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Forum: her2group 07-20-2012, 01:27 PM
Replies: 28
Views: 6,616
Posted By SuePen
Re: Invasive Lobular Cancer HER2+ve - anyone else?

Yes, Suzan - about 0.1% of bc patients I believe - we're very special. Good to see you doing well after 7 years!!!
Forum: her2group 07-18-2012, 12:22 AM
Replies: 28
Views: 6,616
Posted By SuePen
Re: Invasive Lobular Cancer HER2+ve - anyone else?

Hi Shero - I'm OK. Still scared about the whole HER2 thing. I mentioned above about asking for an MRI - didn't get it that year and was diagnosed with a new cancer (not lobular) in the other breast a...
Forum: her2group 07-17-2010, 05:22 AM
Replies: 23
Views: 2,995
Posted By SuePen
Re: now they are moving in on how/why of weight gain during chemotherapy 4 breast can

I had TCH and have lost 22lbs. I'm now 18 weeks post chemo. I thought maybe it was because I stopped taking HRT when diagnosed.
Forum: her2group 01-08-2010, 12:08 AM
Replies: 28
Views: 6,616
Posted By SuePen
Re: Invasive Lobular Cancer HER2+ve - anyone else?

My LVI was noted as absent. Went to the GP today to ask for further clarification of the report and he said LVI is indicative of possibility of local recurrence.

I actually freaked out a bit...
Forum: her2group 01-06-2010, 07:21 PM
Replies: 28
Views: 6,616
Posted By SuePen
Re: Invasive Lobular Cancer HER2+ve - anyone else?

Mine was grade 3 made up of Nuclear grade 3, tubule formation 3 and Mitoses 3 which add up to 9 - ie grade 3. Just means it's very agressive. That's the highest grade they give.

I also had no...
Forum: her2group 01-06-2010, 05:35 PM
Replies: 28
Views: 6,616
Posted By SuePen
Re: Invasive Lobular Cancer HER2+ve - anyone else?

Yes it did - quite clearly. I'm now researching the nuclear grade etc.
Forum: her2group 01-06-2010, 05:29 PM
Replies: 28
Views: 6,616
Posted By SuePen
Re: Invasive Lobular Cancer HER2+ve - anyone else?

I got a copy of my path report this morning when I popped into my GP to see how his receptionist is. She just had a breast off as a result of going for a checkup because of my diagnosis. He said he...
Forum: her2group 01-06-2010, 02:49 PM
Replies: 28
Views: 6,616
Posted By SuePen
Re: Invasive Lobular Cancer HER2+ve - anyone else?

I found it:

http://jco.ascopubs.org/cgi/content/full/26/35/5823

This is the best definition I can find of pleomorphic:

In recent years, a new variant of lobular carcinoma, known as...
Forum: her2group 01-06-2010, 02:15 PM
Replies: 28
Views: 6,616
Posted By SuePen
Re: Invasive Lobular Cancer HER2+ve - anyone else?

The +ve is just an abbreviation for positive. I'm not 100% sure what pelopmorphic is, I'm still researching it. I think it's basically agressive. If I find out more I'll post it. I'm looking for an...
Forum: her2group 01-06-2010, 12:41 AM
Replies: 28
Views: 6,616
Posted By SuePen
Re: Invasive Lobular Cancer HER2+ve - anyone else?

Asked the onc about the lobular HER2+VE pleomorphic thing today. He will request a copy of my path report for me. He said that most HER2+ve lobular cancers are pleomorphic. It does put us in the rare...
Forum: her2group 01-04-2010, 06:15 PM
Replies: 28
Views: 6,616
Posted By SuePen
Re: Invasive Lobular Cancer HER2+ve - anyone else?

Thanks Jackie,

I did do that already. I'm actually worried about my pathology report and will ask the oncologist tomorrow about whether we should get a second opinion. Also going to ask if it...
Forum: her2group 01-04-2010, 04:03 PM
Replies: 28
Views: 6,616
Posted By SuePen
Invasive Lobular Cancer HER2+ve - anyone else?

I am triple positive - ER+ 90% PR+ 95% HER2+++ ILC. Being in a minority, I wondered if anyone else has lobular cancer that is HER2+. I only had 2 replies on the US breast cancer forum, so thought I...
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