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Search: Posts Made By: SoCalGal
Forum: her2group 05-24-2019, 09:45 PM
Replies: 111
Views: 12,448
Posted By SoCalGal
Re: ZW25 clinical trial - day one

Lucy thanks for the reminder, you are right, my mind is racing. Big hugs, Flori
Forum: her2group 05-24-2019, 05:44 PM
Replies: 111
Views: 12,448
Posted By SoCalGal
Re: ZW25 clinical trial - day one

My scan showed quite a bit of progression. Going for brain mri tomorrow plus cervical. Next week thoracic and lumbar spine MRIís. I dont have pain but have random numbness on my NON-cancer right side...
Forum: her2group 04-23-2019, 04:34 PM
Replies: 111
Views: 12,448
Posted By SoCalGal
Re: ZW25 clinical trial - day one

Thanks everyone...will update after scan results and doctor visit on Friday. xoxo
Forum: her2group 04-23-2019, 04:32 PM
Replies: 7
Views: 302
Posted By SoCalGal
Re: Could this be Skin Mets?

Highly unlikely, especially since your surgeon saw and was unconcerned - seems like a surgeon would recognize mets when he/she saw them. I had skin lymphatic involvement way back in 2004, and mine...
Forum: her2group 04-17-2019, 07:29 AM
Replies: 124
Views: 13,124
Posted By SoCalGal
Re: Treatment after Kadcyla?

Heartbreaking news. I am so sorry for your loss, Iain. Your mom will be sorely missed, she was a sweetheart, kind and supportive to all. Thanks for letting us know. May her memory be a blessing to...
Forum: her2group 04-12-2019, 05:37 PM
Replies: 111
Views: 12,448
Posted By SoCalGal
Re: ZW25 clinical trial - day one

Hi Gals,
Well...I'm not going to continue with the trial. My decision for a variety of reasons, but rising markers and just can't take the USC Norris environment and the lack of proper medical...
Forum: her2group 03-06-2019, 12:31 PM
Replies: 16
Views: 709
Posted By SoCalGal
Re: 7 years stage IV

I'm almost 12 years stage 4 so try to catch up with me!! Also, you might want to take advantage of recently approved Herceptin as a shot!! NO more infusions. Congrats on the 7 years...keep going :) ...
Forum: her2group 03-06-2019, 12:27 PM
Replies: 3
Views: 374
Posted By SoCalGal
Smile herceptin injection approved!!!!

Lani posted the links and info in a separate thread - but subcutaneous herceptin is now approved in the USA!!!!

For those who are on herceptin only or herceptin with an oral agent, this could be...
Forum: her2group 03-06-2019, 12:22 PM
Replies: 124
Views: 13,124
Posted By SoCalGal
Re: Treatment after Kadcyla?

Hello Juls--Am thinking of you. [[[hugs]]]
Forum: her2group 03-06-2019, 12:12 PM
Replies: 111
Views: 12,448
Posted By SoCalGal
Re: ZW25 clinical trial - day one

Had treatment yesterday - ZW #10.

Had to push it up a week bc sponsor didn't have my drug lot ready on time and trial hosts called me to reschedule. Well, first they asked me to reschedule a day...
Forum: her2group 02-04-2019, 07:57 PM
Replies: 110
Views: 21,066
Posted By SoCalGal
Forum: her2group 02-04-2019, 07:56 PM
Replies: 16
Views: 662
Posted By SoCalGal
Re: Pericarditis Query

Just catching up, Marie, hope you're feeling better!!
Forum: her2group 02-04-2019, 06:56 PM
Replies: 124
Views: 13,124
Posted By SoCalGal
Re: Treatment after Kadcyla?

Juls
Not sure why your onco doesn't seem forthcoming with info. I am frustrated on your behalf!!

Can you search with this link from breastcancer.org? they have a good metastatic search engine. ...
Forum: her2group 02-04-2019, 06:47 PM
Replies: 111
Views: 12,448
Posted By SoCalGal
Re: ZW25 clinical trial - day one

LAUREL!! I'm alive and well-ish. We are rainy rainy here but please come and visit me--warmer then east coast! And mid-west. Below zero??? Crazy cold.

Did treatment 2 weeks ago and tomorrow is...
Forum: her2group 01-11-2019, 06:02 PM
Replies: 124
Views: 13,124
Posted By SoCalGal
Re: Treatment after Kadcyla?

Juls,
Sorry that you are not feeling well. Sciatic pain is horrible, I hope that you get pain managed and answers soon. Any chance of you joining a clinical trial?! Sending hugs and so much love...
Forum: her2group 01-11-2019, 05:58 PM
Replies: 5
Views: 1,275
Posted By SoCalGal
Re: Mets

Gardener-- "asking for a friend" lol. Please feel free to post your questions in this thread. More helpful to all that way.
Forum: her2group 01-08-2019, 12:35 AM
Replies: 124
Views: 13,124
Posted By SoCalGal
Re: Treatment after Kadcyla?

How are you Juls?
Forum: her2group 01-08-2019, 12:33 AM
Replies: 17
Views: 2,225
Posted By SoCalGal
Re: Brain met ??? Anyone have advice

She's more tired than usual because this stupid disease is exhausting! I had a single brain met zapped via gamma knife in 2008. Gone girl. But I'm still here. You don't say if your wife is still on...
Forum: her2group 01-08-2019, 12:27 AM
Replies: 5
Views: 1,275
Posted By SoCalGal
Re: Mets

I had a small thickening to the left adrenal that has shrunk on the clinical trial I am on. (ZW25)
Forum: her2group 01-08-2019, 12:19 AM
Replies: 111
Views: 12,448
Posted By SoCalGal
Re: ZW25 clinical trial - day one

Happy 2019 and thanks for checking on me! <3 I was very swept away by family and visiting cousins and holiday madness and I allowed myself to not think about cancer for a couple weeks... ...
Forum: her2group 12-18-2018, 12:00 AM
Replies: 111
Views: 12,448
Posted By SoCalGal
Re: ZW25 clinical trial - day one

Thank you Steph. And lovely Laurel sorry to take so long to show up. Xoxo
Forum: her2group 12-17-2018, 09:56 PM
Replies: 111
Views: 12,448
Posted By SoCalGal
Re: ZW25 clinical trial - day one

Had CT scan today. Went online to see my results - I am stable. And I cannot believe how sad I feel.

Itís been a hell of a two weeks with the trial doc ignoring my emails until I had to email the...
Forum: her2group 11-20-2018, 08:32 AM
Replies: 111
Views: 12,448
Posted By SoCalGal
Re: ZW25 clinical trial - day one

Here we go again...zw#6 today. Can’t believe this doc is so defensive and also he doesn’t get it. “An extra favor” ?!?!?! The team member is the scheduler - not a nurse or anyone trained or allowed...
Forum: her2group 11-05-2018, 05:00 PM
Replies: 12
Views: 2,172
Posted By SoCalGal
Re: 13 years!!!

Great post--keep surviving :)
Forum: her2group 11-05-2018, 04:57 PM
Replies: 15
Views: 2,448
Posted By SoCalGal
Re: 12 Years Out!

Keep going!!! <3
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