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Forum: her2group 02-02-2016, 10:47 AM
Replies: 9
Views: 5,017
Posted By KG1993
Re: 4+ years with stage IV battle ends

Thank you for all the wonderful responses. May all of you continue to fight this horrific disease.
Forum: her2group 01-07-2016, 08:35 AM
Replies: 9
Views: 5,017
Posted By KG1993
4+ years with stage IV battle ends

My mother was dx in August of 2011 with stage IV Her2+ with mets to liver and bones. Treatment was given at Mayo Clinic in Rochester, MN. We live about 6 hours from there in IL. 15 months later,...
Forum: her2group 10-07-2015, 05:33 PM
Replies: 1
Views: 2,559
Posted By KG1993
breast tumor bigger-brain mets stable

Does it make sense to anyone that breast tumor is growing (detected by touch and PET/MRI scans) but other organs are stable? That was the report this summer for my Mom. Her tumor in breast seems to...
Forum: her2group 02-13-2015, 12:22 PM
Replies: 32
Views: 4,755
Posted By KG1993
Re: 10 years - one decade - since brain mets diagnosis

Awesome!!!!!!!!!!!!!!!!!!!!!!!!!!!
Forum: her2group 12-16-2014, 12:07 PM
Replies: 7
Views: 2,207
Posted By KG1993
Smile Re: 3 + years stage IV 2 + years brain mets

Mom went to Mayo clinic in Rochester MN as soon as she was diagnosed by our local hospital. They dictate her therapy. Hope this helps.
Forum: her2group 12-16-2014, 09:11 AM
Replies: 7
Views: 2,207
Posted By KG1993
3 + years stage IV 2 + years brain mets

Just wanted to provide some encouragement for those who are currently battling the C word. My mom was diagnosed at age 61 with stage IV HER2 breast cancer with 2 small mets to liver and several to...
Forum: her2group 02-20-2014, 07:15 PM
Replies: 18
Views: 3,895
Posted By KG1993
Re: H0-ho-hope someone has some PERJETA feedback...

No she has not been in a hospital and she has not been on any antibiotics.

She went to Doctor yesterday and they prescribed an anti-dia med. I wonder if she has stomach flu or something. This...
Forum: her2group 02-18-2014, 06:00 PM
Replies: 18
Views: 3,895
Posted By KG1993
Re: H0-ho-hope someone has some PERJETA feedback...

Besides immodium does anyone have any suggestions with having the severe case of the big D with perjeta? Mom had infusion 5 days ago and she is passing straight water.
Forum: her2group 12-20-2013, 08:52 PM
Replies: 3
Views: 1,277
Posted By KG1993
Re: Perjeta and TDM1

Well she is a little bit of both. Diagnosed with stage 4 with bone mets in 2011. Brain mets 2012. She is starting perjeta and stopping herceptin and flasodex. We are in Illinois but treated st Mayo...
Forum: her2group 12-20-2013, 05:39 PM
Replies: 3
Views: 1,277
Posted By KG1993
Perjeta and TDM1

Can someone tell me if perjeta and TDM1 are the same med. I swore my moms oncologist said that yesterday and now confused after searching web. Thanks in advance to anyone who answers!
Forum: her2group 11-26-2013, 12:06 PM
Replies: 189
Views: 32,431
Posted By KG1993
Re: NEDenise Has Died

Dear Ted and family,
I do not check the support group on a regular basis, but felt something was not right because I had not seen a post from Denise in some time. My heart is breaking for you. She...
Forum: her2group 11-08-2013, 08:06 PM
Replies: 7
Views: 2,184
Posted By KG1993
Re: brain mets reoccurence

Well finally we have some results. Her bone mets in her back have spread to a spot in her neck vertebrae. They didn't really say anything about the two small spots that "reappeared" in her cerebellum...
Forum: her2group 10-23-2013, 03:14 PM
Replies: 7
Views: 2,184
Posted By KG1993
Re: brain mets reoccurence

She had WBR the first round when she was dx (Nov 2012)with the brain mets because she had a large one in frontal lobe and several small ones in cerebellum. Her gamma knife was Feb. 2013.

I will...
Forum: her2group 10-22-2013, 07:12 PM
Replies: 7
Views: 2,184
Posted By KG1993
Re: brain mets reoccurence

......mayo clinic is supposed to look at the scan disks this week or next. We live about 6 hours from there so had scan done locally and then they send all the info. Not sure about swelling or...
Forum: her2group 10-22-2013, 06:48 PM
Replies: 7
Views: 2,184
Posted By KG1993
Unhappy brain mets reoccurence

Has anyone had brain mets go away after gamma knife or other rads and then reappear in same spot..........now what????

Asking for my mother.
KG
Forum: her2group 09-12-2013, 02:01 PM
Replies: 58
Views: 6,633
Posted By KG1993
Talking Re: Brain MRI Today!! ??

awesome!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Forum: her2group 05-16-2013, 07:57 AM
Replies: 7
Views: 1,353
Posted By KG1993
Talking brain mets update from IL

For those of you who have been kind and responded to all my inquiries regarding my Mom, she had a really good report from Mayo clinic yesterday.

Background: Brain mets in frontal lobe and several...
Forum: her2group 05-06-2013, 07:33 PM
Replies: 79
Views: 17,134
Posted By KG1993
Re: NEDenise vs NEDecadron Smackdown!

Congrats Denise! I hope it works!!!
kG
Forum: Herceptin / Tykerb 05-06-2013, 07:31 PM
Replies: 4
Views: 8,606
Posted By KG1993
Re: steroids and halluciations

KsGal-
Mom is now off dex for now. The movement on walls did come and go for a day or
So. Mom is 63. She has wBR and then gamma knife in feb. She started physical therapy last week and goes 3x...
Forum: Herceptin / Tykerb 05-05-2013, 06:31 PM
Replies: 4
Views: 8,606
Posted By KG1993
Re: steroids and halluciations

Thanks Jackie. She is going to mayo this month for checkup. Her balance is still way off. Dad is giving her physical therapy on days she doesn't go to her PT.
Kim
Forum: Herceptin / Tykerb 05-03-2013, 08:49 AM
Replies: 4
Views: 8,606
Posted By KG1993
steroids and halluciations

Anyone else have hallucinations or muscle weakness (like barely pick up foot to walk) on steroids (Dex)for swelling?

When I mean hallucinations, I mean walls might seem to be moving and or...
Forum: her2group 05-01-2013, 05:48 PM
Replies: 2
Views: 972
Posted By KG1993
Re: do i have 2 legs and trembling

Ya they didn't think it was a stroke 2 weeks ago when this all started but I will have my dad call tomorrow
Forum: her2group 05-01-2013, 05:21 PM
Replies: 2
Views: 972
Posted By KG1993
Thumbs down do i have 2 legs and trembling

Mom had gamma in Feb. She just had MRI 2 weeks ago and spinal tap because she was having trouble walking with one of her feet.

Scan showed no progression and spinal tap was free of cancer cells....
Forum: her2group 04-25-2013, 06:38 PM
Replies: 4
Views: 804
Posted By KG1993
steroids and muscle weakness

anyone else who has been on steroids for swelling end up with muscle weakness and confusion?

mom had MRI all good. had spinal tap, everything clear. STILL little confused at times and having...
Forum: her2group 04-21-2013, 08:16 AM
Replies: 79
Views: 17,134
Posted By KG1993
Re: NEDenise vs NEDecadron Smackdown!

PS I wish my Mom had the positive outlook you have.
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