HER2 Support Group Forums
>
Search Forums
Search Results
User Name
Remember Me?
Password
Register
Gallery
FAQ
Members List
Calendar
Today's Posts
Search
Search Forums
Show Threads
Show Posts
Advanced Search
Search Gallery
Advanced Search
Go to Page...
Page 1 of 5
1
2
3
>
Last
»
Showing results 1 to 25 of 104
Search took
0.01
seconds.
Search:
Posts Made By:
Roz
Forum:
her2group
08-26-2008, 12:08 AM
Replies:
24
Skin mets - IMPORTANT new info
Views:
4,931
Posted By
Roz
I had firstly a little bump on the scar line. It...
I had firstly a little bump on the scar line. It was like a cyst, but it didn't weep. I got antibiotics for it for 2 weeks, then my GP sent me back to surgeon who excised it in his rooms. Came back...
Forum:
her2group
08-23-2008, 10:35 PM
Replies:
33
Not What I wanted to hear
Views:
3,176
Posted By
Roz
Sheila, How lucky you were to get 12 months out...
Sheila,
How lucky you were to get 12 months out of Taxol! Give your body a bit of a rest from the big guns if you can so that your body has the strength to fight fight fight.
Forum:
her2group
06-24-2008, 08:19 PM
Replies:
7
Sad News-Jane McGrath
Views:
6,241
Posted By
Roz
Jane McGrath
We are all feeling sad after Jane's death. It brings death so much closer to us as individuals. Becky, Jane was diagnosed in 1997, but did not have a recurrence until 2002. She and her well known...
Forum:
Herceptin / Tykerb
06-08-2008, 07:34 PM
Replies:
2
Progressed on Tykerb, now Taxotere/Herceptin
Views:
1,591
Posted By
Roz
Progressed on Tykerb, now Taxotere/Herceptin
Hi, Just wanted to update my treatment regime. I had MRSA in early Feb 08 and dropped Xeloda to help me recover. I went to Venice and environs 3 weeks later and while I was away i started to get a...
Forum:
Herceptin / Tykerb
04-20-2008, 08:30 PM
Replies:
5
Crusty nose with Tykerb
Views:
1,506
Posted By
Roz
Crusty nose with Tykerb
Has anyone else experienced a crusty nose while on Tykerb? It is similar to the Herceptin crusty nose, but didn't appear until I had been on Tykerb 6 months. This was the same with Herceptin.
Forum:
her2group
04-17-2008, 06:25 PM
Replies:
26
Cognitive - Is anyone experiencing this
Views:
3,854
Posted By
Roz
I agree. I think maybe we suffer from a sort of...
I agree. I think maybe we suffer from a sort of Post Traumatic Stress Syndrome. As someone who has experienced several recurrences I find it gets worsw. At present, I am trying to deal with Social...
Forum:
Herceptin / Tykerb
04-13-2008, 01:10 AM
Replies:
1
Tykerb and nothing else!
Views:
1,610
Posted By
Roz
Tykerb and nothing else!
Hi, Just wanted to toss around my feelings about doing Tykerb without Xeloda. I was admitted to hospital at the beginning of February with MRSA (staph) infection kindly (?) given to me by the...
Forum:
her2group
03-10-2008, 08:22 PM
Replies:
45
Do you ever wonder WHY?
Views:
4,360
Posted By
Roz
Ceesun, You didn't cause your cancer. There are...
Ceesun, You didn't cause your cancer. There are some things that we human beings haven't achieved yet, and there are a million things that we have no control over. At this stage in human evolution,...
Forum:
Herceptin / Tykerb
01-18-2008, 08:35 PM
Replies:
4
Kristi from SFBay-re: how long does Tykerb take to work?
Views:
1,644
Posted By
Roz
Hi Kristi, You probably would find out a lot of...
Hi Kristi,
You probably would find out a lot of info by looking back at past posts on this subject. There are many!! I had to cease the combo for a week as my side effects were quite severe, but...
Forum:
Herceptin / Tykerb
01-17-2008, 09:14 PM
Replies:
5
Anyone on full dose (5)Tykerb w/Herceptin?
Views:
1,967
Posted By
Roz
Hi Brenda, I'm not sure what is meant by the...
Hi Brenda,
I'm not sure what is meant by the cutaneous toxicity being a reflection of Erb1 inhibition as opposed to Erb2. I have still got a rash (quite pronounced) after reaching what I regard as...
Forum:
her2group
01-15-2008, 10:27 PM
Replies:
31
48th birthday today
Views:
2,414
Posted By
Roz
Happy Birthday Jackie!! Here's to many more, with...
Happy Birthday Jackie!! Here's to many more, with the help of Herceptin~! Looking good!!
Forum:
her2group
01-11-2008, 01:54 AM
Replies:
24
A Reason to SMILE through all of this
Views:
2,365
Posted By
Roz
Hey Sheila! Keep on smilin'. Warm Regards Roz
Hey Sheila! Keep on smilin'.
Warm Regards
Roz
Forum:
Herceptin / Tykerb
01-06-2008, 11:11 PM
Replies:
36
Port Problems
Views:
16,273
Posted By
Roz
Hi, I have had my port in almost 3 years, and I...
Hi, I have had my port in almost 3 years, and I don't get a blood return anymore.As I am now on Tykerb, I have the port flushed every 6 weeks. No problems. It took about 2-3 months for the site...
Forum:
Herceptin / Tykerb
01-04-2008, 02:10 AM
Replies:
26
Tykerb only
Views:
5,604
Posted By
Roz
Hi, While I am on the T/X combo, I am pleased to...
Hi, While I am on the T/X combo, I am pleased to announce NED scans today!! I am on 4 and a half Tykerb tabs and still have the rash on my arms. Adrien, I was interested that you are still...
Forum:
her2group
12-21-2007, 09:04 PM
Replies:
37
Christmas Greetings Thread
Views:
3,424
Posted By
Roz
Season's Greetings
Hi All,
We are enjoying a humid festive season. As I write the cicadas are outside thrumming up a storm. My daughter and her husband have gone to get prawns and oysters and other crustecans for Xmas...
Forum:
her2group
12-13-2007, 03:18 AM
Replies:
29
Progression; New Triple Combo Wednesday
Views:
2,940
Posted By
Roz
Thinking of you Lolly, and I have got my fingers...
Thinking of you Lolly, and I have got my fingers crossed for you
Forum:
Herceptin / Tykerb
12-09-2007, 06:11 PM
Replies:
29
Severe reaction to 1st dose of Herceptin
Views:
7,680
Posted By
Roz
Hi, I'm not sure where you are in Austalia, I...
Hi,
I'm not sure where you are in Austalia, I am in Sydney and had my first Herceptin injection (back in Jan 2005) at St Vincent's. They gave it to me over 1 and a half hours, and i had a severe...
Forum:
Herceptin / Tykerb
12-08-2007, 02:40 AM
Replies:
35
T/X combo has knocked the socks off me.
Views:
5,526
Posted By
Roz
Becca, I have been on Tykerb since 5th...
Becca, I have been on Tykerb since 5th October,and was off it for a week on week 4. Started back on a reduced dose of 3, then 3 and a half, then 4 then 4 and a half. Onc wants me to have CT scan next...
Forum:
Herceptin / Tykerb
12-08-2007, 02:33 AM
Replies:
8
Tykerb rash/A very good day
Views:
2,197
Posted By
Roz
Hi Vanessa, I have a constant rash on my right...
Hi Vanessa,
I have a constant rash on my right arm (side of mastecotomy) and on the back of both of my hands. I put it down to slowly increasing the Tykerb. The body just gets ready to let the rash...
Forum:
her2group
11-22-2007, 02:07 AM
Replies:
22
So long for now................................
Views:
3,376
Posted By
Roz
So sorry
We who have suffered sooo much--surely it is we who should be the most humble?? No one can speak for anyone else, they can ONLY talk about their own experiences. sorry it has come to this, marejo,...
Forum:
Herceptin / Tykerb
11-20-2007, 10:25 PM
Replies:
35
T/X combo has knocked the socks off me.
Views:
5,526
Posted By
Roz
re Xeloda
Sorry Elizabeth, I meant to type 2000mgm daily.!! of Xeloda.
Forum:
Herceptin / Tykerb
11-20-2007, 02:02 AM
Replies:
35
T/X combo has knocked the socks off me.
Views:
5,526
Posted By
Roz
update
Hi All,
I have upped my dose of Tykerb to 4 a day and reduced the Xeloda to 2000mgm a day. I notice in the trials it was 2000mgm per day, so why has it been upped to 3000mgm, can anyone tell me?
I...
Forum:
Herceptin / Tykerb
11-07-2007, 11:04 PM
Replies:
5
Tykerb & Liver Enzymes
Views:
1,817
Posted By
Roz
I am sorry that I cannot help you, but I remember...
I am sorry that I cannot help you, but I remember Esther said that her liver enzymes went up, and I think a few others. Perhaps you can look back through the posts (or put in Tykerb liver enzymes in...
Forum:
her2group
11-07-2007, 02:04 AM
Replies:
22
CT scan clear 26 months NED after liver met
Views:
2,598
Posted By
Roz
I am so happy for you Jackie. It must feel so...
I am so happy for you Jackie. It must feel so encouraging to know you have got so far. Keep up the good work.
Forum:
Herceptin / Tykerb
11-07-2007, 01:55 AM
Replies:
35
T/X combo has knocked the socks off me.
Views:
5,526
Posted By
Roz
side effects
Hi Vanessa,
My oncologist said that they are seeing it in almost everybody. As my hospital has only got to dispense the EAP in the last few months, they are able to keep tabs on how people are...
Showing results 1 to 25 of 104
Page 1 of 5
1
2
3
>
Last
»
Forum Jump
User Control Panel
Private Messages
Subscriptions
Who's Online
Search Forums
Forums Home
her2group
Herceptin / Tykerb
Caregivers Corner
Diet and Nutrition
Inflammatory Breast Cancer
Keeping Your Mind Off of BC
Profiles In Courage
My Healthcare Team
Clinical Trials
Articles of Interest
Events and Social Calendar
Breast Cancer Meeting Highlights
General Cancer News
Breast Cancer News
Breast Cancer Newsfeed
All times are GMT -7. The time now is
11:02 PM
.