HER2 Support Group Forums
>
Search Forums
Search Results
User Name
Remember Me?
Password
Register
Gallery
FAQ
Members List
Calendar
Today's Posts
Search
Search Forums
Show Threads
Show Posts
Advanced Search
Search Gallery
Advanced Search
Go to Page...
Showing results 1 to 13 of 13
Search took
0.00
seconds.
Search:
Posts Made By:
jkdowl
Forum:
her2group
09-14-2014, 11:24 AM
Replies:
2
Is it time to switch from Herceptin? So confused
Views:
1,699
Posted By
jkdowl
Re: Is it time to switch from Herceptin? So confused
Thanks for the reply, my oncologist spoke to colleagues, they felt with tumor out with mastectomy, I could stay on Herceptin bc still controlling bones and rest of body. They will be watching...
Forum:
her2group
09-12-2014, 04:45 AM
Replies:
2
Is it time to switch from Herceptin? So confused
Views:
1,699
Posted By
jkdowl
Is it time to switch from Herceptin? So confused
I was dx stage 4 to bones in 2010, have been stable since then. I never had a mastectomy until 2 months ago, the left breast started increasing in size. After a biopsy that confirmed IDC ER PR neg,...
Forum:
her2group
06-18-2014, 03:29 AM
Replies:
1
How long is it safe to stay on Zometa with bone mets
Views:
1,468
Posted By
jkdowl
How long is it safe to stay on Zometa with bone mets
In Feb 2015, I will be on Zometa for 4 years. I have seen Friends develop femoral stress fx after being on Zometa for a long time (7 years). I have spaced the dosing out to every 12 weeks now, but...
Forum:
her2group
06-27-2013, 09:36 PM
Replies:
12
Ablation of Liver Met
Views:
1,834
Posted By
jkdowl
Re: Ablation of Liver Met
Hi Karen,
Never had surgery either. I had two tumors of left breast and multiple positive lymph nodes. Mets to spine. After Taxol, herceptin and zometa for 9 months, Mammograms show some...
Forum:
her2group
09-18-2012, 03:02 AM
Replies:
389
Calling all stage iv sisters
Views:
167,985
Posted By
jkdowl
Re: Calling all stage iv sisters
Dx 12/10 stage4 to spine Er/Pr neg her2pos Ned since 10/11
Forum:
her2group
09-18-2012, 02:49 AM
Replies:
25
Is there benefit in surgery for stage iv's
Views:
4,294
Posted By
jkdowl
Re: Is there benefit in surgery for stage iv's
I have a very similar story as your daughter. Diagnosed 12/10 with mets to spine (multiple vertebrae) from start. 9 months of taxol/herceptin/zometa. Stopped taxol 10/11, have been on taxol and...
Forum:
Clinical Trials
05-17-2012, 07:03 PM
Replies:
22
Johns Hopkins Her2 Vaccine Trial
Views:
16,028
Posted By
jkdowl
Re: Johns Hopkins Her2 Vaccine Trial
Started my second cycle on vaccine trial and tolerating it well.
The doctor seems happy with my response so far. Will keep you all updated.
Forum:
Herceptin / Tykerb
05-03-2012, 05:20 AM
Replies:
9
Stable...do I stop taxol and stay on just herceptin/zometa
Views:
5,416
Posted By
jkdowl
Re: Stable...do I stop taxol and stay on just herceptin/zometa
Kristin, I have been off Taxol and on just Herceptin with No active disease since October 2011, but I am interested in retesting pathology. Did your doc retest the previosly obtained pathology...
Forum:
Clinical Trials
01-27-2012, 06:01 AM
Replies:
22
Johns Hopkins Her2 Vaccine Trial
Views:
16,028
Posted By
jkdowl
Re: Johns Hopkins Her2 Vaccine Trial
I had my consultation at John Hopkins last week, I am still waiting to hear about insurance approval. They are doing all the legwork for approval, I should hear by Monday. Will keep you all updated.
Forum:
Clinical Trials
01-06-2012, 03:35 AM
Replies:
22
Johns Hopkins Her2 Vaccine Trial
Views:
16,028
Posted By
jkdowl
Re: Johns Hopkins Her2 Vaccine Trial
http://clinicaltrials.gov/ct2/show/NCT00847171?term=Emens&rank=5
This is the link to the trial. You do have to be NED. I have my first consultation in 2weeks.
Forum:
Clinical Trials
12-05-2011, 04:22 AM
Replies:
22
Johns Hopkins Her2 Vaccine Trial
Views:
16,028
Posted By
jkdowl
Re: Johns Hopkins Her2 Vaccine Trial
How are you doing after trial? I am thinking about doing it but concerned about time commitment. I would have to fly there, spoke to Dr. Emens today about it.
Forum:
Herceptin / Tykerb
08-30-2011, 02:48 PM
Replies:
9
Stable...do I stop taxol and stay on just herceptin/zometa
Views:
5,416
Posted By
jkdowl
Stable...do I stop taxol and stay on just herceptin/zometa
It is a good problem to have but wanted advice from people with more experience than me. My oncologist mentioned today at my visit, the option to stop taxol since my last scans were stablle. I have...
Forum:
her2group
02-19-2011, 06:07 AM
Replies:
8
Newly diagnosed mets to spine
Views:
2,121
Posted By
jkdowl
Newly diagnosed mets to spine
I just finished my 8th weekly taxol/herceptin treatment and my BS ordered a ct scan before my planned surgery. It showed multiple sclerotic areas in the thoracic and lumbar spine. I had a new bone...
Showing results 1 to 13 of 13
Forum Jump
User Control Panel
Private Messages
Subscriptions
Who's Online
Search Forums
Forums Home
her2group
Herceptin / Tykerb
Caregivers Corner
Diet and Nutrition
Inflammatory Breast Cancer
Keeping Your Mind Off of BC
Profiles In Courage
My Healthcare Team
Clinical Trials
Articles of Interest
Events and Social Calendar
Breast Cancer Meeting Highlights
General Cancer News
Breast Cancer News
Breast Cancer Newsfeed
All times are GMT -7. The time now is
12:11 AM
.