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Posts Made By:
annmask
Forum:
her2group
06-04-2013, 02:31 PM
Replies:
64
kadcyla side effects
Views:
18,311
Posted By
annmask
Re: kadcyla side effects
Cat, I too have an adopted child- age 16 now from China. She was 11 months old when I adopted her, and 2 when I had the DCIS and mastectomy. I had my second miracle with the biological birth of my...
Forum:
her2group
06-03-2013, 07:19 AM
Replies:
64
kadcyla side effects
Views:
18,311
Posted By
annmask
Re: kadcyla side effects
Do you know if those drugs are effective for us HER2 ladies? Trials have focused on triple neg or basel cell bc.....
Thanks for your warm and encouraging words!
Ann
Forum:
her2group
06-02-2013, 06:56 PM
Replies:
64
kadcyla side effects
Views:
18,311
Posted By
annmask
Re: kadcyla side effects
Tykerb quit working for me quite some time ago have had it in various combos over the years, and usually get 3-5 months out of it. On to the next BBB busting targeted drug (I hope!). Kadcyla does...
Forum:
her2group
05-31-2013, 09:09 PM
Replies:
64
kadcyla side effects
Views:
18,311
Posted By
annmask
Re: kadcyla side effects
I am going a bit non-conventional as I am not interested at all in WBR. I will have partial brain radiation to my cerebellum and brain stem. The largest and most active mets are in that area, and...
Forum:
her2group
05-31-2013, 08:17 PM
Replies:
64
kadcyla side effects
Views:
18,311
Posted By
annmask
Re: kadcyla side effects
It seems like s/e are different for many of us. I have had 3 doses of Kadcyla, and have headache and fluish symptoms on and of the first week. I feel fatigued the first 2 weeks, well the 3rd. All...
Forum:
her2group
04-20-2013, 05:46 PM
Replies:
5
synergism of herceptin+pertuzumab and their effect on bc stem cells IDd
Views:
1,451
Posted By
annmask
Re: synergism of herceptin+pertuzumab and their effect on bc stem cells IDd
It was only approved as a first line of treatment, and many of us needing it have had many lines of treatment. Basically, the FDA is only approving drugs under the narrow parameters of the trial,...
Forum:
her2group
04-11-2013, 03:54 PM
Replies:
20
Tdm1/kadcyla and Tykerb
Views:
5,034
Posted By
annmask
Re: Tdm1/kadcyla and Tykerb
Just wondering what dose of Tykerb you take with Kadcyla, and how it is going?
Forum:
General Cancer News
04-10-2013, 04:59 AM
Replies:
5
Genentech’s T-DM1 Phase III study on HER2-positive mBC meets primary endpoint
Views:
2,275
Posted By
annmask
Re: Genentech’s T-DM1 Phase III study on HER2-positive mBC meets primary endpoint
The problem of crossing bbb continues to be problematic, but Kadcyla is a wonderful new life extender, and QOA improver for us. We are all very grateful to have this option, and angry that it took...
Forum:
her2group
04-05-2013, 06:33 PM
Replies:
19
TDM1/Kadcyla Experiences
Views:
8,056
Posted By
annmask
Re: TDM1/Kadcyla Experiences
Well I am an Ann as well, and I really need to get my profile up to date on here! I have had noticeable regression in my lymph node size on TDM. Unfortunately my brain scan this week went poorly. ...
Forum:
her2group
03-22-2013, 09:54 AM
Replies:
20
Tdm1/kadcyla and Tykerb
Views:
5,034
Posted By
annmask
Re: Tdm1/kadcyla and Tykerb
This is very exciting! Kudos to your ins. co., and to your creative oncologist! I had a great response in my brain to Avastin, and wish there was a way to combine that with Kadcyla. The diarrhea...
Forum:
her2group
03-17-2013, 05:01 PM
Replies:
2
TDM-1 Kadcyla anyone?
Views:
2,326
Posted By
annmask
Re: TDM-1 Kadcyla anyone?
Thanks- I have a hard time using this site and did not see that. I see that many others experience s/e as well, but not as bad as the other chemos....It can be amazingly effective, and I say go for...
Forum:
her2group
03-17-2013, 11:57 AM
Replies:
2
TDM-1 Kadcyla anyone?
Views:
2,326
Posted By
annmask
TDM-1 Kadcyla anyone?
I started this awesome long awaited drug on Monday. Now, after a week, the lymph node under my arm is noticeably smaller, and my lungs feel better. It has not been without side effects, but I...
Forum:
her2group
02-16-2013, 08:17 PM
Replies:
389
Calling all stage iv sisters
Views:
168,599
Posted By
annmask
Re: Calling all stage iv sisters
Thanks Jackie! I will work on it tomorrow. Thanks so much for keeping track of all this!
Forum:
her2group
02-11-2013, 08:51 AM
Replies:
389
Calling all stage iv sisters
Views:
168,599
Posted By
annmask
Re: Calling all stage iv sisters
OK, I updated it, but it seems to not appear anywhere. I like the way many on this site seem to have their hx automatically appear with posts. Sorry I am a bit lame regarding this site. Thanks for...
Forum:
her2group
02-11-2013, 08:43 AM
Replies:
389
Calling all stage iv sisters
Views:
168,599
Posted By
annmask
Re: Calling all stage iv sisters
Thanks! I was thinking of it as my profile, and did not look for signature. I updated it, and will work on the format, then try to attach it to my profile.
Forum:
her2group
02-10-2013, 12:22 PM
Replies:
389
Calling all stage iv sisters
Views:
168,599
Posted By
annmask
Re: Calling all stage iv sisters
I would like to update my profile, but can not figure out how...I find this site very difficult to navigate. Could someone please point me in the right direction? I like the way many members have...
Forum:
Clinical Trials
12-13-2011, 07:54 PM
Replies:
22
Johns Hopkins Her2 Vaccine Trial
Views:
16,073
Posted By
annmask
Re: Johns Hopkins Her2 Vaccine Trial
Do you have to be NED to qualify for this trial? What is the name of the trial, then we could look it up to scan for the details. I am so happy to hear that you are doing so well!
Forum:
her2group
12-13-2011, 07:26 PM
Replies:
18
Update on Me/New trial
Views:
3,367
Posted By
annmask
Re: Update on Me/New trial
Hi Kim in DC. I hope that you are well n your way to NED on your new trial. I wonder what the drugs are, what pathways they intercept etc. I am considering a trial of 2 drugs together called...
Forum:
her2group
12-07-2011, 03:29 PM
Replies:
22
FDA Blocks Life-Saving Cancer Drug Rally
Views:
4,132
Posted By
annmask
Re: FDA Blocks Life-Saving Cancer Drug Rally
I agree that the lack of support from advocacy groups for us stage 4 folks is really upsetting. Their explanation refers to the problem of women in the late 90's being given radical stem cell...
Forum:
her2group
11-29-2011, 08:38 AM
Replies:
19
Two important things for HER2+ people to sign
Views:
3,126
Posted By
annmask
Re: Two important things for HER2+ people to sign
Thanks KDR! I am lame at electronics unfortunately, so thanks for the post. I hope the way I started the thread here was the best way to reach the most people on this site......please feel free to...
Forum:
her2group
11-28-2011, 08:44 AM
Replies:
19
Two important things for HER2+ people to sign
Views:
3,126
Posted By
annmask
Re: Two important things for HER2+ people to sign
I am not sure what is the best way/place to start a thread on this site to get it to the most people.....can nyone help me with this?
Forum:
her2group
11-27-2011, 02:31 PM
Replies:
19
Two important things for HER2+ people to sign
Views:
3,126
Posted By
annmask
Two important things for HER2+ people to sign
We in Boston, with the inspiration and hard work of Phil, are staging a rally in front of City Hall in Boston on December 6 at 11:30 AM. We will have a petition there regarding access to TDM-1. ...
Forum:
Herceptin / Tykerb
11-17-2011, 08:47 AM
Replies:
23
? about Tykerb Duration
Views:
7,903
Posted By
annmask
Re: ? about Tykerb Duration
Once TDM-1 is made available, you could try a lower dose, or a diferent scheule. I am so frustrated by how long this drug is taking to reach us! May you continue to be ned until there is a real...
Forum:
her2group
11-14-2011, 05:16 PM
Replies:
5
Focus group study for metastatic gals
Views:
1,318
Posted By
annmask
Re: Focus group study for metastatic gals
Great! Thanks for the info. There is a MBC site called Team Inspire that may be interested as well. I will post there.
Forum:
Herceptin / Tykerb
11-06-2011, 07:15 PM
Replies:
23
? about Tykerb Duration
Views:
7,903
Posted By
annmask
Re: ? about Tykerb Duration
I wonder why Barbara went from TDM1 to Tykerb and Herceptin? You say that youremain NED, which is awesome, but I wonder why the change?
Showing results 1 to 25 of 37
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