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Posts Made By:
StephN
Forum:
her2group
03-31-2021, 01:04 PM
Replies:
13
Tip Toe2
Views:
11,643
Posted By
StephN
Re: Tip Toe2
For those of you who are wondering about TipToe and if she ever began her rounds I have sad news.
Jen passed away on New Years Eve 2021. I only know it was something sudden, but do not have any...
Forum:
her2group
10-26-2020, 06:37 PM
Replies:
3
ELISA Test
Views:
4,971
Posted By
StephN
Re: ELISA Test
Here is a link to information on the Her2 Elisa serum test.
https://www.labcorp.com/tests/480136/her-2-i-neu-i-quantitative-elisa
Forum:
her2group
10-26-2020, 06:27 PM
Replies:
10
5 years later, In honor of my mother..
Views:
7,721
Posted By
StephN
Re: 5 years later, In honor of my mother..
Hello to Penny's daughter. How brave of you to find the strength to find your way to this web site and visit your mother as we knew her. She was a tower of strength as she posted her cancer life...
Forum:
Clinical Trials
09-25-2020, 09:32 PM
Replies:
3
New Vaccine trial for stage 4 patients
Views:
8,550
Posted By
StephN
Re: New Vaccine trial for stage 4 patients
Hello Laura,
I have removed some old messages so you can send me a private message now. Sorry you did not remain in remission, but I am sure with the current choices you will get there again.
Forum:
her2group
09-23-2020, 11:02 PM
Replies:
10
Sticky:
The beginnings of HER2Support
Views:
51,420
Posted By
StephN
Re: The beginnings of HER2Support
Robert, some stage 4 patients are seeing very long remissions, even going off treatment. There are a few that I personally know, like myself. I do feel cured, being stage 4 since 2002. There is...
Forum:
Clinical Trials
09-23-2020, 10:57 PM
Replies:
3
New Vaccine trial for stage 4 patients
Views:
8,550
Posted By
StephN
New Vaccine trial for stage 4 patients
This is new as of earlier this year. Perhaps a little slow in recruiting due to Covid-19, but they are forging ahead now and open for participants. Taking place at the Cancer Vaccine Institute in...
Forum:
her2group
09-23-2020, 10:53 PM
Replies:
2
New vaccine trial for stage 4 patients
Views:
4,719
Posted By
StephN
New vaccine trial for stage 4 patients
Hello everyone.
I want to let you know about a new vaccine trial that is being offered at the Cancer Vaccine Institute of the University of Washington. Back in 2012/13 I participated in a vaccine...
Forum:
her2group
09-23-2020, 10:46 PM
Replies:
5
Just accepted into clinical trial
Views:
5,749
Posted By
StephN
Re: Just accepted into clinical trial
Very interesting trial! Can you post a link so others can see where it is being offered? All the best that this will be a great approach for you.
Forum:
her2group
09-23-2020, 10:43 PM
Replies:
11
It's Been Awhile
Views:
10,416
Posted By
StephN
Re: It's Been Awhile
Kim in CT! So glad you looked in. I ran across an email exchange we had a while back when you were being worked up for another problem. Hope that turned out OK, as we are WAY behind! Warm hugs to...
Forum:
her2group
06-01-2020, 05:35 PM
Replies:
15
15 years later
Views:
11,704
Posted By
StephN
Re: 15 years later
Good to connect back with some of the "old timers" here! We can be a tough bunch. Keep well, and do what you can to Wage Peace.
Forum:
Articles of Interest
05-27-2020, 08:42 PM
Replies:
2
A few words about N95 respirator
Views:
4,165
Posted By
StephN
Re: A few words about N95 respirator
Thank you. Not all face masks/coverings are created equal!
Forum:
her2group
05-27-2020, 08:33 PM
Replies:
15
15 years later
Views:
11,704
Posted By
StephN
Re: 15 years later
AA -
I am around. Same home phone. Same email address. Love to hear from you.
Forum:
Diet and Nutrition
04-06-2020, 10:40 PM
Replies:
32
Coronavirus - is low vitamin D a factor - vitamin D and respiratory conditions
Views:
20,870
Posted By
StephN
Re: Coronavirus - is low vitamin D a factor - vitamin D and respiratory conditions
Thanks, We live in western Washington State, early in the spread in the USA. Have hardly been out since the end of January! Our state was the first to shut down. We are making good progress in...
Forum:
Diet and Nutrition
04-04-2020, 10:53 PM
Replies:
32
Coronavirus - is low vitamin D a factor - vitamin D and respiratory conditions
Views:
20,870
Posted By
StephN
Re: Coronavirus - is low vitamin D a factor - vitamin D and respiratory conditions
Thanks you ever so much for chiming in with all of this information.
I had read about the possible link to low vitamin D and the virus course, but you have taken it much, much further.
Forum:
her2group
04-04-2020, 10:45 PM
Replies:
15
15 years later
Views:
11,704
Posted By
StephN
Re: 15 years later
Thanks for the post Kitty. Very nice to know more of us are still kicking.
Hey there AA!
So good to "see" you checking in. Great to hear you have shed some weight that vexed you for so long. ...
Forum:
her2group
03-23-2020, 07:15 PM
Replies:
22
ENHERTU aka DS8401A
Views:
17,643
Posted By
StephN
Re: ENHERTU aka DS8401A
Coming in on this a bit behind the good news, but this is JUST what I needed! So happy that the pain and suffering is worth the results. You just lucked out to get this new drug and blaze a new...
Forum:
her2group
03-23-2020, 06:57 PM
Replies:
11
It's Been Awhile
Views:
10,416
Posted By
StephN
Re: It's Been Awhile
Well, that is just the pits! I have learned that sometimes surgeons are in their own box and don't take the time to look at all the angles.
Could you still ride your horse? Hope you could!
We...
Forum:
her2group
02-21-2020, 01:31 AM
Replies:
12
Site problem?
Views:
9,562
Posted By
StephN
Re: Site problem?
Is anyone still seeing the "not secure" message? I don't have it.
Forum:
her2group
10-09-2019, 06:38 PM
Replies:
12
Site problem?
Views:
9,562
Posted By
StephN
Re: Site problem?
Huh. I don't see anything like that on my screen. But I did notice that I had to keep putting in my password when I log on as it would not save. Have now changed pass so will see if that helps.
Forum:
her2group
10-01-2019, 11:19 PM
Replies:
3
Lasker award to Drs Slamon, Ullrich, Shepard
Views:
4,713
Posted By
StephN
Re: Lasker award to Drs Slamon, Ullrich, Shepard
Great post with honors to our Herceptin researcher heros. I know I am still here because of their work. I will give them an award every hour of every day of my life.
Forum:
her2group
10-01-2019, 11:16 PM
Replies:
12
Site problem?
Views:
9,562
Posted By
StephN
Re: Site problem?
Where are you ladies seeing the "unsecure site" message?
Forum:
Breast Cancer News
09-18-2019, 06:42 PM
Replies:
2
FDA --Breast Implant Associated Lymphoma
Views:
14,649
Posted By
StephN
Re: FDA --Breast Implant Associated Lymphoma
One of my high school classmates is having to have her implants removed and replaced due to a recall. She is very tired of all these changes and the renewed fear that something that was supposed to...
Forum:
her2group
08-15-2019, 10:39 PM
Replies:
235
Sticky:
Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastases)
Views:
231,008
Posted By
StephN
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase
KathyT, you are rounding another bend in a long road. Sorry you have to take that path, but there is a lot of helpful info in this long thread. You may want to ask about a two-pronged approach. ...
Forum:
her2group
07-15-2019, 09:58 PM
Replies:
72
Whack-a-mole next...
Views:
46,839
Posted By
StephN
Re: Whack-a-mole next...
Looking in to say a big hello and see how the Whacking is going. There are improvements in this form of treatment all the time.
Take care and enjoy your days and those "swing dance" evenings!
Forum:
her2group
06-23-2019, 04:23 PM
Replies:
72
Whack-a-mole next...
Views:
46,839
Posted By
StephN
Re: Whack-a-mole next...
Whack, whack, whack! Go after as many lesions as your team will engineer. Go shrink your tumor load.
I have never had intravenous Alpha Lipoic Acid, but I have taken a 300 mg tablet that also has...
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