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Showing results 1 to 25 of 47
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Posts Made By:
DizzyDo
Forum:
her2group
12-04-2016, 07:32 AM
Replies:
49
Ugh Brain Mets!
Views:
25,285
Posted By
DizzyDo
Re: Ugh Brain Mets!
Hello everyone!
It's been ages since I posted, but just an update. I had another SRS round in May of this year to bring it to a total of 4 treatment cycles for 6 mets. The radiation onc was...
Forum:
her2group
01-08-2016, 06:33 PM
Replies:
49
Ugh Brain Mets!
Views:
25,285
Posted By
DizzyDo
Re: Ugh Brain Mets!
Hi All -
Sorry it's been a while since I posted...I decided to make some changes in my life. I quit my job in Washington and took a new one in North Dakota! This is closer to family and...
Forum:
her2group
08-10-2015, 04:44 AM
Replies:
26
Brain Met
Views:
7,555
Posted By
DizzyDo
Re: Brain Met
Hello Freakzilla -
I also had brain mets - three total, found last December. All treated with SRS. Other than having the dex steroids change me into a raging lunatic, the treatment worked very...
Forum:
her2group
07-02-2015, 07:58 PM
Replies:
27
IT Hercepton and update on Saygoon
Views:
8,056
Posted By
DizzyDo
Re: IT Hercepton and update on Saygoon
All the best to you Paula, you are in my prayers!
Forum:
her2group
07-02-2015, 07:56 PM
Replies:
39
10 yrs brain mets - still NED ...
Views:
11,780
Posted By
DizzyDo
Re: 10 yrs brain mets - still NED ...
Wow! You are truly amazing! Here's to many more!
Forum:
her2group
04-20-2015, 12:03 PM
Replies:
49
Ugh Brain Mets!
Views:
25,285
Posted By
DizzyDo
Re: Ugh Brain Mets!
KSGal - oh loved the typo, too funny! I spit coffee on my iPad when I saw it, I was laughing so hard. Thanks all for the positive thoughts and best to all of you. For those of you doing the SRS,...
Forum:
her2group
04-16-2015, 02:16 PM
Replies:
49
Ugh Brain Mets!
Views:
25,285
Posted By
DizzyDo
Re: Ugh Brain Mets!
Thanks everyone for the kind comments and support! I just got the results of my MRI two months post treatment. No new lesions, the large one is down to 8 mm from 15. The small ones are about the...
Forum:
her2group
02-15-2015, 09:40 AM
Replies:
49
Ugh Brain Mets!
Views:
25,285
Posted By
DizzyDo
Re: Ugh Brain Mets!
Hi everyone - just an update - I finished my treatment two weeks ago, it was pretty straight forward. Now it's wait and see - MRI will be in 2 months. Tapering off the Dex is a bit rougher than I...
Forum:
her2group
01-24-2015, 10:51 AM
Replies:
16
Question on brain mets
Views:
5,131
Posted By
DizzyDo
Re: Question on brain mets
Such good news! :) I am happy for you!
Forum:
her2group
01-24-2015, 10:48 AM
Replies:
49
Ugh Brain Mets!
Views:
25,285
Posted By
DizzyDo
Re: Ugh Brain Mets!
Hi everyone! Just an update - I'm still doing good - I had my second treatment this week and I am scheduled for the final one next week. Definitely the worst part of this is the Dex, my skin is...
Forum:
her2group
01-13-2015, 06:59 PM
Replies:
12
Recommended: regular brain MRIs for all HER2+ patients
Views:
3,476
Posted By
DizzyDo
Re: Recommended: regular brain MRIs for all HER2+ patients
I didn't have symptoms before the seizure either. But It does scare me that it could have happened when I was driving or something. I was at work and my coworkers told me I started batting my arm,...
Forum:
her2group
01-13-2015, 06:45 PM
Replies:
49
Ugh Brain Mets!
Views:
25,285
Posted By
DizzyDo
Re: Ugh Brain Mets!
I had my first session today with the gamma. Pretty much a non event, I almost fell asleep! Lots of people they made it easy. I get 2 more treatments over the next 2 weeks because there are 3...
Forum:
her2group
01-10-2015, 11:00 AM
Replies:
49
Ugh Brain Mets!
Views:
25,285
Posted By
DizzyDo
Re: Ugh Brain Mets!
Thanks for all the support! I love the other posts as well about the stereotactic radiation successes. Right now I am hanging in here, my only issue is dealing with the dex. Wow this stuff is...
Forum:
her2group
01-10-2015, 10:39 AM
Replies:
26
Cyberknife Success and Ceesun
Views:
4,778
Posted By
DizzyDo
Re: Cyberknife Success and Ceesun
Wow great news! Thanks for posting this, it gives me so much hope!
Forum:
her2group
01-08-2015, 10:49 PM
Replies:
32
10 years - one decade - since brain mets diagnosis
Views:
6,161
Posted By
DizzyDo
Re: 10 years - one decade - since brain mets diagnosis
Wow Steph thank you SO MUCH for sharing that!!!! You really made my day and it does really, really help ease my mind. I am now 10 days from my brain mets diagnosis after seizure and my zaps are...
Forum:
her2group
01-07-2015, 03:13 PM
Replies:
49
Ugh Brain Mets!
Views:
25,285
Posted By
DizzyDo
Re: Ugh Brain Mets!
Thanks for the replies Jessica and RolePaul. Love the idea of mediation and the sleep advice, I'll give that a whirl Jessica!
Your reply gave me a good teehee RolePaul, I am definitely a Dex...
Forum:
her2group
01-05-2015, 10:40 PM
Replies:
16
Question on brain mets
Views:
5,131
Posted By
DizzyDo
Re: Question on brain mets
Oh Bejuice - I just posted my brain met story, hope it doesn't scare you! Good idea to get the MRI. Best of luck to you and I'm praying for a clean scan for you!
Forum:
her2group
01-05-2015, 10:35 PM
Replies:
49
Ugh Brain Mets!
Views:
25,285
Posted By
DizzyDo
Ugh Brain Mets!
Hello Lovelies, I need some of your advice again.
Just when things were going well....I just found out I have 3 little mets in my brain. Ugh. I had a seizure last week and the MRI found em. Doc...
Forum:
her2group
08-31-2014, 10:41 AM
Replies:
11
Managing Diarrhea
Views:
3,974
Posted By
DizzyDo
Re: Managing Diarrhea
Hi Mtngrl -
I am also on the Herceptin/Perjeta combo, having dropped the taxol in late May. The big D is a struggle and was horrible at first, with the help of the nurses where I get treated, I...
Forum:
her2group
08-24-2014, 12:32 PM
Replies:
6
"Just Breathe"
Views:
2,900
Posted By
DizzyDo
Re: "Just Breathe"
Thanks, I needed to read that today!
Forum:
her2group
07-25-2014, 01:48 PM
Replies:
3
Big news for Her2+!
Views:
2,591
Posted By
DizzyDo
Re: Big news for Her2+!
There are also metastatic trials underway as well. Interesting that the stock for Puma (the biotech developing this) shot up 300% after this announcement. A lot of investors were shorting the stock...
Forum:
her2group
07-25-2014, 01:39 PM
Replies:
12
Wanting to encourage the new her2 sisters.
Views:
3,394
Posted By
DizzyDo
Re: Wanting to encourage the new her2 sisters.
Thanks for coming back and sharing with us. I am a newbie, The insight from those of you that have been through this is so valuable!
Forum:
her2group
07-24-2014, 10:57 PM
Replies:
4
My story of how Dr. Slamon saved my life!
Views:
7,076
Posted By
DizzyDo
Re: My story of how Dr. Slamon saved my life!
Wow so cool you were actually in the movie! Thanks for sharing that!
Forum:
her2group
07-24-2014, 10:56 PM
Replies:
6
A friend's good news
Views:
2,284
Posted By
DizzyDo
Re: A friend's good news
Wow - metastatic on two different kinds of breast cancer and ned! Thanks for sharing that, amazing!
Forum:
her2group
07-24-2014, 10:54 PM
Replies:
9
Scan results are in
Views:
2,485
Posted By
DizzyDo
Re: Scan results are in
Thanks for all the well wishes, your support really helps me! Thanks also for the advice, it's really good to have more experienced people who know this better than I!
Does anyone go to SCCA or...
Showing results 1 to 25 of 47
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