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Search: Posts Made By: Barbara H.
Forum: her2group 03-05-2015, 09:34 AM
Replies: 44
Views: 73,695
Posted By Barbara H.
Re: Kadcyla Side Effects

I believe that I was the first member on this website to go on the TDM-1 trial in Sept. 2007. At that time it was called Phase 1, open does escalation study of the safety and pharmacokinetics of...
Forum: her2group 03-04-2015, 02:11 PM
Replies: 49
Views: 20,486
Posted By Barbara H.
Re: Ugh Brain Mets!

Hi DizzyDo,
I had surgery and stereotactic radiation for a 3 cm tumor to my pre-frontal cortex in 2004. I also hated the Dex. I am on Tykerb and Herceptin and continue to be NED. My thoughts are...
Forum: her2group 03-04-2015, 02:01 PM
Replies: 36
Views: 4,191
Posted By Barbara H.
Cool Re: Adriana Mangus has her wings

I was upset and sad to read that Adriana is no longer with us. I enjoyed reading her posts and will miss her. My thoughts go out to her friends and family.
Thinking of you!
Barbara H.
Forum: her2group 01-30-2014, 04:00 PM
Replies: 12
Views: 1,871
Posted By Barbara H.
Re: How long have I go left? "I canít go on. Iíll go on.Ē

It will be ten years in May that I was diagnosed with with a 3cm brain met as will as mets in other areas. I was originally diagnosed in 1998. I am currently NED. Tykerb (4 pills in the morning)...
Forum: her2group 01-16-2014, 07:14 PM
Replies: 16
Views: 3,400
Posted By Barbara H.
Re: Our Sweet Sheila

Thank you for sharing. Sheila was so giving of herself. I will never forget her.
Barbara H.
Forum: her2group 12-30-2013, 12:00 AM
Replies: 189
Views: 24,261
Posted By Barbara H.
Re: NEDenise Has Died

I was not shocked, but shaken when I logged on and learned about Denise. I was waiting to be unhooked from my Herceptin at 7:30 a.m. I then had to leave for school and teach for the rest of the...
Forum: her2group 06-23-2013, 05:56 PM
Replies: 68
Views: 6,495
Posted By Barbara H.
Re: Hema

You are a wonderful husband. My thoughts are with you, Hema and your Family.
Barbara H.
Forum: her2group 06-16-2013, 01:24 PM
Replies: 26
Views: 3,321
Posted By Barbara H.
Re: Kadcyla & Perjeta, Thank You, But It's Over Now

KDR,
I am very sorry to hear that you are going on to a new treatment. I am in awe of your positive nature. I hope that your next trial works for a long time and that it is easy to tolerate,
Best...
Forum: her2group 06-16-2013, 01:19 PM
Replies: 49
Views: 7,699
Posted By Barbara H.
Re: Steroid Smackdown Round 3!

Hi Denise.
I am hoping that you hear good new. I do not have to drink the white stuff, although I did at the beginning. They offer other flavors that taste like juice. You should request that, ...
Forum: her2group 06-14-2013, 04:44 PM
Replies: 49
Views: 7,699
Posted By Barbara H.
Smile Re: Steroid Smackdown Round 3!

Hi Denise,
I look everyday for your posts, and am so glad to hear this positive news. I "hated" that drug and was manic when I was on it. One night I woke up and told my husband, " I could be...
Forum: her2group 06-07-2013, 05:10 PM
Replies: 43
Views: 16,900
Posted By Barbara H.
Re: Remembering jml our Jessica

My heart just goes out to Jessica's family. This news just shocks me, in spite of the fact that I knew that she was not doing well. In addition, I feel for all of our HER2 families (and I say...
Forum: her2group 05-30-2013, 02:23 PM
Replies: 25
Views: 2,408
Posted By Barbara H.
Re: Doxil...q28 days -time is of the essence

Jessica,
My thoughts are with you. I hope the Doxil works for you and gives you more time. Enjoy each day as best as you can. I am glad your mom is with you for support.
Please continue to write...
Forum: her2group 05-29-2013, 06:14 PM
Replies: 60
Views: 3,938
Posted By Barbara H.
Re: Not ready

I will be thinking of you. These procedures are not fun.
Barbara H.
Forum: her2group 04-29-2013, 03:24 PM
Replies: 38
Views: 4,426
Posted By Barbara H.
Re: Remembering Chrisy

My thoughts go out to Chrisy's family. I was just heartbroken to hear this news. We were pioneers of the The TDM-1 trail, and when she continued on the trial into the third year, I just expected...
Forum: her2group 04-17-2013, 01:53 PM
Replies: 39
Views: 2,507
Posted By Barbara H.
Re: Passing

I am so sorry to hear of your mother's passing and of your loss. She was loved and highly regarded here. She had so much wisdom to offer us. I think of her often and will miss her.
Kind regards,...
Forum: her2group 04-11-2013, 09:16 AM
Replies: 13
Views: 2,052
Posted By Barbara H.
Re: the day has finally come--- benefit evaluated of herceptin+lapatinib WITHOUT CHEM

I have been on Herceptin and Tyberb since I went off the TDM-1 trial at the end of 2009. I only take 4 tablets. I find this combination very easy to tolerate and it is working for me.
Best,...
Forum: her2group 04-07-2013, 11:28 AM
Replies: 165
Views: 14,721
Posted By Barbara H.
Re: update I hate to give (with a little more positive spin)

Hi Chris,
I have been checking in everyday to hear how you were doing, and like others have said so eloquently, this is also not the news that I wanted to hear. You have been such a kind and...
Forum: her2group 03-29-2013, 05:41 PM
Replies: 24
Views: 3,359
Posted By Barbara H.
Re: Haven't been on this board for nearly 3 years

As a parent my heart goes out to you. I also agree that it is good advice to listen to her and to acknowledge her fears and sadness. I also understand that her oncologists need to be honest with...
Forum: her2group 03-29-2013, 04:51 PM
Replies: 14
Views: 1,032
Posted By Barbara H.
Re: Happy Birthday Mom (Sheila)

Thank you for reminding us of your mom's birthday, Jen. After reading your post, I thought of her all day. She was such a support to me. I will never forget her.
Thinking of you,
Barbara H.
Forum: her2group 03-28-2013, 03:53 PM
Replies: 113
Views: 9,252
Posted By Barbara H.
Re: Chemo Failure #3...now I'm doing what???

Chris,
My thoughts continue to be with you. You are a a role model to me, and I am impressed with your determination.
Sending you positive thoughts!!
Barbara H.
Forum: her2group 03-28-2013, 03:46 PM
Replies: 47
Views: 3,982
Posted By Barbara H.
Re: Progression or Necrosis in the brain?

I had necrosis twice after brain surgery, and did have the surgery twice to have it removed. It does grow so it is highly possible that you have necrosis instead of progression. I wouldn't recommend...
Forum: her2group 03-08-2013, 03:31 PM
Replies: 113
Views: 9,252
Posted By Barbara H.
Re: Chemo Failure #3...now I'm doing what???

Chris,
Your post just broke my heart. I remember when you went on TDM-1 and it was working so well for you. We were on it for a while at the same time.
TDM-1 was working so well for you that I...
Forum: her2group 02-23-2013, 06:02 PM
Replies: 54
Views: 4,079
Posted By Barbara H.
Re: T DM-1 Approved !!

I jumped for joy when I heard this news. I believe that I was one of the first to be given this drug on this website. It was truly a miracle drug for me. I was on a stage one trial and received it...
Forum: her2group 02-09-2013, 12:15 PM
Replies: 14
Views: 4,381
Posted By Barbara H.
Re: Acrylic nails

I am also in the same situation. I am currently on Tykerb and Herceptin as long as it continues to work. I know that we are not supposed to do our nails, but they also break and bleed. My fingers...
Forum: her2group 12-27-2012, 08:08 PM
Replies: 9
Views: 2,028
Posted By Barbara H.
Re: working while on taxol?

I was first diagnosed in 1998. I had AC and then Taxol. I started AC during the summer and finished Taxol on Dec. 24th. I teach and worked the entire time. I actually found Taxol to be more...
Showing results 1 to 25 of 500

 
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