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Showing results 1 to 25 of 110
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Posts Made By:
Vicki revised
Forum:
Herceptin / Tykerb
01-18-2013, 08:43 PM
Replies:
12
Start, stop, start, stop
Views:
8,932
Posted By
Vicki revised
Re: Start, stop, start, stop
Thanks everyone. Over the holidays I got an acute case of stomatitis (mouth sores) that was even in my throat. I cooked a big meal Christmas which the family enjoyed while I ate the teaspoon of...
Forum:
her2group
01-18-2013, 08:10 PM
Replies:
25
Did you lose or gain weight while on chemo?
Views:
3,360
Posted By
Vicki revised
Re: Did you lose or gain weight while on chemo?
I have a high metabolism but while on chemo I gain 10 lbs max due to my carb addiction. Then I lose it. Steroids don't make a difference. Onc encourages me to gain weight in anticipation of times...
Forum:
her2group
10-05-2012, 06:48 PM
Replies:
6
side effects question
Views:
1,534
Posted By
Vicki revised
Re: side effects question
I had trigger finger which started several months after starting Herceptin. Crazy name for a stuck thumb.
Forum:
Herceptin / Tykerb
10-05-2012, 06:44 PM
Replies:
12
Start, stop, start, stop
Views:
8,932
Posted By
Vicki revised
Start, stop, start, stop
This is my X/T routine since we can't get these side effects manageable. Today is day 5 on nothing and the trots are back in full force and my feet are worse. Anyone else have this much difficulty...
Forum:
Herceptin / Tykerb
10-05-2012, 06:39 PM
Replies:
6
Xeloda and Tykerb
Views:
9,911
Posted By
Vicki revised
Re: Xeloda and Tykerb
I really, really recommend the Bliss gloves and socks from Ulta.
Forum:
her2group
10-05-2012, 06:28 PM
Replies:
14
Praying...
Views:
1,942
Posted By
Vicki revised
Re: Praying...
Just read the board so I'm praying for good news for you from your scans, Penny.
Forum:
Herceptin / Tykerb
10-03-2012, 11:13 PM
Replies:
6
Xeloda and Tykerb
Views:
9,911
Posted By
Vicki revised
Re: Xeloda and Tykerb
Been of and on for a month, 2 attempts. Due to the side effects my dr stopped both twice do I could get control of the intense, constant diarrhea and nausea/vomiting. Also this round I've got the...
Forum:
her2group
09-22-2012, 10:57 PM
Replies:
15
Blurry Vision
Views:
3,217
Posted By
Vicki revised
Re: Blurry Vision
Steroids will really mess with your vision, as well as Herceptin.
Forum:
her2group
09-22-2012, 10:56 PM
Replies:
30
HER2 Incidence by Geographical Location
Views:
3,719
Posted By
Vicki revised
Re: HER2 Incidence by Geographical Location
I was unable to check the hormone recep questions. Im ER/PR - andvim in Alabama
Forum:
her2group
09-21-2012, 07:05 PM
Replies:
33
Check the ANNOUNCEMENT on t-dm1 - Plus EAP sites UPDATES
Views:
9,172
Posted By
Vicki revised
Re: Check the ANNOUNCEMENT on t-dm1 - Plus EAP sites updates
Thanks for the update . I'm anxiously hoping for Atlanta, Birmingham, DC, or Gainesville (Mayo or Shands) since we have family/friends in those areas I could stay with.
Forum:
Herceptin / Tykerb
09-16-2012, 05:09 PM
Replies:
4
Neuropathy in feet
Views:
4,256
Posted By
Vicki revised
Neuropathy in feet
Are paraffin baths ok to use for neuropathy? I knew the answer to this once, can't remember now. LOL
Forum:
her2group
09-13-2012, 08:32 PM
Replies:
11
Scan results
Views:
1,475
Posted By
Vicki revised
Re: Scan results
That's great news! As Tim Gunn says, make sure to use accessories wisely!
Forum:
her2group
09-05-2012, 06:32 PM
Replies:
59
Gammaknife, Tykerb...reality check
Views:
15,288
Posted By
Vicki revised
Re: Gammaknife, Tykerb...reality check
Denise, Tykerb is fickle. When I took it in the spring I had no side effects. I've been on it over a week now with intense nausea, cramps and sudden intense diarrhea several times day and night. ...
Forum:
Herceptin / Tykerb
08-29-2012, 02:38 AM
Replies:
11
Bad scan--progression to lymph nodes
Views:
13,720
Posted By
Vicki revised
Re: Bad scan--progression to lymph nodes
Thanks for taking time to wish me well. I had a regular appt w/ surgeon today. There are several affected nodes so surgery isnt an option.
Forum:
Herceptin / Tykerb
08-24-2012, 06:26 PM
Replies:
11
Bad scan--progression to lymph nodes
Views:
13,720
Posted By
Vicki revised
Re: Bad scan--progression to lymph nodes
Thanks all. I've recovered from my anxiety. Yes, I plan to pursue TDM1 availability. From what I can tell the nearest trial site is 4 hrs away. Unfortunatly, Alabama doesn't require insurance...
Forum:
Herceptin / Tykerb
08-23-2012, 02:33 PM
Replies:
11
Bad scan--progression to lymph nodes
Views:
13,720
Posted By
Vicki revised
Re: Bad scan--progression to lymph nodes
Thanks everyone. It's impossible for "civilians" to understand the importance of targeted drugs to us with Her2+++ and why I'm taking this so hard. I'm so pissed off at cancer right now. I know it...
Forum:
her2group
08-23-2012, 11:35 AM
Replies:
11
$$ For Stage IV Sisters
Views:
3,556
Posted By
Vicki revised
Re: $$ For Stage IV Sisters
Once you are officially disabled you can withdraw funds from an IRA or 401k without paying the early withdrawal penalty ( but it is taxable). I did that on one of my IRAs that wasn't earning much...
Forum:
her2group
08-23-2012, 11:24 AM
Replies:
11
$$ For Stage IV Sisters
Views:
3,556
Posted By
Vicki revised
Re: $$ For Stage IV Sisters
I was told by the local office my benefits would start 5 months from the last day I worked but in fact they were retroactive to 5 months from the date of stage 4 dx. Less than 3 wks after I applied...
Forum:
Herceptin / Tykerb
08-23-2012, 10:50 AM
Replies:
11
Bad scan--progression to lymph nodes
Views:
13,720
Posted By
Vicki revised
Bad scan--progression to lymph nodes
Just got my pet scan results & the Abraxane and Herceptin aren't working. "marked" progression in liver AND now in lymph nodes around liver and right kidney. And my tumor markers, which normally...
Forum:
her2group
08-02-2012, 01:23 PM
Replies:
50
Good News...Bad News...Okay News
Views:
5,392
Posted By
Vicki revised
Re: Good News...Bad News...Okay News
God bless Denise! Your attitude and determination are amazing and inspirational.
Vicki
Forum:
her2group
07-25-2012, 08:25 PM
Replies:
81
Brain Mets &%$#$!! :(
Views:
14,307
Posted By
Vicki revised
Re: Brain Mets &%$#$!! :(
Those mets don't know who they are messing with!
Forum:
her2group
07-25-2012, 08:18 PM
Replies:
7
Can of Worms
Views:
1,889
Posted By
Vicki revised
Re: Can of Worms
I receive SS disability and will be eligible for Medicare in March. Like Sheila I will be able to keep my existIng insurance as the primary with Medicare as secondary. There are many issues and...
Forum:
her2group
07-25-2012, 05:43 PM
Replies:
81
Brain Mets &%$#$!! :(
Views:
14,307
Posted By
Vicki revised
Re: Brain Mets &%$#$!! :(
Denise:
I'm so sorry you are going thru this! It's ok to be sad; you did all you were supposed to, and then some and this enemy of ours does not fight fair. It's time to reload and fight. You...
Forum:
her2group
07-06-2012, 10:07 PM
Replies:
21
Is this aa bad sign?
Views:
4,271
Posted By
Vicki revised
Re: Is this aa bad sign?
A couple of years ago, prior to bc, I was on steroids for 2 months due to a severe allergic reaction. I currently get decadron iv 2x/week and have had the same se with and without cancer: weight...
Forum:
her2group
07-04-2012, 06:16 PM
Replies:
9
Taxotere, carboplatin are done...
Views:
1,525
Posted By
Vicki revised
Re: Taxotere, carboplatin are done...
Congrats on the complete response!! TCH was really rough for me, but so worthwhile-- I too had big success and went from stage 4 with liver mets to NED/remission with it. I can relate to both your...
Showing results 1 to 25 of 110
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