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Posts Made By:
Linda
Forum:
her2group
02-14-2014, 07:45 PM
Replies:
18
Neoadjuvant Roll Call
Views:
4,308
Posted By
Linda
Re: Neoadjuvant Roll Call
I had neo adjuvant chemo in '05! Stage 3, disappointing response to chemo…but
still healthy almost 9 years late!
her+, er/pr-, stage 3a after chemo, 2005. Alive and thriving, 2014.
Forum:
her2group
02-02-2011, 01:37 PM
Replies:
9
Surgery Stories
Views:
1,826
Posted By
Linda
Re: Surgery Stories
Hi Ginny:
I had the same sequence of treatment, so you go into surgery already being tired from chemo, and then you head into rads. I can tell you though, surgery and rads are really easy compared...
Forum:
her2group
09-17-2010, 10:21 PM
Replies:
8
Referral to breast specialist/surgeon--So CA area...
Views:
1,533
Posted By
Linda
Re: Referral to breast specialist/surgeon--So CA area...
Hi Chelee:
I LOVE the surgeons at the Joyce Keefer Breast Center, St, John's, Santa Monica. Dr. Armando Giuliano and Dr. Chung. I know that's not as close as you'd like...also they are surgeons,...
Forum:
her2group
08-14-2010, 04:49 PM
Replies:
139
Joe passed on this evening
Views:
22,393
Posted By
Linda
Re: Joe passed on this evening
Dear Danielle:
I am sending my sympathies as well. I never met your dad and yet he did such a generous service to me and to so many of us. I am very grateful to him.
Love to Christine and the...
Forum:
her2group
06-03-2010, 07:42 PM
Replies:
66
Five years out???
Views:
10,995
Posted By
Linda
Re: Five years out???
I'm another almost 5 year-er. I'm over 5 from dx, but just under 5 from surgery (I had neo adjuvant chemo.) Stage 3a. er/pr-. Large tumor. NED!
Linda
Forum:
her2group
02-04-2010, 12:07 AM
Replies:
46
Positive stories, please come out of the woods
Views:
10,961
Posted By
Linda
Re: Positive stories, please come out of the woods
Hi Sweet Marcia:
I was dx locally advanced in April, 2005. I'll never know how large my tumor was (huge I suspect) or how many pos nodes I had, because I had 6 months of neo adjuvant chemo. Unlike...
Forum:
her2group
01-11-2010, 06:06 PM
Replies:
12
Tumor Markers & Update
Views:
1,969
Posted By
Linda
Re: Tumor Markers & Update
Hi Vicki:
I was stage 3a, hormone neg and am almost 5 years out (!). No recurrence.
My onc has done tumor markers all along, as well as Vit D level and a physical exam.
After treatment, I...
Forum:
her2group
10-16-2009, 08:15 AM
Replies:
4
Should I consider taking Zometa?
Views:
981
Posted By
Linda
Re: Should I consider taking Zometa?
Marcia:
My doc did not want to give me Zometa, stating that the study had been too small and the risk for kidney damage, etc, didn't make it worth it. Just her opinion -- since many docs are on...
Forum:
her2group
10-13-2009, 11:14 PM
Replies:
23
PET scan....scared...
Views:
2,847
Posted By
Linda
Re: PET scan....scared...
Maureen:
So sorry you are going through this. It is SO stressful.
There's a lot of good advice from our sisters on this thread. The only thing I have to add is to suugest having other...
Forum:
her2group
09-24-2009, 06:24 PM
Replies:
84
Cancer is back...I just knew it.
Views:
10,686
Posted By
Linda
Re: Cancer is back...I just knew it.
Chelee:
I'm so so sorry to hear about your recurrence.
I wanted to pass on the name of an LA bc expert that I consulted when I was dx. I know she's a heavy hitter, although I don't know if she's...
Forum:
her2group
08-20-2009, 09:42 AM
Replies:
9
My preliminary pathology report
Views:
1,772
Posted By
Linda
Re: My preliminary pathology report
Dear Bejuce:
I just wanted you to know -- I had neo adjuvant chemo and was still stage 3 after all my chemo. Then I had surgery, rads, herceptin. That was four and half years ago and I'm doing...
Forum:
her2group
07-28-2009, 03:07 PM
Replies:
16
Her2 and BRCA
Views:
4,694
Posted By
Linda
Brca
I'm another that was BRCA tested because of Jewish descent. I was also negative for BRCA 1 and 2, even though both of my grandmothers had bc, and 2 uncles had colon cancer, which is related. There...
Forum:
her2group
06-17-2009, 09:28 AM
Replies:
22
New n Atlanta
Views:
2,394
Posted By
Linda
Angela
Welcome:
This is a great place to come for support and questions. We've all been where you are now. Her2 bc is scary, but the prognosis has really changed since herceptin. Much info is really...
Forum:
her2group
05-13-2009, 07:59 AM
Replies:
31
Four Years Ago Today
Views:
3,726
Posted By
Linda
4 years
Dear Karen, Marejo and other 4 year anniverarios:
It's my four year marker this month, too. Just had a check up and mammo and all is well. Sometimes it seems like a miracle.
My doc congratulated...
Forum:
her2group
04-15-2009, 10:43 AM
Replies:
37
Struggling
Views:
4,679
Posted By
Linda
Oh...I misunderstood
Oh, now I understand your herceptin question, Maureen. I'd assumed that H was also part of your six mo neoadjuvant treatment, adding up to a year. Sorry about that.
I'd agree with others about...
Forum:
her2group
04-14-2009, 07:28 PM
Replies:
37
Struggling
Views:
4,679
Posted By
Linda
Maureen: You are in a really rough patch on...
Maureen:
You are in a really rough patch on this journey. I also did 6 mos of neoadjuvant chemo and near the end I felt pretty crazy. The combo of the waiting, the drugs, the nervousness about what...
Forum:
her2group
03-01-2009, 05:22 PM
Replies:
25
blood test for vitamin D question
Views:
3,764
Posted By
Linda
Vit D
My onc has been testing Vit D levels for some time. She believes that women who've had bc should be on the high end of normal, and most of us are low. I took supplements for a while and ended up...
Forum:
her2group
09-21-2008, 05:58 PM
Replies:
13
When will I feel normal again??????
Views:
1,762
Posted By
Linda
Getting back to your old self
Hi:
Forgive me if I'm repeating what's already been listed, but some other suggestions of things that could be keeping you from full recovery:
Have you checked your thyroid levels?
Could you be...
Forum:
her2group
08-15-2008, 04:42 PM
Replies:
9
tongue and lip neuropathy
Views:
7,670
Posted By
Linda
Vit D
Hi Debbie:
My onc has been checking my Vit D level for almost 2 years. She says she wants my level on the high end of normal (there's a big range) and that is thought to be protective against...
Forum:
her2group
06-26-2008, 08:14 PM
Replies:
91
All those dancing with NED
Views:
13,753
Posted By
Linda
I agree. I know how much I clung to positive...
I agree. I know how much I clung to positive stories when I was first dx, and there are a lot of us out there.
I'm over three years from a really knarly diagnosis - very large tumor, a pos node...
Forum:
her2group
06-19-2008, 11:57 PM
Replies:
24
I am posting this link that Lolly's daughter..Anneliese
Views:
3,312
Posted By
Linda
Thank you
Thanks for posting that. As another Oregonian, I always thought maybe I'd meet Lolly. She will be missed here.
Linda
Forum:
her2group
06-12-2008, 11:43 PM
Replies:
31
Help me SLEEP!!!
Views:
3,759
Posted By
Linda
Dear Krista: I went through the same thing,...
Dear Krista:
I went through the same thing, after taking a very small (.5) dose of Ativan nightly during my six months of chemo. It's really addictive and it will take a little time to sleep well...
Forum:
her2group
06-10-2008, 07:20 PM
Replies:
110
SAD NEWS - Lolly has earned her wings
Views:
13,538
Posted By
Linda
So sad
I am sad to lose our sister in Oregon. My thoughts and love to Lolly's husband and family.
Linda in Oregon
Forum:
her2group
06-03-2008, 09:59 AM
Replies:
25
What makes a good oncologist good?
Views:
4,454
Posted By
Linda
Hi Tonya
Tonya:
Like others, I think it's a balance between technical expertise and bedside manner, and with oncology I think the skill and personality of the nursing staff is hugely important, since they...
Forum:
her2group
02-21-2008, 06:50 PM
Replies:
15
Let's Help This 40 Yr Old Woman
Views:
2,041
Posted By
Linda
Breast center near Bev Hills
I had my surgery at the Joyce Eisenberg Keefer Breast Center at St. John's hospital in Santa Monica (right next to Bev Hills.) I can't say enough good things about this practice. They do surgery...
Showing results 1 to 25 of 134
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