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Posts Made By:
Odette
Forum:
Herceptin / Tykerb
08-10-2007, 12:22 PM
Replies:
4
Tykerb dosing schedule
Views:
2,078
Posted By
Odette
bad keyboard so l cannot say more
continuously with no break
Forum:
her2group
08-08-2007, 09:05 AM
Replies:
17
Consult scheduled re brain mets
Views:
2,607
Posted By
Odette
Dear Kate, I grew up with the metric system...
Dear Kate,
I grew up with the metric system
5mm = * just about this asteric in 36 font I believe.
I'll double checked at home but it is about as small as we can have/theysee these pesky...
Forum:
her2group
08-08-2007, 08:59 AM
Replies:
7
Thank Heavens and Earth
Views:
1,506
Posted By
Odette
Faxed my results to MSKCC
Thank you for your notes friends!
Kate, Nikki, Lolly, Adriana, Caya, Mary Jo, you understand they were really not good results but not horrific either!
Lolly I looked at your previous posts about...
Forum:
her2group
08-08-2007, 08:38 AM
Replies:
6
Weekend from H, E, Double Hockey Sticks!!!
Views:
1,088
Posted By
Odette
Oh Nikki, what a weekend you had! I wish...
Oh Nikki,
what a weekend you had! I wish you the very very best with the Xeloda. Hope it gets approved ASAP.
Wish I had some advice for you, all I have to offer is my prayers!
My keyboard...
Forum:
her2group
08-07-2007, 04:04 PM
Replies:
7
Thank Heavens and Earth
Views:
1,506
Posted By
Odette
Thank Heavens and Earth
Dear Beautiful Friends,
There is no new terrible news regarding my scans!
Thank you for all your encuaragement and prayers!
The lung nodules are a little bit larger by 1mm each dimension and...
Forum:
her2group
08-06-2007, 05:15 PM
Replies:
11
Scans tomorrow; scared but want to be brave
Views:
1,854
Posted By
Odette
Sandy Helped me Today Too!
Thank you friends for you wonderful notes!
It helped getting through my day. I'm at the library now, this morn I dumped a full cup of coffee on my keyboard as I was positioning the cup on a...
Forum:
her2group
08-06-2007, 04:44 PM
Replies:
39
MRI revealed brain mets
Views:
2,834
Posted By
Odette
Admire Your Spirit!
Dear Kate,
you are going strong! I think you and I have a similar attitude and believe that there must be a point where we can stop this beast! We just have to hang in there, do the next thing...
Forum:
her2group
08-05-2007, 06:16 PM
Replies:
11
Scans tomorrow; scared but want to be brave
Views:
1,854
Posted By
Odette
Scans tomorrow; scared but want to be brave
Friends,
I'd love to hear your opinions! Who else in the world can understand how devastated I can be when I try to plan just a little bit for the future and I am facing the totally unknown.
...
Forum:
her2group
08-05-2007, 04:36 PM
Replies:
30
Good news update - still NED after FIVE years
Views:
3,851
Posted By
Odette
Just in time for me!
Dearest Steph,
you give me so much encouragement! You have had a long road in the last five years and this is the best news - every one of us with mets want to hear!
Keep the faith, keep going...
Forum:
her2group
07-29-2007, 10:46 AM
Replies:
27
Brain Mets, WBR & MRI
Views:
3,609
Posted By
Odette
Dear Nicola, you have been through so much...
Dear Nicola,
you have been through so much and you have so much going on, small wonder you feel like the world is spinning with you!
I reassure you it is very coherent what you wrote! I do not...
Forum:
her2group
07-28-2007, 09:44 PM
Replies:
11
To remove or not to remove
Views:
1,833
Posted By
Odette
My Beautiful Friend Mary
Dear Kriss,
I had a friend who had breast cancer first then considered oophorectomy, her doctor advised her against it.
She was a pediatrician herself but against her better judgement went...
Forum:
her2group
07-22-2007, 09:33 AM
Replies:
10
Question about turmeric
Views:
1,830
Posted By
Odette
Take Turmeric? yess! While on chemo? NO
Hi Brenda, Rhonda, Jean, Sherry, Kay, Sarah,
I found some relevant info on turmeric, thank you for inspiring me to do this research!
Here I quote:
Curcumin, the main ingredient of turmeric and...
Forum:
her2group
07-21-2007, 05:11 PM
Replies:
10
Question about turmeric
Views:
1,830
Posted By
Odette
Good Question
Hi Brenda, Rhonda,
I've seen the possible anti cancer effect research on turmeric which is the active ingredient in the spice Curry. At that time I tried to figure out how much I should use...
Forum:
Herceptin / Tykerb
07-21-2007, 04:57 PM
Replies:
10
gemzar - the truth?
Views:
2,698
Posted By
Odette
Oh Flori, I've been on vacation but have...
Oh Flori,
I've been on vacation but have been thinking of you a lot. Dealing with a harsh chemo's side effects is so hard! I do remember how i got resentful even just thinking about the n e x...
Forum:
Herceptin / Tykerb
07-21-2007, 10:14 AM
Replies:
16
Tykerb/Xeloda - Not Working
Views:
3,549
Posted By
Odette
Similar Situation Plan: HKI 272
Hi Mike,
I ran out of town to visit my children after my recurrence (lungs, nodes)
so I did not see your post.
I had Tykerb Xeloda only for 10 weeks and had a rescan which showed progression....
Forum:
her2group
07-13-2007, 11:34 AM
Replies:
60
The Breast Cancer Diet (with checklist)
Views:
24,852
Posted By
Odette
Karla, I have been wondering about this...
Karla,
I have been wondering about this myself!
What I try to do: add the olive oil at the end to the steamed or cooked food.
Odette
Forum:
Herceptin / Tykerb
07-13-2007, 07:29 AM
Replies:
17
Tykerb/Xeloda dosing
Views:
3,996
Posted By
Odette
Did you see the link on my previous post?
Michelle,
I'm printing the summary for my oncologist right now. I'd like to be on the one week on one week off schedule.
Best,
Odette
Forum:
Herceptin / Tykerb
07-12-2007, 07:44 AM
Replies:
0
Are You Coming to the Philadelphia Conference?
Views:
1,693
Posted By
Odette
Are You Coming to the Philadelphia Conference?
I've just decided to definitely go to the Philadelphia conference.
I would love to know if any of you friends from here are going to be there, it would be fun to meet up, wouldn't it?
I'm looking...
Forum:
Herceptin / Tykerb
07-11-2007, 05:05 PM
Replies:
5
Nervous about CT and Bone yes, but no PET Scan
Views:
2,050
Posted By
Odette
CT Was Enough to Show Progression
Hi,
Your note was very helpful. I did ask my onc about the Pet scan and he explained that every three months the CT and only every 6 months the Pet would be sufficient as long as I remain in...
Forum:
her2group
07-07-2007, 10:11 PM
Replies:
27
I Am So Upset
Views:
3,668
Posted By
Odette
Brave Warrior Woman!
Flori,
I love those pictures! I know you don't want to be a hero, but for some reason you were chosen to be one.
You are my hero.
For writing, for posting your pictures, for trying to figure...
Forum:
her2group
07-05-2007, 07:23 PM
Replies:
13
Tykerb/Xeloda didn't work...very scared
Views:
1,844
Posted By
Odette
Hi Eric, Here are some links that I was just...
Hi Eric,
Here are some links that I was just studying today from the Chicago Oncology Conference.
I know these are still trials, but maybe you can use some of this info when talking to Caryn's...
Forum:
Herceptin / Tykerb
07-05-2007, 07:00 PM
Replies:
17
Tykerb/Xeloda dosing
Views:
3,996
Posted By
Odette
New Research On Xeloda Dosing
Hello Friends,
At the Chicago Clinical Oncology Conference they reported about this trial.
I have heard about it before: the main idea is that you take a slightly higher dose of Xeloda for one...
Forum:
her2group
07-05-2007, 10:50 AM
Replies:
18
sharing good news
Views:
2,056
Posted By
Odette
Dear Adriana, I don't know if this is the...
Dear Adriana,
I don't know if this is the advice you want to hear, but your oncologist is busy and he is right it is not likely (to end up as ovarian c), but it is possible.
When I had concerns...
Forum:
Herceptin / Tykerb
07-05-2007, 10:03 AM
Replies:
7
Coincidence? Weird symptoms during Xeloda OFF week
Views:
1,851
Posted By
Odette
Markers may not be true indicators
Flori,
remember markers can be relevant, but they can be off too as I understand the research about them.
I fully believe you can still have good PET results!
Your question is whether to take 4...
Forum:
Herceptin / Tykerb
07-05-2007, 06:38 AM
Replies:
7
Coincidence? Weird symptoms during Xeloda OFF week
Views:
1,851
Posted By
Odette
Similar Side Effects on Ty/Xe
Hi Brenda,
I just get the second one that you mention:
the sores on the tongue seems to start by the end of the second week on the Xeloda, and slowly clear up on my week off. I take it as a...
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