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Posts Made By:
astrid
Forum:
her2group
04-01-2008, 12:34 PM
Replies:
0
Tamoxifen and regular menstrual cycle
Views:
875
Posted By
astrid
Tamoxifen and regular menstrual cycle
I am ER+ PR + and HER2+.
I was diagnosed in Dec 2005. I completed Herceptin in June of 2007.
I started Tamoxifen in June of 2006. I am pre menopausal.
I started regular periods in January of...
Forum:
Herceptin / Tykerb
07-17-2007, 11:31 AM
Replies:
689
Please post your two cents on Herceptin "side effects" real or perceived!
Views:
307,302
Posted By
astrid
Flushed Tamoxifen down the toilet
Andi, I see you said Flushed Tamoxifen down the toilet. Do you think it hurt you more than helped you?? I have spoken to my ONC about my tamoxifen concerns, but she feels it is the standard of care...
Forum:
Herceptin / Tykerb
07-17-2007, 10:49 AM
Replies:
689
Please post your two cents on Herceptin "side effects" real or perceived!
Views:
307,302
Posted By
astrid
Eye lashes falling out again
I completed one year of Hercpetin on May 22, 2007, almost two months ago and today I noticed my eyelashes are falling out again and I still have to keep my finger nails super short because they split.
Forum:
Herceptin / Tykerb
07-16-2007, 05:26 AM
Replies:
689
Please post your two cents on Herceptin "side effects" real or perceived!
Views:
307,302
Posted By
astrid
Year over
I finished my year of herceptin in May of 2007. I had quite a few side effects that were not listed in the printed material for the drug. My blood pressure rose from 130 over 70 to 155 over 85. It...
Forum:
her2group
03-28-2007, 09:10 AM
Replies:
10
Questions about Ports
Views:
1,450
Posted By
astrid
I did not know you could get a small port. I...
I did not know you could get a small port. I have a non heparin port on my left side that is noticeable only when I wear a bathing suit, but I do not care. Funny, when we went to Moorea last year a...
Forum:
her2group
03-26-2007, 09:54 AM
Replies:
5
Calcium Recommendation
Views:
1,161
Posted By
astrid
Calcium citrate is better absorbed than calcium...
Calcium citrate is better absorbed than calcium carbonate by approximately 22% to 27%, either on an empty stomach or co-administered with meals. <?xml:namespace prefix = o ns =...
Forum:
her2group
03-26-2007, 09:43 AM
Replies:
7
Alternatives to Fosamax
Views:
1,397
Posted By
astrid
When estrogen levels fall, bone density...
When estrogen levels fall, bone density (strength) starts to decline, and, over time, a woman can develop osteoporosis and even fractures. Several alternatives to HRT can help keep bones strong and...
Forum:
her2group
03-26-2007, 09:42 AM
Replies:
7
Alternatives to Fosamax
Views:
1,397
Posted By
astrid
I just started taking Fosamax with no side...
I just started taking Fosamax with no side effects. I am 49 years old. Fosamax is different from calcium. Osteoporosis actually causes your bones to thin and the density to weaken, creating holes in...
Forum:
her2group
03-04-2007, 10:27 AM
Replies:
32
FISH numbers? I"m at Project LEAD
Views:
4,191
Posted By
astrid
IHC 2+ ; FISH 3.4; getting Herceptin every three...
IHC 2+ ; FISH 3.4; getting Herceptin every three weeks for a year June 06 to June 07
Forum:
her2group
03-01-2007, 07:19 AM
Replies:
11
Need Advice
Views:
1,541
Posted By
astrid
Try powered L glutamine for the neuropathy
Try powered L glutamine for the neuropathy
Forum:
her2group
03-01-2007, 06:36 AM
Replies:
8
Do any one have mets to the lung?
Views:
1,501
Posted By
astrid
How did you all know that you had lung mets??
How did you all know that you had lung mets??
Forum:
her2group
03-01-2007, 06:34 AM
Replies:
19
I'm thinking mastectomies?
Views:
2,661
Posted By
astrid
I had a lumpectomy, mainly because my sister had...
I had a lumpectomy, mainly because my sister had a mastectomy and it did not save her. The survival rate does not improve with a mastectomy. She was 40 years old were she died 11 years ago. She...
Forum:
her2group
03-01-2007, 06:27 AM
Replies:
11
Need Advice
Views:
1,541
Posted By
astrid
My ONC said anything over 1.5CM should have...
My ONC said anything over 1.5CM should have chemo. You are young, but your tumor is small. I did a lot of reading because even though my tumor was 1.8 CM, I wanted to ensure that chemo really...
Forum:
her2group
03-01-2007, 06:09 AM
Replies:
27
Anyone else feel HORRIBLE on Herceptin?
Views:
5,259
Posted By
astrid
Fevers etc.
I had not been having a bad time until my December treatment. I have been on Herceptin since June of 2006. In December, I started to feel really bad about 2 hours after the treatment and then I had...
Forum:
her2group
11-26-2006, 06:45 AM
Replies:
18
Eyelash and Eyebrow Please give 2cents worth
Views:
2,083
Posted By
astrid
Oh, I am glad this has come back up again. I am...
Oh, I am glad this has come back up again. I am losing my eyelashes for the THIRD time. I lost them in March right after I completed chemo. Then I lost them in August, two months after herceptin...
Forum:
her2group
11-26-2006, 06:39 AM
Replies:
10
scar tissu..pain?
Views:
1,651
Posted By
astrid
I also have pain around my lumpectomy site. I...
I also have pain around my lumpectomy site. I will be one year on December 7<SUP>th</SUP> and I thought it was weird that I still have so much scar tissue and tenderness. Hard to tell if you have...
Forum:
her2group
11-24-2006, 07:22 AM
Replies:
14
time of Herceptin delivery
Views:
1,562
Posted By
astrid
The first time they ALWAYS deliver it slowly. ...
The first time they ALWAYS deliver it slowly. The usual is 90 minutes. The reason for this is that it is very hard on your heart, so they are looking for an adverse or an allergic reaction. I did...
Forum:
her2group
11-21-2006, 09:35 AM
Replies:
10
Questions on chemo and herceptin
Views:
1,751
Posted By
astrid
As you are node negative you may want to consider...
As you are node negative you may want to consider the clinical study CALGB 40101
www.cancer.gov/clinicaltrials/view_clinicaltrials.aspx?version=healthprofessional&cdrid=69444...
Forum:
her2group
11-18-2006, 08:08 AM
Replies:
11
Switching from Tamoxifen to an Aromotase Inhibitor
Views:
1,529
Posted By
astrid
SOFT trial
arimidex.com (http://www.arimidex.com/arimidex/reduce-risk-cancer.asp)
femara.com
Aromasin.com
Armidex is Anastrozole
Femeara is Letrozole
Forum:
her2group
11-14-2006, 03:39 PM
Replies:
7
Question about Estrogen levels
Views:
1,515
Posted By
astrid
I had my estrogen level re run and it was 155. My...
I had my estrogen level re run and it was 155. My ONC blames a bad lab test for the 955. 155 is still kinda high as I’m 48 years old and on tamoxifen. I have not had a real menstrual cycle since...
Forum:
Clinical Trials
11-14-2006, 03:33 PM
Replies:
7
Clinical trial for Pre menopausal Women who are ER+, PR+ to compare tamoxifen with ov
Views:
3,634
Posted By
astrid
I had my estrogen levels rechecked last week and...
I had my estrogen levels rechecked last week and on Tuesday I was randomized in the SOFT trial for hormone therapy. The SOFT trial is Suppression of Ovarian Function Trial (SOFT). The SOFT trial has...
Forum:
her2group
11-10-2006, 05:59 AM
Replies:
15
Blood work before Herceptin
Views:
2,763
Posted By
astrid
I think the necessity for blood work really...
I think the necessity for blood work really depends on the patient and how well they are doing. If blood count is an issue, they will draw it. If you want blood work for your own information ask...
Forum:
her2group
11-08-2006, 01:59 PM
Replies:
37
Can Herceptin cause high blood pressure?
Views:
4,299
Posted By
astrid
Well, I had my second MUGA yesterday and my left...
Well, I had my second MUGA yesterday and my left ventricle ejection is 65%. That is actually an improvement over my last MUGA in December of 2005. My blood pressure was also lower than my last...
Forum:
her2group
11-07-2006, 05:11 AM
Replies:
37
Can Herceptin cause high blood pressure?
Views:
4,299
Posted By
astrid
Genentech Contact information
I went to:
www.gene.com/gene/medcom/index.jsp (http://www.gene.com/gene/medcom/index.jsp)
Forum:
her2group
11-06-2006, 01:56 PM
Replies:
37
Can Herceptin cause high blood pressure?
Views:
4,299
Posted By
astrid
I was able to find contact information for...
I was able to find contact information for Genentech on the web and I emailed them and they called me already and opened a file. They did say that Herceptin is not FDA approved for early stage...
Showing results 1 to 25 of 112
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