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Forum: her2group 06-01-2006, 07:32 AM
Replies: 16
Views: 2,083
Posted By Beth
Thanks everyone for your response. My onc said...

Thanks everyone for your response. My onc said we could adjust the dosage after any side effects are noticed. I agree with you ladies that how about starting smaller??? Also I was concerned about...
Forum: her2group 05-31-2006, 12:01 PM
Replies: 16
Views: 2,083
Posted By Beth
Red face More questions

Hi LuAnn and others,

My doctor just prescribed 3500 mg for 1500 am and 2000 pm. I guess this was based on my weight. 185 lbs and 5'6. Does this sound like a high dose? I start taking them...
Forum: her2group 03-14-2006, 11:01 AM
Replies: 2
Views: 1,244
Posted By Beth
Wink Hi, I have not had surgery on my breast as I...

Hi,

I have not had surgery on my breast as I was first dx 2003 stage IV w/mets to
the liver. I have had a total remission, recurrance, and right now am on chemo.
The breast lump is 3 cm right...
Forum: her2group 03-08-2006, 04:25 PM
Replies: 6
Views: 1,388
Posted By Beth
Smile Once each 3 weeks and 1 week off. I have only...

Once each 3 weeks and 1 week off. I have only had 3 treatments and
I just had a scan for liver, lung, bone mets.
50% shrinkage in the liver (2 lesions) , lung nodes stable and not measurable. ...
Forum: her2group 03-05-2006, 08:09 AM
Replies: 6
Views: 1,388
Posted By Beth
Wink Hi Pattie, I am doing FEC which is...

Hi Pattie,

I am doing FEC which is 5fu/epirubicin/cytoxin. After 3 treatments I had 40 to 50% shrinkage. I lost my hair in 2 weeks after the first treatment and I sleep
alot for 6 days after...
Forum: her2group 01-14-2006, 06:53 PM
Replies: 8
Views: 1,179
Posted By Beth
Wink Navelbine was the easiest chemo I have taken and...

Navelbine was the easiest chemo I have taken and I've been on 4 types. My hair grew and I was really happy about that. However, it didn't work for me.

Good luck,

Beth
Forum: her2group 12-28-2005, 10:55 AM
Replies: 6
Views: 1,384
Posted By Beth
Trial info

www.jamesline.com (http://www.jamesline.com) Ask about the Phase I Active Immunotherapy with Peptide Vaccines. This vaccine is made up of a component of HER-2 and an adjuvant which is a substance...
Forum: her2group 12-24-2005, 08:33 AM
Replies: 6
Views: 1,384
Posted By Beth
Post Hi all, This was NOT the PTEN vaccine. I...

Hi all,

This was NOT the PTEN vaccine. I was incorrect in my posting before, sorry.
I jumped the gun after talking to a nurse before my onc gave me the correct
info. It is a HER2 targeted...
Forum: her2group 12-23-2005, 09:47 AM
Replies: 6
Views: 1,384
Posted By Beth
Talking HER2 phase I vacine trial results - GOOD!

After 71 days on a vacine trial for HER2 I produced antibodies that knocked
out 5 lung mets and stablized the growth in the breast. However, I did have
3 cm growth in the liver (which is a little...
Forum: her2group 11-22-2005, 11:26 AM
Replies: 13
Views: 1,964
Posted By Beth
Smile Lisa, I was dx in 12/03 at age 39 and our...

Lisa,

I was dx in 12/03 at age 39 and our cases are very similar. I still have a
breast lump along with liver mets. I have failed 3 treatments in combo with herceptin and am currently on a...
Forum: her2group 10-02-2005, 11:53 AM
Replies: 8
Views: 1,191
Posted By Beth
It sounds like you have whipped this thing! I...

It sounds like you have whipped this thing! I really do understand the fear thing. But, I am almost 2 years into this and I feel really good and tell my onc I swear I don't have cancer. My friend...
Forum: her2group 10-02-2005, 08:14 AM
Replies: 8
Views: 1,191
Posted By Beth
I know it's hard. I am sorry you are going thru...

I know it's hard. I am sorry you are going thru this too. My best friend has liver mets also. She was dx early stage had masectomy, chemo (A/C) and rads.
She said the way she knew she had liver...
Forum: her2group 10-02-2005, 08:00 AM
Replies: 2
Views: 1,029
Posted By Beth
Hi Blue, Thanks for responding. I read you did...

Hi Blue,
Thanks for responding. I read you did 2 treatments of doxil. How did you
feel on it? If I don't pass the requirements for a clinical trial I am going for
or if I fail on it the doctor...
Forum: her2group 10-01-2005, 01:43 PM
Replies: 8
Views: 1,191
Posted By Beth
Yes I have been on Herceptin when I get the...

Yes I have been on Herceptin when I get the feeling of fullness. Are you early stage and looking for mets symptoms?

Beth
Forum: her2group 10-01-2005, 07:43 AM
Replies: 2
Views: 1,029
Posted By Beth
Red face To anyone who has failed chemo

Hi Ladies,

I would like to hear stories from anyone who has failed chemo several times then went on to find the "magic bullet". What treatment worked best for you? I need some inspiration.
...
Forum: her2group 09-30-2005, 03:29 PM
Replies: 8
Views: 1,191
Posted By Beth
Lightbulb I have liver mets. I have 2 spots. When they...

I have liver mets. I have 2 spots. When they are active and show on ct scan I feel a fullness under my right rib cage. It is somewhat uncomfortable. I also have felt a throbbing like a baby...
Forum: her2group 09-30-2005, 10:53 AM
Replies: 9
Views: 1,525
Posted By Beth
Hi Martha, I was dx 12/03 have been on...

Hi Martha,

I was dx 12/03 have been on Taxol/Herceptin, Taxol/Carbo/Herceptin,
and most recently Navelbine/Herceptin. I had 12 weeks of the Navelbine
and my CT scan showed 1 cm progression in a...
Forum: her2group 09-28-2005, 10:42 AM
Replies: 8
Views: 1,383
Posted By Beth
failed herceptin also

Dx stage 4 I had total remission with Taxol/Herceptin. Recurred and went on Taxol/Carbo/Herceptin and had progression. Just had progression on
Navelbin/Herceptin. I am going to be tested next...
Showing results 1 to 18 of 18

 
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