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Search took 0.01 seconds. Search: Posts Made By: margo
Forum: her2group 07-13-2017, 07:14 PM
Replies: 11
Views: 11,392
Posted By margo
Re: What’s the next step once Perjeta/Herceptin and T-DM1 stop working?

I have been on Kadcyla (T-DM1) since February 3, 2016. It is beginning to fail. Is anyone enrolled in any of the Abemaciclib (LY2835219) trials?
...
Forum: her2group 08-10-2016, 08:43 AM
Replies: 13
Views: 6,361
Posted By margo
Re: MM-302: HERMIONE study

Thank you for posting this. I am elated to hear that Phase III recruitment has begun!
Forum: her2group 04-13-2015, 04:44 PM
Replies: 15
Views: 13,915
Posted By margo
Re: Just Herceptin and Perjeta - side effects

In April 2014, I was started on Herceptin, Perjeta and Taxotere. Taxotere was discontinued in late-September 2014 and I remain on H & P.

Last Friday, my ANCs (under 1000), WBCs, RBCs and...
Forum: her2group 12-11-2014, 01:29 PM
Replies: 19
Views: 2,990
Posted By margo
Re: Anyone have sir-spheres or similar?

This is an amazing medical advancement for liver mets. Have a successful simulation! My thoughts are with you today.
Forum: her2group 09-06-2012, 02:46 PM
Replies: 0
Views: 885
Posted By margo
Question Navelbine - Pain Pulse

After having breast cancer recur in my liver (3 tumors), I had Navelbine added to my chemo, because I thought it would be easier to tolerate.

My first round went smoothly, but it really hit...
Forum: her2group 06-29-2012, 08:55 AM
Replies: 7
Views: 2,965
Posted By margo
Re: Joint pain all over....osteoarthritis?? Herceptin side effect?

Lani,

Thank you for the comment about the "benzoyl alcohol preservative". I have been off-line for a while and missed the original comment. Next week, I will ask if the change is possible.
Forum: her2group 06-28-2012, 11:34 AM
Replies: 7
Views: 2,965
Posted By margo
Re: Joint pain all over....osteoarthritis?? Herceptin side effect?

After completing eight rounds of TCH, I remained on Herceptin for the last 7.5 years. The joint pain is about the same almost 8 years later. I think that Herceptin is definitely a culprit when...
Forum: her2group 06-03-2012, 01:23 PM
Replies: 18
Views: 3,332
Posted By margo
Re: Hair loss question with TCH

My hair began falling out during week three.

Best wishes to your sister during her treatment.
Forum: her2group 07-27-2009, 02:31 PM
Replies: 14
Views: 2,048
Posted By margo
Hello Rich, The otolaryngologist gave me a...

Hello Rich,

The otolaryngologist gave me a list of three. The second one I purchased was from Brookstone. It has three categories of sound: relax, sleep, and renew. It was called tranquil...
Forum: her2group 07-27-2009, 10:15 AM
Replies: 13
Views: 1,529
Posted By margo
Neo-adjuvant Chemo

I was given neo-adjuvant chemo in 2004 for 3.5 months, prior to my first surgery. No one I knew had ever heard of "neo". At that time, the internet was not much help for neoadjuvant therapy or my...
Forum: her2group 07-24-2009, 08:17 AM
Replies: 14
Views: 2,048
Posted By margo
Pulsatilie Tinnitus

I have the same problem in my right ear and the same sinus issues. My oncologist states that it is caused by my anemia. However, he sent me to a specialist for testing and a functional MRI (fMRI)....
Forum: her2group 05-08-2009, 01:00 PM
Replies: 3
Views: 1,721
Posted By margo
Neoadjuvant Chemotherapy Patients

Thank you for the additional information from the NIH site. Very helpful, indeed. My liver surgeon told me that the changes in my liver are due to the neoadjuvant chemo (NC), and that this is a...
Forum: her2group 05-05-2009, 07:07 AM
Replies: 3
Views: 1,721
Posted By margo
Question Neoadjuvant Chemotherapy Patients

For patients who have had neoadjuvant chemotherapy:

Has anyone developed Nonalcoholic steatohepatitis (NASH)? It is a disorder characterized by hepatic steatosis, and is known to progress to...
Forum: her2group 11-26-2007, 08:39 PM
Replies: 18
Views: 4,188
Posted By margo
Question Thumping in Ear / Pulsatile Tinnitus

I am being driven batty by pulsatile tinnitus. It started about 8 weeks ago. My ENT is sending me for an MRI posterior fossa (sp?) and an IAC MRA of my neck and brain late this week.

I take a...
Forum: her2group 08-01-2007, 09:54 AM
Replies: 4
Views: 1,492
Posted By margo
This happened to my hands. By the 2nd round, it...

This happened to my hands. By the 2nd round, it looked like I had a bad sunburn that was followed by peeling. It was quite uncomfortable. I recall that by the 6th or 7th round it started to reduce.
Forum: her2group 05-07-2007, 10:08 AM
Replies: 6
Views: 1,642
Posted By margo
I was having a problem with my magnesium level...

I was having a problem with my magnesium level during Herceptin treatment.

I started eating a square of dark chocolate (60%) every other day to raise my magnesium level, rather than take a...
Forum: Herceptin / Tykerb 04-14-2007, 06:10 AM
Replies: 38
Views: 5,796
Posted By margo
Last week, my Oncologist told me that he is...

Last week, my Oncologist told me that he is adding Tykerb to my weekly Herceptin treatment in mid-June. I will be in an "EAP without Herceptin Failure".

The information in this thread (drug...
Forum: her2group 03-09-2007, 10:23 AM
Replies: 3
Views: 1,200
Posted By margo
Wink My magnesium level is tested every week and it is...

My magnesium level is tested every week and it is normal. I will do some research regarding natural alternatives to raise my RBC level.

My oncologist/hematologist has stated that my bone...
Forum: her2group 03-09-2007, 07:11 AM
Replies: 3
Views: 1,200
Posted By margo
Aranesp

I had a similar problem with my insurance company and cancer center. I am 2 years post-TCH and continuing on Herceptin weekly. My bone marrow does not make enough RBC's (or WBC's for that matter). I...
Forum: her2group 10-30-2006, 11:10 AM
Replies: 17
Views: 2,490
Posted By margo
I was told that my Port could not be used for MRI...

I was told that my Port could not be used for MRI and CT Scans, because a power-pump is utilized for the infusion process. The increased pressure, volume, and type of contrast used can damage the...
Forum: her2group 10-09-2006, 10:07 AM
Replies: 37
Views: 3,335
Posted By margo
You have tremendous strength and courage. You...

You have tremendous strength and courage. You are an inspiration to me. I am praying for you.
Forum: her2group 09-17-2006, 07:46 AM
Replies: 11
Views: 1,756
Posted By margo
My imaging doctor told me that I had a small...

My imaging doctor told me that I had a small cancer, but that my cell type could be problem. (She had looked at two of the core biopsies in her lab, before giving me the big news.)

During the...
Forum: her2group 08-17-2006, 10:04 AM
Replies: 6
Views: 1,243
Posted By margo
I broke a bone in my foot, while walking across...

I broke a bone in my foot, while walking across the street in rubber soled shoes (no heel)!

My bone density came back as severe osteoporosis of the spine, and moderate else where. I was started...
Forum: her2group 07-29-2006, 08:25 PM
Replies: 2
Views: 1,099
Posted By margo
PET Scans - False Positives

Thank you for the information about the warm blanket. I will pass it on to the Nuclear Medicine department. I was wrapped in a blanket, though it was not warmed.

The day before my test I was...
Forum: her2group 07-29-2006, 04:12 PM
Replies: 2
Views: 1,099
Posted By margo
Question PET Scan - False Postives

My PET/CT scan from last week shows that my liver looks great. I had an RFA, which has been successful. My liver SUV score has dropped to zero over time.

However, the SUV at my lumpectomy...
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