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Forum: her2group

03-02-2006, 11:21 AM

Replies: 5

Herceptin and Heartburn

Views: 1,302

Posted By Joni

Thanks Karen and newgg, I had a nice big green...

Thanks Karen and newgg,
I had a nice big green salad with lots of ruffage and thought that maybe did it...then started thinking about the drugs Herceptin and Taxotere. Could have been either I...

Forum: her2group

03-01-2006, 09:54 PM

Replies: 5

Herceptin and Heartburn

Views: 1,302

Posted By Joni

Herceptin and Heartburn

Hi All,
Having some heartburn (rarely get) tonight. Am in my 5th treatment of Herceptin along with Taxotere. Receiving both weekly for 3 weeks and the 4th week off. Is this something that I...

Forum: her2group

02-01-2006, 07:14 PM

Replies: 16

Mets to Spine (C1 & 2) Voice Affected

Views: 2,689

Posted By Joni

Cheryl, Ata Girl...U of A joni

Cheryl,
Ata Girl...U of A
joni

Forum: her2group

01-31-2006, 09:22 AM

Replies: 16

Mets to Spine (C1 & 2) Voice Affected

Views: 2,689

Posted By Joni

Thank you Guest, I am going to see the...

Thank you Guest,
I am going to see the neurosurgeon tomorrow morning and I hope to get a good interpretation of the MRI that my onc requested from the neu. I am printing out your responses and will...

Forum: her2group

01-31-2006, 09:20 AM

Replies: 16

Mets to Spine (C1 & 2) Voice Affected

Views: 2,689

Posted By Joni

Hi Cheryl, I too am a so CA girl. Born in...

Hi Cheryl, I too am a so CA girl. Born in Laguna and raised in Costa Mesa ~ CMHS grad of 1964. Small world. Where did you go to school in CA?
My Best,
joni

Forum: her2group

01-30-2006, 08:15 PM

Replies: 16

Mets to Spine (C1 & 2) Voice Affected

Views: 2,689

Posted By Joni

Hi Jan, I don't know what to call the place...

Hi Jan,
I don't know what to call the place where I have the ca in my spine other than C1 & C2. I need an anatomy book badly!! I have never heard of peacock radiation either. This is my first met...

Forum: her2group

01-30-2006, 08:04 PM

Replies: 16

Mets to Spine (C1 & 2) Voice Affected

Views: 2,689

Posted By Joni

Thank you Cheryl, Yes, UMC is where I went for...

Thank you Cheryl,
Yes, UMC is where I went for my original care in 1997. Ins has changed so unable to get coverage there, but my current doc use to be there and he does confir with my orig doc when...

Forum: her2group

01-30-2006, 07:50 PM

Replies: 16

Mets to Spine (C1 & 2) Voice Affected

Views: 2,689

Posted By Joni

Game plan, with ammunition ~ unregistered guest ...

Game plan, with ammunition ~ unregistered guest
You are very well informed and speak as though you may be a doctor. I appreciate your thorough response and will be prepared to ask questions and see...

Forum: her2group

01-30-2006, 07:01 PM

Replies: 16

Mets to Spine (C1 & 2) Voice Affected

Views: 2,689

Posted By Joni

My Voice Troubles

Wow, you are all so wonderful to reply. I am just getting back to my computer so decided to print out your responses and read up while I sit comfortably. I will get back with you after. I will say...

Forum: her2group

01-27-2006, 08:11 AM

Replies: 16

Mets to Spine (C1 & 2) Voice Affected

Views: 2,689

Posted By Joni

Thank you Al, I called in the request to his...

Thank you Al,
I called in the request to his office who set up the appointment. I too think it is too long to wait, so will bring it up today with my onc. He is great in so many ways, and the...

Forum: her2group

01-26-2006, 11:16 PM

Replies: 16

Mets to Spine (C1 & 2) Voice Affected

Views: 2,689

Posted By Joni

Mets to Spine (C1 & 2) Voice Affected

Hi Group,
I am experiencing mets in my upper spine (C1 & 2), lung and lymphs in my chest. Had Radiation last summer, but no change in my voice until the past couple of months. It has become worse....

Forum: her2group

12-30-2005, 10:06 AM

Replies: 13

Outraged at off the label cost of Herceptin

Views: 1,990

Posted By Joni

Hi Robin, The question remains, would I get it...

Hi Robin,
The question remains, would I get it alone or must it always accompany a chemo drug?
Thanks, for such a qucik reply,
joni

Forum: her2group

12-30-2005, 09:55 AM

Replies: 13

Outraged at off the label cost of Herceptin

Views: 1,990

Posted By Joni

Well Lolly, that is a good question. I assumed...

Well Lolly, that is a good question. I assumed that it had not been used successfully without chemo of some sort. I have been talking to a nurse at the University of Arizona Medical Center (where I...

Forum: her2group

12-29-2005, 06:40 PM

Replies: 13

Outraged at off the label cost of Herceptin

Views: 1,990

Posted By Joni

Thank you Robin

...I am new to the Support Group and still learning how to use it. I appreciate your quick response. My re-occurence is what you would call late I guess. I had a mestectomy in 97 along with...

Forum: her2group

12-29-2005, 06:25 PM

Replies: 13

Outraged at off the label cost of Herceptin

Views: 1,990

Posted By Joni

Herceptin Costs

I don't understand what you mean by "off the label" cost. Could you please elaborate. I have the HER-2 gene and am most likely going to get Herceptin. I'm hoping Pacificare will pay for it when I...

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