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Posts Made By:
conomyself
Forum:
her2group
02-05-2017, 08:21 AM
Replies:
34
Perjeta Side-Effects
Views:
11,233
Posted By
conomyself
Re: Perjeta Side-Effects
High pH water resolved the issue for me. 9.5 or higher pH. I drink at least a quart of it per day and it relieves both water retention and diarrhea.
Forum:
her2group
01-05-2017, 01:02 PM
Replies:
12
Stage 4, 4 1/2 year update - still stable/got divorced/dating with a port
Views:
4,788
Posted By
conomyself
Re: Stage 4, 4 1/2 year update - still stable/got divorced/dating with a port
"And I don't think my diagnosis is or should be a deal breaker. I'm certainly not going to make that decision for the new friend or lover. They can decide for themselves." I like that Amy!
And...
Forum:
her2group
01-05-2017, 09:34 AM
Replies:
12
Stage 4, 4 1/2 year update - still stable/got divorced/dating with a port
Views:
4,788
Posted By
conomyself
Re: Stage 4, 4 1/2 year update - still stable/got divorced/dating with a port
Hi Tiffany, I am so glad for you that you can do most of what you did before :).
I am not saying that being in a relationship is better than not being in one, or that it's something people should...
Forum:
her2group
01-01-2017, 07:47 AM
Replies:
12
One Simple Improvement
Views:
5,038
Posted By
conomyself
Re: One Simple Improvement
A gel filled ergo mat helped me with doing dishes and cooking. But I feel it's better yet to eradicate dish washing :)
Forum:
her2group
01-01-2017, 07:36 AM
Replies:
12
Stage 4, 4 1/2 year update - still stable/got divorced/dating with a port
Views:
4,788
Posted By
conomyself
Re: Stage 4, 4 1/2 year update - still stable/got divorced/dating with a port
Yes Catherine I agree with you and Steph. I try to reserve my energy to fuel my dreams, not to serve others' convenience :)
Forum:
her2group
12-28-2016, 07:23 AM
Replies:
12
Stage 4, 4 1/2 year update - still stable/got divorced/dating with a port
Views:
4,788
Posted By
conomyself
Re: Stage 4, 4 1/2 year update - still stable/got divorced/dating with a port
Yes Steph, i feel that precisely is the key. Thank you for the reply.
Forum:
her2group
12-27-2016, 12:18 PM
Replies:
12
Stage 4, 4 1/2 year update - still stable/got divorced/dating with a port
Views:
4,788
Posted By
conomyself
Stage 4, 4 1/2 year update - still stable/got divorced/dating with a port
Hi everyone, I haven't been on for a long time -- I have a lot of news I'd like to share.
A lot has happened since my initial dx - stage 4, *very* bad... I had so much cancer I went to see a...
Forum:
her2group
12-27-2016, 10:03 AM
Replies:
68
Boosting Your Immune System - share your ideas
Views:
33,887
Posted By
conomyself
Re: Boosting Your Immune System - share your ideas
Happiness.
https://www.scientificamerican.com/article/how-happiness-boosts-the-immune-system/
Forum:
her2group
12-27-2016, 09:55 AM
Replies:
40
15 years stage IV - no drugs in 8yrs - still NED
Views:
21,084
Posted By
conomyself
Re: 15 years stage IV - no drugs in 8yrs - still NED
Keep on rockin' Steph!! Thanks for being you and inspiring us!!
Forum:
her2group
12-27-2016, 09:52 AM
Replies:
45
In Praise of Perjeta
Views:
26,126
Posted By
conomyself
Re: In Praise of Perjeta
I have been stable on Herceptin and Perjeta alone for 4 years. I also use medical cannabis, so maybe that is helping but there is no way for me to be certain.
I used to have chronic diarrhea also...
Forum:
her2group
03-25-2014, 12:59 PM
Replies:
8
Steroids and sleeping
Views:
2,012
Posted By
conomyself
Re: Steroids and sleeping
I know exactly what you mean. Everyone's different but for me Xanax did not put a dent in steroid insomnia, but also I only took a .5 gram dosage.
The first night it happened the Xanax didn't...
Forum:
her2group
03-09-2014, 07:03 PM
Replies:
12
Hi I'm new
Views:
2,440
Posted By
conomyself
Re: Hi I'm new
I would check it at home, and then if I thought it was high make an appointment with my primary care doc because the nurse takes blood pressure manually. That's the only way that I really trust.
...
Forum:
her2group
03-09-2014, 06:46 PM
Replies:
14
Really scared please help
Views:
3,190
Posted By
conomyself
Re: Really scared please help
In January I spoke to a top notch breast cancer only oncologist, my second opinion specialist.
I am on Herceptin and Perjeta and it is keeping me stable. I have been avoiding starting Tamoxifen...
Forum:
her2group
03-09-2014, 06:27 PM
Replies:
6
Herceptin and Perjeta
Views:
2,566
Posted By
conomyself
Re: Herceptin and Perjeta
I get very slight flu like symptoms the day of infusion. Do you get premeds? I don't but I know my friend needs pre-treatment with Benadryl. Or maybe just taking a Benadryl when you get home might...
Forum:
her2group
01-19-2014, 08:56 AM
Replies:
6
Occult (silent, asymptomatic) brain metastases in her2+ patients
Views:
3,024
Posted By
conomyself
Re: Occult (silent, asymptomatic) brain metastases in her2+ patients
Thank you Steph. I make sure I get brain scans, one way or another I do what I have to do to get the doctor to order them.
Forum:
her2group
01-09-2014, 10:38 AM
Replies:
35
Tsh low -- what does it mean?
Views:
7,116
Posted By
conomyself
Re: Tsh low -- what does it mean?
This is great Andi! And I'm glad you found an endo you like.
Love,
Rachael
Forum:
her2group
12-13-2013, 02:23 PM
Replies:
1
Juno, Drs. Ridell and Press, Radioimmunotherapty
Views:
1,365
Posted By
conomyself
Re: Juno, Drs. Ridell and Press, Radioimmunotherapty
Thank you Karen! I'm so excited about this therapy - I think it's the biggest breakthrough out there!
I read in the article that they have plans to try it on lung cancer in 2014 and then other...
Forum:
her2group
12-11-2013, 10:41 PM
Replies:
7
More Hope of a Cure!
Views:
1,854
Posted By
conomyself
Re: More Hope of a Cure!
Thank you Andi, for the link and for the compliment :) :) :)
http://www.upworthy.com/doctors-take-a-long-shot-and-inject-modified-hiv-into-dying-girl-the-reason-why-will-amaze-you?g=2
I think...
Forum:
her2group
12-11-2013, 03:32 PM
Replies:
7
More Hope of a Cure!
Views:
1,854
Posted By
conomyself
Re: More Hope of a Cure!
Andi, wasn't it you who posted the video of a doctor who did a treatment on a little boy with leukemia? It was a lot like this, the boy passed out for a couple days straight and then woke up without...
Forum:
her2group
12-11-2013, 11:17 AM
Replies:
17
Getting the ball rolling
Views:
3,009
Posted By
conomyself
Re: Getting the ball rolling
This sounds like such an exciting and promising treatment, Penny! I think it will be just the thing for you!
Love,
Rachael
Forum:
her2group
12-11-2013, 11:13 AM
Replies:
50
Hema is an angel now
Views:
8,466
Posted By
conomyself
Re: Hema is an angel now
I'm so sorry Pibikay. My thoughts and prayers are with you.
Love,
Rachael
Forum:
her2group
12-08-2013, 08:51 PM
Replies:
7
More Hope of a Cure!
Views:
1,854
Posted By
conomyself
More Hope of a Cure!
This is amazing and exciting... I hope they start trying out this treatment on solid tumors soon!
http://www.cnn.com/2013/12/07/health/cohen-cancer-study/index.html
Love,
Rachael
Forum:
her2group
11-23-2013, 07:08 PM
Replies:
189
NEDenise Has Died
Views:
39,960
Posted By
conomyself
Re: NEDenise Has Died
Andi, that is an amazing, wonderful idea!!!
Denise said that she wanted to live to write a book..........well, maybe SHE DID!!!
Mtngirl, your post was so beautiful I cried (again).
Love,
Forum:
her2group
11-23-2013, 12:28 AM
Replies:
35
Poll:
ER-/PR- HER2 staging poll
Views:
44,588
Posted By
conomyself
Re: ER-/PR- HER2 staging poll
Hi Astrid, sorry I didn't see the ER-/PR-. I voted, but I am triple positive -- maybe you can remove my vote? I selected the 5th option, diagnosed at stage 4.
Rachael
Forum:
her2group
11-23-2013, 12:22 AM
Replies:
6
Stage IV and Metastatic members-do you have weekly or every three week treatments
Views:
2,194
Posted By
conomyself
Re: Stage IV and Metastatic members-do you have weekly or every three week treatments
Caroline, I am also on a 3 week schedule.
Here is the U.S. FDA Herceptin label, maybe there is one for your country too?
...
Showing results 1 to 25 of 100
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