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Posts Made By:
Joy
Forum:
her2group
04-29-2009, 05:08 PM
Replies:
23
Wednesday night prayers coming from me too
Views:
4,119
Posted By
Joy
Wednesday night prayers coming from me too
It is funny how quickly we can gain a habit. At least this is a healthy one. Every wednesday, once i realize it is wednesday-you know how that is-i hope, I kick it in for all of us.
I have been...
Forum:
her2group
04-01-2009, 10:21 AM
Replies:
12
Hi gang
Views:
2,671
Posted By
Joy
Hi gang
I have missed you all. I had to take a break for two reasons. The first because I was without internet again (those bills, you know) and because I just needed a cancer break-duh-don't we all.
I...
Forum:
her2group
03-04-2009, 08:42 AM
Replies:
34
In 25 minutes
Views:
3,945
Posted By
Joy
Thank you All and Becky, Mary Jo...
brush up on your Spanish cause I like the way you are thinking!!!
Forum:
her2group
03-03-2009, 03:43 PM
Replies:
34
In 25 minutes
Views:
3,945
Posted By
Joy
well color me surprised
Thank you so much for all the vibes-i think they helped. The E/C/H combo has caused regression of liver activity by 30-40%. I am pleased, as is the doc. So since I had 4 Epirubicins recently and 4...
Forum:
her2group
03-03-2009, 11:13 AM
Replies:
34
In 25 minutes
Views:
3,945
Posted By
Joy
In 25 minutes
I go see the onc about my latest CT from a week ago. I have had 4 rounds of Epirubicin/Cytoxan/Herceptin for the stupid liver business. My stomach is doing flip-flops. I just hate these visits and...
Forum:
her2group
03-03-2009, 11:05 AM
Replies:
127
Devastated - told weeks!!!
Views:
15,654
Posted By
Joy
lots of love
to all of you Eric. I think your continued research and tenacity have potential to help this situation. Not to mention the power of love, which you have exhibited so beautifully for so long. I am...
Forum:
her2group
03-03-2009, 11:02 AM
Replies:
26
Scanxiety!!!!!!
Views:
3,493
Posted By
Joy
You are always in my good thoughts
but I will amp it up today. I, too, think things sound very good for you and I am TH-rilled that this has gone so well for you. DM-1 gave me headaches more so than plain old herceptin. I am glad...
Forum:
Herceptin / Tykerb
02-12-2009, 09:12 AM
Replies:
8
Using old treatments - Again
Views:
1,817
Posted By
Joy
Glad you brought this up
and happy to see the responses. My onc had also said after two years it is worth a try. I feel like we are so alike in these things. I am currantly on Epirubicin (basically...
Forum:
her2group
02-12-2009, 09:04 AM
Replies:
19
Birthday Girl!!!!
Views:
2,515
Posted By
Joy
Thank you Mary Ann
For bringing attention to a special day. Happy Day to you Kim! May this year bring so much goodness to you and yours.
Forum:
her2group
02-12-2009, 09:02 AM
Replies:
3
Can I just say...
Views:
1,532
Posted By
Joy
Can I just say...
That checking in today was such a pleasure. Laurie-he is beautiful and perfect, must be like his parents and CONGRATULATIONS! Those newborn days are so special and I hope you relish it and soak it...
Forum:
her2group
02-12-2009, 08:56 AM
Replies:
13
ixempra or her2 drugs?
Views:
2,091
Posted By
Joy
thinking of you both
Just wanted to reaffirm the herceptin decision as data shows it still helps despite progression (my situation currently). And I wanted to say that you and Caryn are such a team, such fighters and my...
Forum:
her2group
02-09-2009, 11:13 AM
Replies:
32
One year brain-ned
Views:
4,096
Posted By
Joy
Yay!
You are always one of my beacons of hope Flori and I am so very happy for you and your brains! You deserve NED! Thank you for sharing and ENJOY!
Forum:
her2group
02-09-2009, 11:11 AM
Replies:
69
Need your prayers...
Views:
10,447
Posted By
Joy
of course
extra prayers coming your way! WE will be waiting to hear!
Forum:
her2group
02-09-2009, 11:09 AM
Replies:
11
Needing Help and my frustration and pain
Views:
1,755
Posted By
Joy
Just agreeing with everyone else. I don't have...
Just agreeing with everyone else. I don't have any kind of "vibe" that this is over for you at all. I think seeking help at the other institutions is wise and necessary. I have good feelings and...
Forum:
her2group
02-09-2009, 11:07 AM
Replies:
108
~Rich66~Update on Mom If You have A Moment
Views:
12,801
Posted By
Joy
just wanted to say
that I hope you are finding some time to care for yourself as you are taking such great care of your parents. It is so heartwarming-all that you are doing. I just want you to know that we are out...
Forum:
her2group
02-06-2009, 11:00 AM
Replies:
30
Hi guys
Views:
3,840
Posted By
Joy
Hi guys
I'm here and thank you for thinking about me. I have been in a physical and mental funk for awhile. I definitely feel fatigued from E/C and I don't like it at all. Last week I developed a really...
Forum:
her2group
01-08-2009, 06:54 AM
Replies:
108
~Rich66~Update on Mom If You have A Moment
Views:
12,801
Posted By
Joy
anxiously waiting
for any news and sending lots of love to you and your mom.
Forum:
her2group
01-07-2009, 04:54 PM
Replies:
14
a couple of random questions
Views:
2,193
Posted By
Joy
you guys are so quick
Thank you for the responses! I haven't been having a lot of pain, which I should've mentioned. Yesterday after weekly H, I had a smidge and then after checking the boards here, I started thinking...
Forum:
her2group
01-07-2009, 12:14 PM
Replies:
14
a couple of random questions
Views:
2,193
Posted By
Joy
a couple of random questions
My busy little brain is always generating those and I know there aren't always answers, but I am asking anyway. When drugs cause pain at the tumor site, is that a sign that they are working or is it...
Forum:
Herceptin / Tykerb
01-07-2009, 12:01 PM
Replies:
17
Tykerb stopped working
Views:
3,512
Posted By
Joy
I so empathize
Julie, I really understand your frustration and pain, emotional that is. Just when some of our hopes and dreams are coming true-cancer reaches in and sucks some of the joy out of it. It makes me...
Forum:
her2group
01-01-2009, 12:37 PM
Replies:
9
Having hope for all in 2009
Views:
1,780
Posted By
Joy
Having hope for all in 2009
I wanted to start the new year by expressing my absolute pure love for all of you! This is a swelling from my heart that I feel quite often and felt that it should be shared. Please spend your New...
Forum:
her2group
01-01-2009, 12:09 PM
Replies:
12
Our New Year's Wish For All
Views:
1,459
Posted By
Joy
To your whole family
Thank you for your well put wishes and for all you have done to build this community and continue to grow it with compassion and knowledge. My wishes for your family's health and prosperity run deep!
Forum:
her2group
12-20-2008, 10:29 AM
Replies:
13
Christmas Miracle
Views:
1,468
Posted By
Joy
Thank you
Your post is so exciting and I am so happy for you. In addition, and this speaks to the nature of this website, you gave me hope today. I needed that. So for what it is worth, your news is a great...
Forum:
her2group
12-18-2008, 08:19 AM
Replies:
35
~Mighty Oak~Gamma Knife Prayer Request For 12/19/08
Views:
2,402
Posted By
Joy
Marie!
I ALWAYS pray for your strength as well as Ed's health. You two need each other. So consider it all covered. Ed-kick those buggers out of there! Marie-stay strong and find what makes you happy-you...
Forum:
her2group
12-08-2008, 11:07 AM
Replies:
24
Scanarama update
Views:
2,146
Posted By
Joy
so very happy to hear
Hi Chrisy, I am elated for your news! I hope you are too. And I hope you are caught up on breathing and caloric intake-the seem pretty necessary. Thank you also for your wonderful words and I...
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