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Posts Made By:
Whonoze
Forum:
her2group
03-25-2018, 06:19 AM
Replies:
16
Anyone Stage IV De Novo With 10+ Years NED?
Views:
15,663
Posted By
Whonoze
Re: Anyone Stage IV De Novo With 10+ Years NED?
Thanks and same to you!!!
Forum:
her2group
03-23-2018, 04:11 PM
Replies:
16
Anyone Stage IV De Novo With 10+ Years NED?
Views:
15,663
Posted By
Whonoze
Re: Anyone Stage IV De Novo With 10+ Years NED?
I am also Stage IV de novo and have been on Herceptin infusions for 11 years.
Forum:
her2group
09-29-2017, 06:03 AM
Replies:
14
Pathological complete response
Views:
11,791
Posted By
Whonoze
Re: Pathological complete response
10 years out from my PCR!!!
Forum:
her2group
07-07-2017, 08:16 AM
Replies:
16
Anyone Stage IV De Novo With 10+ Years NED?
Views:
15,663
Posted By
Whonoze
Re: Anyone Stage IV De Novo With 10+ Years NED?
Thank you!!
Forum:
her2group
07-06-2017, 07:07 AM
Replies:
31
12 years, but who is counting?
Views:
22,920
Posted By
Whonoze
Re: 12 years, but who is counting?
Fantastic! Congrats!
Forum:
her2group
07-06-2017, 07:02 AM
Replies:
16
Anyone Stage IV De Novo With 10+ Years NED?
Views:
15,663
Posted By
Whonoze
Anyone Stage IV De Novo With 10+ Years NED?
I've been amazingly lucky with my treatment response and have been NED for over 10 years after being Stage IV de novo with mets to liver and bones.
I had one course of chemo with Herceptin and...
Forum:
her2group
05-10-2017, 09:16 AM
Replies:
15
twelve years !
Views:
7,282
Posted By
Whonoze
Re: twelve years !
Congratulations!!!!
Forum:
her2group
03-02-2017, 09:51 PM
Replies:
14
ANDI'S STORY 1995 - 2017 and still going strong
Views:
12,559
Posted By
Whonoze
Re: ANDI'S STORY 1995 - 2017 and still going strong
That's wonderful!! I have been on Herceptin for 10 years and am afraid to go off. I was Stage IV de novo and was NED at the end of my first round of chemo.
So very glad to hear how well you're...
Forum:
her2group
02-02-2017, 07:23 PM
Replies:
45
Port or No Port?
Views:
21,029
Posted By
Whonoze
Re: Port or No Port?
No port. 10 years and still using the same vein, which I have named Old Faithful.
Forum:
her2group
12-20-2016, 03:06 PM
Replies:
40
15 years stage IV - no drugs in 8yrs - still NED
Views:
20,494
Posted By
Whonoze
Re: 15 years stage IV - no drugs in 8yrs - still NED
Congratulations!!
Good to hear about the Herceptin. I've been on for almost 10 years and am afraid to go off.
Celebrate!!
Forum:
her2group
11-16-2016, 05:31 PM
Replies:
13
DCIS & her2+?
Views:
7,020
Posted By
Whonoze
Re: DCIS & her2+?
I was already on Herception for Stage IV when I got DCIS. I had a lumpectomy and then a double mastectomy, which my surgeon did not want to perform and tried to talk me out of.
Almost 10 years...
Forum:
Herceptin / Tykerb
11-01-2016, 04:06 PM
Replies:
14
Herception
Views:
12,293
Posted By
Whonoze
Re: Herception
Sorry. That was intended as a reply to Donna's post.
Forum:
Herceptin / Tykerb
11-01-2016, 04:05 PM
Replies:
14
Herception
Views:
12,293
Posted By
Whonoze
Re: Herception
I'm in the same wonderful situation. Have been on Herceptin since January 2007. I think about going off but don't want to risk it. My heart has been holding out so far.
My onc leaves it to me,...
Forum:
her2group
10-23-2016, 04:32 PM
Replies:
40
Acupuncture for Neuropathy
Views:
15,906
Posted By
Whonoze
Re: Acupuncture for Neuropathy
I had pins and needles in my hand due to pinched nerve in my upper spine. It went on for months and did not respond to PT. I went to acupuncture 4 times, and it was gone.
Forum:
her2group
10-19-2016, 08:13 AM
Replies:
18
Stage IV and totally stressed
Views:
6,430
Posted By
Whonoze
Re: Stage IV and totally stressed
Sounds like you're doing great!! Keep it up.
Forum:
her2group
10-18-2016, 06:26 AM
Replies:
18
Stage IV and totally stressed
Views:
6,430
Posted By
Whonoze
Re: Stage IV and totally stressed
I've been living with Stage IV since diagnosis almost 10 years ago. It is not a death sentence, and new treatments are being developed all the time.
So, focus on those of us Stage IVers that...
Forum:
her2group
10-03-2016, 07:43 PM
Replies:
18
No rant JUST the facts...
Views:
7,403
Posted By
Whonoze
Re: No rant JUST the facts...
I got 3 or 4 treatments of IV iron when mine was low. It seemed to help, and I don't recall any bad side effects.
Forum:
her2group
08-07-2016, 06:46 PM
Replies:
5
Better odds if stage 4 at dx??
Views:
5,481
Posted By
Whonoze
Re: Better odds if stage 4 at dx??
Here's one study: Survival differences among women with de novo stage IV and relapsed breast cancer
Forum:
her2group
08-04-2016, 06:44 PM
Replies:
6
Heart health for stage 4
Views:
4,912
Posted By
Whonoze
Re: Heart health for stage 4
I walk every other day. It really seems to keep it high.
Forum:
her2group
07-21-2016, 09:09 PM
Replies:
21
Long-term Herceptin: How many and how's it effecting your life?
Views:
10,383
Posted By
Whonoze
Re: Long-term Herceptin: How many and how's it effecting your life?
I'm 9 1/2 years on Herceptin. I was thinking of going off at 10 but decided not to rock the boat because there's really no data.
Forum:
her2group
06-15-2016, 07:11 PM
Replies:
17
11 years for me!!
Views:
5,703
Posted By
Whonoze
Re: 11 years for me!!
Congratulations!!!! Yes, the bad dream gets distant but is always present.
Forum:
her2group
05-26-2016, 06:54 PM
Replies:
36
12 years Stage 4 - Still A-OK
Views:
18,189
Posted By
Whonoze
Re: 12 years Stage 4 - Still A-OK
Congratulations! Wonderful!
Forum:
her2group
05-19-2016, 08:31 AM
Replies:
15
10 year survivor
Views:
6,047
Posted By
Whonoze
Re: 10 year survivor
Big congrats!!!! We have a lot to be grateful for!!
Forum:
her2group
05-13-2016, 06:28 AM
Replies:
45
Looking for hope
Views:
29,112
Posted By
Whonoze
Re: Looking for hope
Benk: I completely agree with Colleen's "keep moving" advice. Remission from Stage IV is possible. I had Taxotere, Herceptin and Carboplatin in 2007 and have been in remission since completing...
Forum:
her2group
03-03-2016, 10:15 AM
Replies:
15
The metastatic breast cancer alliance
Views:
8,369
Posted By
Whonoze
Re: The metastatic breast cancer alliance
I filled out the forms. Was so glad to learn about the project.
Showing results 1 to 25 of 41
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