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Posts Made By:
turbo
Forum:
her2group
04-18-2013, 07:37 PM
Replies:
165
update I hate to give (with a little more positive spin)
Views:
27,157
Posted By
turbo
Re: update I hate to give (with a little more positive spin)
Thank you for being an inspiration and always positive ..you have inspired many. prayers are out for some more magic and time.
Forum:
her2group
02-21-2012, 09:45 AM
Replies:
389
Calling all stage iv sisters
Views:
170,165
Posted By
turbo
Re: Calling all stage iv sisters
stage !V lung mets 5years on Herception only NED
Forum:
her2group
09-17-2010, 08:32 PM
Replies:
46
Positive stories, please come out of the woods
Views:
10,961
Posted By
turbo
Re: Positive stories, please come out of the woods
I have not posted for quite awhile....want to spread hope with more positive stories. I was first diagnosed in '98
dcis ,then 2003 stage 3..then lung mets 2006.....stable 3yrs and now NED on...
Forum:
Profiles In Courage
07-18-2010, 11:17 PM
Replies:
10
Any lung mets survivors??
Views:
23,996
Posted By
turbo
Re: Any lung mets survivors??
I am one that hasn't been online for awhile...too busy living active life! Lung mets for almost 4 years..er +...NED on herceptin for 1 +1/2 yrs
working part-time,healthy eating and excercise...
Forum:
Herceptin / Tykerb
01-18-2009, 11:05 AM
Replies:
8
advice on herceptin/xeloda combo/
Views:
2,472
Posted By
turbo
thanks sheila same regimen i am on only 3500...
thanks sheila same regimen i am on only 3500 xeloda a day ...seems high ,I weigh 137 , dose is supposed to correlate to. I Know my doc will reduce if I have side effects...I have been on 6 days and...
Forum:
Herceptin / Tykerb
01-15-2009, 12:39 AM
Replies:
8
advice on herceptin/xeloda combo/
Views:
2,472
Posted By
turbo
Thanks ...sounds encouraging!
Thanks ...sounds encouraging!
Forum:
her2group
01-04-2009, 01:55 PM
Replies:
10
Avastin & Xoloda
Views:
2,160
Posted By
turbo
what dose of xeloda were you on...hoping to avoid...
what dose of xeloda were you on...hoping to avoid HFS due to walking being part of my work!
Forum:
her2group
01-04-2009, 01:54 PM
Replies:
10
Avastin & Xoloda
Views:
2,160
Posted By
turbo
xeloda dose
starting xeloda and wondering what the lowest dose that is reccommended to avoid HFS is?
Forum:
Herceptin / Tykerb
01-03-2009, 11:14 AM
Replies:
8
advice on herceptin/xeloda combo/
Views:
2,472
Posted By
turbo
advice on herceptin/xeloda combo/
I will be going off a phase 1 trial of Tykerb escalated dose . I have done well on tykerb for almost 2 years...stable(first 16 mo. w/avastin) Any progression in phase one means need to go off and I...
Forum:
Herceptin / Tykerb
12-27-2008, 12:15 PM
Replies:
17
tykerb se
Views:
3,102
Posted By
turbo
I have been on Tykerb for 21 months and take an...
I have been on Tykerb for 21 months and take an hour after breakfast so less nausea also late right at bedtime. Have never had any illness from it . My diet affects mild nausea...keep something in...
Forum:
Herceptin / Tykerb
07-29-2008, 11:44 PM
Replies:
18
Tykerb side effects
Views:
2,860
Posted By
turbo
Sorry, I was vague on that posting...I do eat a...
Sorry, I was vague on that posting...I do eat a small amt. of Dark choc....Also I have organic yogurt every morning with fresh fruit!
Forum:
Herceptin / Tykerb
07-29-2008, 11:40 PM
Replies:
18
Tykerb side effects
Views:
2,860
Posted By
turbo
I agree...My diet low sugar,dairy(dark choc. of...
I agree...My diet low sugar,dairy(dark choc. of course!) white flour, meat ..no processed foods! Also many small meals! So far doing well on Tykerb.
Forum:
her2group
07-27-2008, 03:21 PM
Replies:
47
Update on me
Views:
5,371
Posted By
turbo
Thanks for passing that article on...I am...
Thanks for passing that article on...I am currently on Trial at UcSf ..targeted Therapy!
Forum:
Herceptin / Tykerb
07-15-2008, 10:29 AM
Replies:
10
Tykerb and turning yellow/ dark skin?
Views:
2,573
Posted By
turbo
I have been on Tykerb 1 1/2 years...no skin...
I have been on Tykerb 1 1/2 years...no skin discoloration!
Forum:
Herceptin / Tykerb
07-14-2008, 10:41 PM
Replies:
18
Tykerb side effects
Views:
2,860
Posted By
turbo
I wish I read your question sooner but have not...
I wish I read your question sooner but have not checked postings for a while. I have been on Tykerb for 18 months with very little side effects. No rashes and very infrequent diarrhea which I...
Forum:
Herceptin / Tykerb
05-28-2008, 03:56 PM
Replies:
3
herceptin/aromasin
Views:
1,429
Posted By
turbo
Thanks for your input...I have been on Arimidex...
Thanks for your input...I have been on Arimidex in the past with no side effects...does aromasin have any side effects due to being a steroid?
Forum:
Herceptin / Tykerb
05-27-2008, 05:29 PM
Replies:
3
herceptin/aromasin
Views:
1,429
Posted By
turbo
herceptin/aromasin
Has anyone been on this Herceptin?Aromisin combo? I am coming off a very good year+ on the tykerb/avastin trial ...stable. My Doc suggests this or a new trial for Accellerated dose Tykerb...
Forum:
her2group
03-31-2008, 12:28 PM
Replies:
13
Another fingernail post....permanent damage
Views:
1,896
Posted By
turbo
sounds crazy, but I got gel nails after a year of...
sounds crazy, but I got gel nails after a year of cracked sore nails and skin..completely against my purest philosophy of using only natural products, but so far no sore or cracked skin...the fake...
Forum:
her2group
02-12-2008, 12:02 PM
Replies:
2
Tykerb with Avastin
Views:
918
Posted By
turbo
I have been on this Trial for since 3/07 with...
I have been on this Trial for since 3/07 with minor side effects and great energy...after the first 2 treatments 30%decrease in lung met....stable! good luck!
Forum:
her2group
02-12-2008, 11:57 AM
Replies:
29
New offensive is underway!
Views:
3,254
Posted By
turbo
so glad to hear you started this trial...we are...
so glad to hear you started this trial...we are so lucky to be near UCSF...prayers for great results!
Forum:
Herceptin / Tykerb
01-27-2008, 11:43 PM
Replies:
26
Tykerb only
Views:
5,604
Posted By
turbo
I am on the tykerb/ avastin trial and have no...
I am on the tykerb/ avastin trial and have no fatigue,occasional rash(rare) a little nausea after the pills for a short time...rare diarhea,nail cracking and sore. Is tykerb approved to be used alone?
Forum:
her2group
01-22-2008, 10:51 AM
Replies:
47
Update on me
Views:
5,371
Posted By
turbo
chrisy, glad to hear about an exciting new...
chrisy, glad to hear about an exciting new treatment. I am still on The Tykerb/avastin trial...so far so good.I know that can change at any time so good to hear about this new trial!
Showing results 1 to 22 of 22
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