 07:23 PM
Replies: 45
Views: 13,924
Posted By Whonoze
Re: Port or No Port?

No port. 10 years and still using the same vein, which I have named Old Faithful.
Forum: her2group 12-20-2016, 03:06 PM
Replies: 40
Views: 12,350
Posted By Whonoze
Re: 15 years stage IV - no drugs in 8yrs - still NED

Congratulations!!

Good to hear about the Herceptin. I've been on for almost 10 years and am afraid to go off.

Celebrate!!
Forum: her2group 11-16-2016, 05:31 PM
Replies: 13
Views: 5,115
Posted By Whonoze
Re: DCIS & her2+?

I was already on Herception for Stage IV when I got DCIS. I had a lumpectomy and then a double mastectomy, which my surgeon did not want to perform and tried to talk me out of.

Almost 10 years...
Forum: Herceptin / Tykerb 11-01-2016, 04:06 PM
Replies: 14
Views: 6,475
Posted By Whonoze
Re: Herception

Sorry. That was intended as a reply to Donna's post.
Forum: Herceptin / Tykerb 11-01-2016, 04:05 PM
Replies: 14
Views: 6,475
Posted By Whonoze
Re: Herception

I'm in the same wonderful situation. Have been on Herceptin since January 2007. I think about going off but don't want to risk it. My heart has been holding out so far.

My onc leaves it to me,...
Forum: her2group 10-23-2016, 04:32 PM
Replies: 40
Views: 12,654
Posted By Whonoze
Re: Acupuncture for Neuropathy

I had pins and needles in my hand due to pinched nerve in my upper spine. It went on for months and did not respond to PT. I went to acupuncture 4 times, and it was gone.
Forum: her2group 10-19-2016, 08:13 AM
Replies: 18
Views: 4,718
Posted By Whonoze
Re: Stage IV and totally stressed

Sounds like you're doing great!! Keep it up.
Forum: her2group 10-18-2016, 06:26 AM
Replies: 18
Views: 4,718
Posted By Whonoze
Re: Stage IV and totally stressed

I've been living with Stage IV since diagnosis almost 10 years ago. It is not a death sentence, and new treatments are being developed all the time.

So, focus on those of us Stage IVers that...
Forum: her2group 10-03-2016, 07:43 PM
Replies: 18
Views: 5,027
Posted By Whonoze
Re: No rant JUST the facts...

I got 3 or 4 treatments of IV iron when mine was low. It seemed to help, and I don't recall any bad side effects.
Forum: her2group 08-07-2016, 06:46 PM
Replies: 5
Views: 4,566
Posted By Whonoze
Re: Better odds if stage 4 at dx??

Here's one study: Survival differences among women with de novo stage IV and relapsed breast cancer
Forum: her2group 08-04-2016, 06:44 PM
Replies: 6
Views: 3,555
Posted By Whonoze
Re: Heart health for stage 4

I walk every other day. It really seems to keep it high.
Forum: her2group 07-21-2016, 09:09 PM
Replies: 21
Views: 7,877
Posted By Whonoze
Re: Long-term Herceptin: How many and how's it effecting your life?

I'm 9 1/2 years on Herceptin. I was thinking of going off at 10 but decided not to rock the boat because there's really no data.
Forum: her2group 06-15-2016, 07:11 PM
Replies: 17
Views: 3,640
Posted By Whonoze
Re: 11 years for me!!

Congratulations!!!! Yes, the bad dream gets distant but is always present.
Forum: her2group 05-26-2016, 06:54 PM
Replies: 36
Views: 11,881
Posted By Whonoze
Re: 12 years Stage 4 - Still A-OK

Congratulations! Wonderful!
Forum: her2group 05-19-2016, 08:31 AM
Replies: 15
Views: 3,631
Posted By Whonoze
Re: 10 year survivor

Big congrats!!!! We have a lot to be grateful for!!
Forum: her2group 05-13-2016, 06:28 AM
Replies: 45
Views: 22,826
Posted By Whonoze
Re: Looking for hope

Benk: I completely agree with Colleen's "keep moving" advice. Remission from Stage IV is possible. I had Taxotere, Herceptin and Carboplatin in 2007 and have been in remission since completing...
Forum: her2group 03-03-2016, 10:15 AM
Replies: 15
Views: 5,643
Posted By Whonoze
Re: The metastatic breast cancer alliance

I filled out the forms. Was so glad to learn about the project.
Showing results 1 to 25 of 41

 
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