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Posts Made By:
Mary Jeanne Phillips
Forum:
Herceptin / Tykerb
09-16-2008, 07:41 PM
Replies:
5
Any STag 3 taking Tykerb monotherapy as preventive treatment
Views:
2,520
Posted By
Mary Jeanne Phillips
Hi grandma2, does that mean you have 2 grands or...
Hi grandma2, does that mean you have 2 grands or you have been a grandma 2 times???
I have 4 grands, 2 are 15 and 16 and the little ones are 5 and 6. I have been lucky to have babies for 10...
Forum:
Herceptin / Tykerb
09-10-2008, 07:54 PM
Replies:
7
Tykerb: Brain Confusion & Body Aches
Views:
3,084
Posted By
Mary Jeanne Phillips
HI GRANDMA2, Yes 5 is the standard dose but I can...
HI GRANDMA2, Yes 5 is the standard dose but I can barely tolerate 3, so I am my own Dr. I have gone from 2 to 3 and on the 6th and 7th day of 3, I can hardly get out of bed. I have never taken...
Forum:
Herceptin / Tykerb
08-25-2008, 11:57 AM
Replies:
24
splits in finger ends?
Views:
4,818
Posted By
Mary Jeanne Phillips
Dear StephN, thanks for the reply about the...
Dear StephN, thanks for the reply about the carmol20. I also read your story. It is very encouraging. I am now on Tykerb to interfere with the brain tumors hopefully and slow the growth in Liver,...
Forum:
Keeping Your Mind Off of BC
08-25-2008, 07:20 AM
Replies:
419
Joy Column
Views:
42,731
Posted By
Mary Jeanne Phillips
My Joy today is that I am not nauseated and I can...
My Joy today is that I am not nauseated and I can fix my green vegetable drink and drink it and have a fatigue free day to start my move to another wonderful home. It will have windows that I can see...
Forum:
Herceptin / Tykerb
08-23-2008, 09:07 PM
Replies:
7
Tykerb: Brain Confusion & Body Aches
Views:
3,084
Posted By
Mary Jeanne Phillips
Hi wannabe, thanks so much for the note. I am so...
Hi wannabe, thanks so much for the note. I am so glad someone else has the same thing. I never had a reaction to Herceptin. I am on my second year (Dec.) started it after my 1st brain tumor. Had a...
Forum:
Herceptin / Tykerb
08-23-2008, 09:02 PM
Replies:
8
Tykerb - Fatigue
Views:
2,351
Posted By
Mary Jeanne Phillips
Hi justwannaBe Since you are off Tykerb what...
Hi justwannaBe
Since you are off Tykerb what are you taking? I appreciate the feed back. I had to back off of the 3 pills I was taking. I had the worst day of my life this week after 7 days of 3. I...
Forum:
Keeping Your Mind Off of BC
08-23-2008, 09:31 AM
Replies:
419
Joy Column
Views:
42,731
Posted By
Mary Jeanne Phillips
What a wonderful way to see the rainbow at the...
What a wonderful way to see the rainbow at the end of the storm. Positiveness is the only answer. Our attitude has to be our priority.
My joy is that we were not swept away by the hurricane and...
Forum:
Herceptin / Tykerb
08-23-2008, 05:41 AM
Replies:
8
Tykerb - Fatigue
Views:
2,351
Posted By
Mary Jeanne Phillips
Hi Goops, That answers my question too. My...
Hi Goops,
That answers my question too. My fatigue level has been noticeable and also the sleepiness. My Dr. started me on 2 and now 3 a day, but the 3 has been harder. I am counting on what...
Forum:
Herceptin / Tykerb
08-18-2008, 06:03 PM
Replies:
7
Tykerb: Brain Confusion & Body Aches
Views:
3,084
Posted By
Mary Jeanne Phillips
Tykerb: Brain Confusion & Body Aches
Hey Everybody!
My first week on Tykerb (3 Tablets a day taken before bed on an empty stomach) went pretty well...no major side-effects, so far.
But, I am experiencing some real Confusion that...
Forum:
Herceptin / Tykerb
08-15-2008, 07:07 PM
Replies:
5
Any STag 3 taking Tykerb monotherapy as preventive treatment
Views:
2,520
Posted By
Mary Jeanne Phillips
any stage 3 taking monotherapy as preventive treatment
Hi , I am taking Tykerb by itself as could not tolerate xeloda. Mine is actually stage 4 mets to liver, lungs, bones and brain. All I have taken in the past is Femara for 6 months and now herceptin...
Forum:
Herceptin / Tykerb
08-15-2008, 06:52 PM
Replies:
4
3 weeks on tykerb
Views:
2,076
Posted By
Mary Jeanne Phillips
don't know where my responses go and I don't know...
don't know where my responses go and I don't know how to do a thread. I guess I will have to wait for my daughter to come for a visit this week to strighten me out. Thanks, MJ
Forum:
Herceptin / Tykerb
08-15-2008, 06:49 PM
Replies:
4
3 weeks on tykerb
Views:
2,076
Posted By
Mary Jeanne Phillips
Hi Sally, I was glad to read your note. I have...
Hi Sally, I was glad to read your note. I have only been on Tykerb for 4 days. I have been taking 1, then 2, and now 3. It was very hard for me to make the decision to even take it. I have a lot of...
Forum:
Herceptin / Tykerb
08-04-2008, 07:07 AM
Replies:
18
Tykerb side effects
Views:
2,745
Posted By
Mary Jeanne Phillips
gamma, Proton etc from Hitch
Did you receive my reply to your thread???MJ
Forum:
her2group
08-03-2008, 08:16 PM
Replies:
21
looking for Gamma, Cyber or Proton propeller-heads
Views:
2,776
Posted By
Mary Jeanne Phillips
Hi Hitch, this is Mary Jeanne. When I had to make...
Hi Hitch, this is Mary Jeanne. When I had to make the decision in 2005, I decided on a craniotomy to see if it was a met or primary. That was a tumor in the rear of the frontal lobe.
At that time...
Forum:
Herceptin / Tykerb
08-02-2008, 07:33 AM
Replies:
18
Tykerb side effects
Views:
2,745
Posted By
Mary Jeanne Phillips
What are the side effects for the blood work when on Tykerb? WBC and RBC?
I am still looking for a way to submit a thread. Guess I am just useless. Thanks. MJ
Forum:
Herceptin / Tykerb
08-02-2008, 07:29 AM
Replies:
18
Tykerb side effects
Views:
2,745
Posted By
Mary Jeanne Phillips
Hi great supporters, I still cannot find...
Hi great supporters,
I still cannot find where I put in a new thread. My MRI was very good, no new tumors, no increases and some decreasing. Now I need to know about if it seems effective...
Forum:
Herceptin / Tykerb
07-31-2008, 06:04 PM
Replies:
689
Please post your two cents on Herceptin "side effects" real or perceived!
Views:
301,638
Posted By
Mary Jeanne Phillips
I have to tell everyone, My MRI of the brain...
I have to tell everyone, My MRI of the brain after my 5th met to the brain was negative yesterday,. That means all the 5 tumors from the craniotomy and the last 2 GAMMA;s, show no increase and no new...
Forum:
Herceptin / Tykerb
07-29-2008, 01:11 PM
Replies:
18
Tykerb side effects
Views:
2,745
Posted By
Mary Jeanne Phillips
Thanks for the info. I just wondered how much...
Thanks for the info. I just wondered how much sugar/ desserts? breads? do you eat? That has been the biggest "cheat" for me on the Macro diet. I eat no eggs, or dairy or chicken. some fish and have...
Forum:
Herceptin / Tykerb
07-29-2008, 09:41 AM
Replies:
18
Tykerb side effects
Views:
2,745
Posted By
Mary Jeanne Phillips
This is to Turbo. I may start Tykerb in a couple...
This is to Turbo. I may start Tykerb in a couple weeks and would like to know about the foods you are eating with it? I see you attribute the diarrhea to your diet, so am very interested to know...
Forum:
Keeping Your Mind Off of BC
07-27-2008, 07:42 PM
Replies:
50
Healthy food tip
Views:
5,567
Posted By
Mary Jeanne Phillips
Hi, this is Mary Jeanne and I am so glad to put a...
Hi, this is Mary Jeanne and I am so glad to put a face to Andi's name and also Hutchi. I really loved reading all these stories. I wish I could be like andi and never have a speck of sugar again but...
Forum:
Herceptin / Tykerb
07-27-2008, 03:34 PM
Replies:
689
Please post your two cents on Herceptin "side effects" real or perceived!
Views:
301,638
Posted By
Mary Jeanne Phillips
Is Tykerb as terrible as it is reported by some??? Please reply from anyone on Tykerb
I don not know how to start a thread. Is there anyone who could help me?? I reply to others but wanted to post one. I wrote it out in the thread section, but didn't know how to send it. THANKS Mary...
Forum:
Herceptin / Tykerb
07-27-2008, 03:20 PM
Replies:
689
Please post your two cents on Herceptin "side effects" real or perceived!
Views:
301,638
Posted By
Mary Jeanne Phillips
Hi Lani, Great survey. Diagnosed in June 2001,Her...
Hi Lani, Great survey. Diagnosed in June 2001,Her 2 positive pro.positive, no lymph node involvement but eschemic evidence.Had radiation regime and then 5FU and Cytoxin I think. Mets to liver, lungs,...
Forum:
Herceptin / Tykerb
07-27-2008, 02:48 PM
Replies:
7
Tykerb Trial after Completing Herceptin?
Views:
1,569
Posted By
Mary Jeanne Phillips
Hi henny, I am in the same situation. I have been...
Hi henny, I am in the same situation. I have been on Herceptin over 2 years now and have had 5 brain tumors plus mets to other organs. I have been on Zometa the same length of time for the bone mets....
Forum:
Herceptin / Tykerb
07-18-2008, 10:36 AM
Replies:
24
splits in finger ends?
Views:
4,818
Posted By
Mary Jeanne Phillips
Humecta pd is the best prescription for all the...
Humecta pd is the best prescription for all the symptoms of nail beds and finger splits. It is 41% urea. May have to have a prescription but after using everything a friend with the side effect from...
Showing results 1 to 24 of 24
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