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Posts Made By:
ariana
Forum:
her2group
01-22-2020, 04:29 PM
Replies:
72
Whack-a-mole next...
Views:
42,760
Posted By
ariana
Re: Whack-a-mole next...
Lucy, I was wondering the same thing -----Flori, hope you are doing well.
Forum:
her2group
07-28-2019, 03:56 PM
Replies:
7
Why Capecitabine and Exemestane?
Views:
2,684
Posted By
ariana
Re: Why Capecitabine and Exemestane?
No idea, I am on this along with NERLYNX . Of course I am turning 65 and medicare won't cover it. SO I AM WAITING FOR A CHANGE IN MY CHEMO PROGRAM...
Waiting for 2 weeks to hear and will be out...
Forum:
her2group
06-17-2019, 05:36 PM
Replies:
5
Happy birthday in heaven today Joe!
Views:
3,264
Posted By
ariana
Re: Happy birthday in heaven today Joe!
I will second that, A special toast to a very special lady. This board got me
through a lot.
Missing quite a few friends Amy/MTNGRL , KDR/ karen Who helped get me back
on track when the...
Forum:
her2group
05-03-2019, 11:37 AM
Replies:
1
Where do you get treatment ideas?
Views:
2,049
Posted By
ariana
Re: Where do you get treatment ideas?
Sometimes a hospital is linked to other sources like John Hopkins for example.
I am from Pa./Pittsburgh area with Allegheny Health Network who works with
John Hopkins for up dated information. But...
Forum:
her2group
04-18-2019, 12:55 AM
Replies:
124
Treatment after Kadcyla?
Views:
39,563
Posted By
ariana
Re: Treatment after Kadcyla?
Very sorry for your loss. I have been on this board for a number of years, and I
am always amazed at the kindness and support from many who are going through
this hard battle,
Love and prayers...
Forum:
her2group
12-09-2018, 03:39 PM
Replies:
17
Brain met ??? Anyone have advice
Views:
6,102
Posted By
ariana
Re: Brain met ??? Anyone have advice
Benk , HAVE a appointment Tues.Oct 23 an MRI that just didnt feel right to the Onc.
Waited 6 weeks for repeat.. I guess I am next in line. They thought mini strokes
maybe at best. Just couldn't...
Forum:
Herceptin / Tykerb
08-26-2018, 01:05 PM
Replies:
689
Please post your two cents on Herceptin "side effects" real or perceived!
Views:
304,353
Posted By
ariana
Re: Please post your two cents on Herceptin "side effects" real or perceived!
Just one question. Do you drink enough water??? You can use a clear plastic little cup ,
thats used in the bathroom dispenser holders to check to see how dark it is.
If its real dark start...
Forum:
her2group
07-17-2018, 01:01 AM
Replies:
0
Clinical trial results of tucatinib with T-DM1 shows promise in treating HER2+ breast
Views:
4,998
Posted By
ariana
Clinical trial results of tucatinib with T-DM1 shows promise in treating HER2+ breast
Clinical trial results of tucatinib with T-DM1 shows promise in treating HER2+ breast cancer.
Phase 1b clinical trial results published in*JAMA Oncology*show promise for the combination of...
Forum:
Breast Cancer Newsfeed
03-27-2018, 07:11 AM
Replies:
2
Cancer: How a novel gel could halt its return
Views:
6,557
Posted By
ariana
Re: Cancer: How a novel gel could halt its return
Please let it come out for human use .
Forum:
her2group
03-07-2018, 10:32 AM
Replies:
4
Whoops!
Views:
5,916
Posted By
ariana
Re: Whoops!
So sorry to hear this. Hope all goes well with your trip.
Forum:
her2group
02-19-2018, 11:30 PM
Replies:
16
When to consider ending treatment?
Views:
8,518
Posted By
ariana
Re: When to consider ending treatment?
Well look what I found by accident.
https://www.umm.edu/health/medical/altmed/supplement/vitamin-h-biotin
Small snip of article
Vitamin H (Biotin)
Overview
Forum:
her2group
02-19-2018, 08:41 PM
Replies:
16
When to consider ending treatment?
Views:
8,518
Posted By
ariana
Re: When to consider ending treatment?
Curios about Vitamin H. What is it and what is it used for. Anti allergy Med ??
Thanks.
Forum:
her2group
02-02-2018, 03:19 AM
Replies:
6
Elevated liver enzymes
Views:
7,355
Posted By
ariana
Re: Elevated liver enzymes
Albumin 3.8 g/dL 3.4 - 4.8 g/dL
Total Bilirubin 0.9 mg/dL 0.2 - 1.2 mg/dL
Alkaline Phosphatase 165 U/L 35 - 140 U/L H
AST 55 U/L 14 - 36 U/L H
ALT 34 U/L 9 - 52 U/L
Thats from...
Forum:
her2group
01-27-2018, 05:19 AM
Replies:
4
Michka has earned her wings (back in 2017)
Views:
5,774
Posted By
ariana
Re: Michka has earned her wings (back in 2017)
Just E mailed him. So sad. Last fall I went to a Susan G Thing about up dates on
what the foundation was funding here in Pittsburgh. IT SEEMS that the race for the
cure turned into a FIST OF...
Forum:
her2group
01-17-2018, 03:28 PM
Replies:
40
Amy? (Mtngrl)
Views:
23,533
Posted By
ariana
Re: Amy? (Mtngrl)
You will be missed on this board. Thank you for all the messages and posts that
helped us out a lot.
SINCE being a member of this board for awhile---would like to mention those who I have come...
Forum:
her2group
01-16-2018, 02:40 PM
Replies:
40
Amy? (Mtngrl)
Views:
23,533
Posted By
ariana
Re: Amy? (Mtngrl)
So sorry to hear this news. Amy thank you for all you have done for us,
on this board. TEARS
Forum:
her2group
01-11-2018, 07:34 AM
Replies:
16
Recurrence in Neck Lymph Nodes?
Views:
7,018
Posted By
ariana
Re: Recurrence in Neck Lymph Nodes?
YES me ---About 8 month after everything was done, reg. check ups, I found
several tiny lumps that only I could feel. Doc. had problems with feeling it.
Ordered CT and found 6 tiny tiny dots...
Forum:
her2group
12-11-2017, 03:36 PM
Replies:
7
New hope
Views:
5,683
Posted By
ariana
Re: New hope
THANKS jra, The Doc. was just at symposium discussing ALL THE NEW THINGS for Hr 2
breast cancer. It has yet to be FDA approved, but it will come. WE are all hopeful
at getting other choices...
Forum:
her2group
12-11-2017, 10:38 AM
Replies:
7
New hope
Views:
5,683
Posted By
ariana
Re: New hope
So glad to hear of new things coming out, as it looks like my Kadcyla may be coming to
and end soon, due to high liver counts. I am on the treatment by treatment with this.
Glad to see this...
Forum:
her2group
09-07-2017, 04:01 AM
Replies:
6
Kadcyla rash
Views:
5,161
Posted By
ariana
Re: Kadcyla rash
Some cycles we are tired, others its nausea or flu like symptoms. So far no side effect is consistent!
I will be tired on one dose--Flu symptoms another. Along with several others.
BUT never at...
Forum:
her2group
09-05-2017, 05:57 PM
Replies:
6
Kadcyla rash
Views:
5,161
Posted By
ariana
Re: Kadcyla rash
Ok, Don't want to miss inform or worry anyone. I was on Herception for 1 yr after
My orginal chemo . NO issues. Was on Arimidex for a year, and noticed lymphnode
lumps in my neck. Very small....
Forum:
her2group
08-18-2017, 06:37 AM
Replies:
3
"Don't Quit! Keep Going, Keep Going!"
Views:
5,988
Posted By
ariana
Re: "Don't Quit! Keep Going, Keep Going!"
Much needed post. For me, It's the endless trips to Forbes. Every 21 days, which can be 2 x a month. NOW requires blood work ahead of time. Meeting with the Onc., which
can be up to an hour...
Forum:
her2group
07-03-2017, 07:37 PM
Replies:
9
Really Scared - Pet Scan Ordered
Views:
5,835
Posted By
ariana
Re: Really Scared - Pet Scan Ordered
MY THOUGHTS ONLY----It seems chemo stuff of any kind , microwaves the muscle,
making it easy to injure and tear things.So I still need to exercise but have to be careful.
I am dreading the next...
Forum:
her2group
07-03-2017, 07:22 PM
Replies:
9
Really Scared - Pet Scan Ordered
Views:
5,835
Posted By
ariana
Re: Really Scared - Pet Scan Ordered
I did a lot of walking to keep my heart healthy. I even lost weight and kept it off over the holidays. Suddenly I had problems crossing my leg or lifting my leg to get in car. Went to an orthopedic...
Forum:
Breast Cancer Newsfeed
03-21-2017, 04:24 AM
Replies:
1
Triple-negative breast cancer: Nanodelivery of new drug shows promise
Views:
4,146
Posted By
ariana
Re: Triple-negative breast cancer: Nanodelivery of new drug shows promise
WONDERFUL NEWS !!! I have lost so many friends on other message boards with this
disease. Now one of our local news lady , just announced she has it too.
Showing results 1 to 25 of 92
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