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Posts Made By:
Debbie L.
Forum:
her2group
12-21-2017, 09:25 PM
Replies:
25
Senior Member Check-In!
Views:
12,314
Posted By
Debbie L.
Re: Senior Member Check-In!
Great thread, thanks for starting it. I'm nearly (gasp!) 17 years post diagnosis with stage 3 ERPR- HER2+, enrolled in the initial NSAPBP trial for adjuvant Herceptin but lost the toss (no Herceptin...
Forum:
her2group
09-20-2017, 12:46 PM
Replies:
0
NCI/Army of Women recruiting HER2+ brain mets recurrence study
Views:
3,697
Posted By
Debbie L.
NCI/Army of Women recruiting HER2+ brain mets recurrence study
http://mailchi.mp/f082cd890a17/brain-metastases-in-her2-positive-breast-cancer?e=ed3f986e6e
Intro (more details in link above): "Researchers at the National Cancer Institute (NCI) need women and...
Forum:
her2group
01-18-2017, 04:47 PM
Replies:
36
Add me to the 10 Years Out Club!
Views:
21,896
Posted By
Debbie L.
Re: Add me to the 10 Years Out Club!
Congratulations, Caya! I didn't know there was a club, so I forgot to join ;-). I'm now nearly 16 years out, much to my happy surprise. In 2001, Herceptin was still in adjuvant trials, and I...
Forum:
her2group
01-06-2017, 09:37 PM
Replies:
0
Breast forms -- grass roots organization
Views:
3,470
Posted By
Debbie L.
Breast forms -- grass roots organization
Hi all. Totally serendipitously, I came across this organization that knits (or crochets) custom (and free) breast forms. I thought some of you might be interested, either as users or creators:
...
Forum:
her2group
12-13-2016, 09:31 AM
Replies:
15
Effectiveness of Estrogen blockers
Views:
5,496
Posted By
Debbie L.
Re: Effectiveness of Estrogen blockers
Just off the top of my head, my recollection is that the trials of endocrine treatments show a relative reduction in recurrences in the range of 30-40%. The higher one's risk is, the more the...
Forum:
Clinical Trials
12-11-2016, 01:49 AM
Replies:
5
Update to Tucatinib/ONT380 phase 2 trial
Views:
15,505
Posted By
Debbie L.
Re: Update to Tucatinib/ONT380 phase 2 trial
Me too, Pam (following with interest). There was a lot of HER2 at SABCS this year. Including, it seemed to me, more focus on the subgroups within (triple positive, and others that sort out...
Forum:
Clinical Trials
12-08-2016, 12:53 PM
Replies:
5
Update to Tucatinib/ONT380 phase 2 trial
Views:
15,505
Posted By
Debbie L.
Update to Tucatinib/ONT380 phase 2 trial
SAN ANTONIO, Texas, Dec. 07, 2016 (GLOBE NEWSWIRE) -- Cascadian Therapeutics, Inc. (NASDAQ:CASC), a clinical-stage biopharmaceutical company, today announced that following a recent meeting with the...
Forum:
her2group
09-19-2016, 10:56 AM
Replies:
30
Diagnosed with 2nd Primary
Views:
10,525
Posted By
Debbie L.
Re: Diagnosed with 2nd Primary
I'm late seeing this, but wanted to send empathy and lots of good thoughts to you, Paula. If only we knew how to prevent breast cancer (and all cancer) -- I agree with you! Please keep us posted as...
Forum:
her2group
08-10-2016, 06:22 AM
Replies:
0
Researchers seek patient input on study design:
Views:
3,721
Posted By
Debbie L.
Researchers seek patient input on study design:
The PI's of this proposed study are including advocates on the planning team, and patient input -- from the very beginning. They are asking several important unanswered questions, so the results...
Forum:
her2group
05-03-2016, 11:26 AM
Replies:
6
CA27.29 blood test
Views:
4,660
Posted By
Debbie L.
Re: CA27.29 blood test
Oh, Cathy -- I think cancer turns us ALL into worry warts, at least some of the time. It's normal, don't worry (smile). And thank you for the thank you, I'm glad the info helped.
Debbie
Forum:
her2group
05-03-2016, 07:26 AM
Replies:
6
CA27.29 blood test
Views:
4,660
Posted By
Debbie L.
Re: CA27.29 blood test
>>I guess I was hoping for no trace of cancer in my system.
Cathy, there may well be no traces of cancer in your system, but (alas) we don't know how to check for that. The tumor markers...
Forum:
her2group
04-19-2016, 07:07 AM
Replies:
5
Megace??
Views:
3,644
Posted By
Debbie L.
Re: Megace??
I've never heard of Megace for early breast cancer, either. I've only heard of it for advanced HR+ disease that is resistant to all other endocrine treatment, often when a person can no longer...
Forum:
her2group
03-10-2016, 08:29 AM
Replies:
9
"significantly imroved" 2 yr disease ree survival if 1 yr of neratinib given after
Views:
9,585
Posted By
Debbie L.
Re: "significantly imroved" 2 yr disease ree survival if 1 yr of neratinib given afte
Thanks for posting this, Lani.
So, what do we think of the information? I've heard that neratinib is a tough one, mostly d/t the diarrhea. Do you think that trying to manage the side effects...
Forum:
her2group
03-03-2016, 12:22 PM
Replies:
4
Anyone on I SPY-2 Trial?
Views:
4,980
Posted By
Debbie L.
Re: Anyone on I SPY-2 Trial?
I had hoped someone more knowledgeable would give you an answer here. I do know that the I-SPY2 trial is what is called an "adaptive design" trial, so the drugs used are not only specific to the...
Forum:
her2group
02-21-2016, 10:21 AM
Replies:
9
ketogenic diet and blood glucose
Views:
5,102
Posted By
Debbie L.
Re: ketogenic diet and blood glucose
This is interesting. And dense! However, if I'm reading this study (http://ajcn.nutrition.org/content/95/2/506.short) correctly (click on free full text for the PDF), the percent of the population...
Forum:
her2group
02-03-2016, 09:23 AM
Replies:
12
Small lumps found between neck and shoulders...
Views:
5,803
Posted By
Debbie L.
Re: Small lumps found between neck and shoulders...
Diane, reading your post brought back to me all the times I got worried over similar things. It's normal to be hypervigilant and anxious in these early years after diagnosis -- but that doesn't make...
Forum:
her2group
01-15-2016, 05:32 PM
Replies:
3
Sticky:
Advocacy education and participation opportunities
Views:
39,119
Posted By
Debbie L.
Re: Advocacy education and participation opportunities
Thanks for chiming in, Agness.
This essay (http://www.huffingtonpost.com/fran-visco/put-advocates-in-charge-o_b_8983528.html) from NBCC's Fran Visco appeared today in the Huffington Post. It's...
Forum:
her2group
01-09-2016, 10:03 AM
Replies:
3
Sticky:
Advocacy education and participation opportunities
Views:
39,119
Posted By
Debbie L.
Advocacy education and participation opportunities
I'm starting this new thread for us to post programs and opportunities that we are aware of, for interested patients to educate themselves and participate in patient advocacy. If possible, include...
Forum:
her2group
01-09-2016, 09:47 AM
Replies:
9
Puzzled??
Views:
5,894
Posted By
Debbie L.
Re: Puzzled??
I agree that trial eligibility both for vaccines and in general can be confusing. There are many reasons for this. For example, usually the early trials (stage I and sometimes II) are designed more...
Forum:
her2group
01-02-2016, 09:15 AM
Replies:
8
Decadron-has anyone had this removed from chemo treatments?
Views:
4,788
Posted By
Debbie L.
Re: Decadron-has anyone had this removed from chemo treatments?
I think the Decadron is given for 2 separate reasons.
With taxanes, it's part of the premeds, to prevent an allergic reaction (so that part is less negotiable). It's actually one of the main...
Forum:
her2group
12-26-2015, 09:39 AM
Replies:
12
Bracing Myself For A Swift Kick Into Menopause
Views:
5,237
Posted By
Debbie L.
Re: Bracing Myself For A Swift Kick Into Menopause
Europa, it's like almost everything else about cancer treatment -- each person reacts differently. For you, if you have side effects, it will be tricky to sort out which ones are are caused by the...
Forum:
her2group
11-16-2015, 08:55 AM
Replies:
11
Sentinel Node Biopsy and Lymphedema Risk
Views:
5,639
Posted By
Debbie L.
Re: Sentinel Node Biopsy and Lymphedema Risk
I think it would be more accurate to say that after SLNB your risk of lymphedema is lower. Even to say it's "very low". But probably not zero.
If you google "sentinel lymph node biopsy...
Forum:
her2group
11-10-2015, 07:55 PM
Replies:
15
Did anyone NOT lose hair OR nails on TCH protocol? All replies appreciated!
Views:
6,171
Posted By
Debbie L.
Re: Did anyone NOT lose hair OR nails on TCH protocol? All replies appreciated!
SA and others, I started a new thread to talk about adjuvant Perjeta/pertuzumab.
Debbie L.
Forum:
her2group
11-10-2015, 07:54 PM
Replies:
4
Adjuvant Perjeta/pertuzumab
Views:
5,014
Posted By
Debbie L.
Adjuvant Perjeta/pertuzumab
This discussion started over on SpiritualAbundance's TCH/hair&nail thread but I think it deserves its own thread.
I saw people posting that she should check into Perjeta. The last I had paid...
Forum:
her2group
11-08-2015, 10:02 AM
Replies:
6
How long did it take for WBC to be normal?
Views:
3,775
Posted By
Debbie L.
Re: How long did it take for WBC to be normal?
Me too, always low (usually in the 3K range). However, I have not been sick more than normal -- rarely more than a few mild colds a year. So I figure my immune system must still be capable of...
Showing results 1 to 25 of 463
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