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Posts Made By:
Muldoonmom
Forum:
Herceptin / Tykerb
08-29-2007, 10:01 AM
Replies:
24
Tykerb/Xeloda in England
Views:
5,584
Posted By
Muldoonmom
Magic Mouthwash Formula
Hi Jakki,
Sorry I'm so late in getting the magic mouthwash formula to you.... I was away on vacation and am just getting organized again.
Here it is:
Nystatin Oral Suspension: 60 ml...
Forum:
Herceptin / Tykerb
07-08-2007, 05:46 AM
Replies:
9
Tykerb Update
Views:
1,762
Posted By
Muldoonmom
Dear Esther, Your great, wonderful, super news...
Dear Esther,
Your great, wonderful, super news is so encouraging to me!!!! Enjoy every moment. And celebrate!
Forum:
Herceptin / Tykerb
07-08-2007, 05:20 AM
Replies:
24
Tykerb/Xeloda in England
Views:
5,584
Posted By
Muldoonmom
Hi Jakki, I do get mouth sores but mainly my...
Hi Jakki,
I do get mouth sores but mainly my tongue gets very patchy and sore. I use something we call Magic Mouthwash - it is a prescription and I have no idea what is in it!! But it really...
Forum:
Herceptin / Tykerb
07-05-2007, 05:31 PM
Replies:
28
Depression and Herceptin? Treatments?
Views:
5,988
Posted By
Muldoonmom
Hi Susan, I've been on Herceptin for almost 8...
Hi Susan,
I've been on Herceptin for almost 8 years (weekly) and yes, I do have depression. I started taking a very low dose (25 mg daily) of Zoloft about 6 years ago (after my 2nd lung mets) and...
Forum:
Herceptin / Tykerb
07-05-2007, 03:11 PM
Replies:
7
Getting Discouraged
Views:
2,343
Posted By
Muldoonmom
Thanks, Ladies, for your dosage advice. I did...
Thanks, Ladies, for your dosage advice. I did reduce from 5 to 4 pills in May. When I see the doc next week, I'll ask him about going to 3 pills a day. Maybe that will work.
It feels so good to...
Forum:
Herceptin / Tykerb
07-04-2007, 08:02 PM
Replies:
7
Getting Discouraged
Views:
2,343
Posted By
Muldoonmom
Getting Discouraged
Hi All,
I've been up and down with side effects since I started Tykerb in May. The diarrhea seemed better for a while and then it hit me like a ton of bricks last Sunday night. It was so bad that I...
Forum:
Herceptin / Tykerb
06-07-2007, 09:33 PM
Replies:
5
Turning the corner!
Views:
2,369
Posted By
Muldoonmom
Hi Chris, It just feels so good to feel good...
Hi Chris,
It just feels so good to feel good again! I was getting discouraged because if I couldn't handle the tykerb/herceptin combo, I'm not sure what options I still had. I've been on so many...
Forum:
Herceptin / Tykerb
06-07-2007, 07:36 PM
Replies:
5
Turning the corner!
Views:
2,369
Posted By
Muldoonmom
Turning the corner!
I'm so happy to report that the side effects of Tykerb are finally starting to abate. The first time I started Tykerb in mid-April, my onc gave me my 5th Taxotere tx around day 5 and I crashed and...
Forum:
Herceptin / Tykerb
05-17-2007, 01:07 PM
Replies:
11
Tykerb Discussion with my onc
Views:
2,621
Posted By
Muldoonmom
Maybe you should just remain on Herceptin since...
Maybe you should just remain on Herceptin since it seems to be working for you. Eventually Tykerb will be more easily available...
Forum:
Herceptin / Tykerb
05-17-2007, 01:05 PM
Replies:
15
Who is on Tykerb/Herceptin?
Views:
2,525
Posted By
Muldoonmom
Carolyn, Thanks for your response! I'll let...
Carolyn,
Thanks for your response! I'll let you know how it goes.
Have you developed any of the facial rash? I also had that and I hope it doesn't return.
Forum:
Herceptin / Tykerb
05-17-2007, 12:25 PM
Replies:
11
Tykerb Discussion with my onc
Views:
2,621
Posted By
Muldoonmom
I also have CIGNA and they initially denied my...
I also have CIGNA and they initially denied my onc's treatment plan - tykerb w/out xeloda. Since I had already been on xeloda for nearly a year in 2003 and then had disease progression, he responded...
Forum:
Herceptin / Tykerb
05-17-2007, 12:16 PM
Replies:
15
Who is on Tykerb/Herceptin?
Views:
2,525
Posted By
Muldoonmom
Hi Carolyns, I am restarting tykerb tomorrow...
Hi Carolyns,
I am restarting tykerb tomorrow and restarting herceptin (after 8 1/2 years on it with various chemos) next Wednesday. I'm glad to hear that your side effects aren't too bad so far. I...
Forum:
Herceptin / Tykerb
05-03-2007, 09:10 PM
Replies:
8
Stopping Tykerb
Views:
3,131
Posted By
Muldoonmom
Sherry, I wasn't really sure if the severe (and...
Sherry,
I wasn't really sure if the severe (and I mean SEVERE) diarrhea I experienced was due to the tykerb. But based on your experience and others, I'm now sure that was it. DARN!!
Now I've...
Forum:
Herceptin / Tykerb
05-03-2007, 09:01 PM
Replies:
14
Tykerb Side Effects
Views:
4,448
Posted By
Muldoonmom
Hi, I did have another taxotere tx with the...
Hi,
I did have another taxotere tx with the Tykerb and the side effects were awful. That was 9 days ago. I stopped the tykerb for the time being while I recover from the side effects. So I'll...
Forum:
Herceptin / Tykerb
04-24-2007, 08:12 PM
Replies:
2
Tykerb
Views:
2,687
Posted By
Muldoonmom
Tykerb
Hi!
I just started tykerb last week. I've been on herceptin for 7 1/2 years and recently had pleural effusions in the right lung, adjacent lymph node mets, and probably a few small mets in the base...
Forum:
Herceptin / Tykerb
04-23-2007, 05:24 PM
Replies:
14
Tykerb Side Effects
Views:
4,448
Posted By
Muldoonmom
Tykerb Side Effects
Hi All,
I started Tykerb last Tuesday and I started experiencing pretty severe diarrhea the next day. With Imodium D, it abated for a few days and then hit me like a ton of bricks on Sunday morning...
Forum:
Herceptin / Tykerb
04-23-2007, 05:12 PM
Replies:
38
Has anyone else ordered Tykerb yet?
Views:
6,345
Posted By
Muldoonmom
Hi Esther, It took 3 weeks to finally get my...
Hi Esther,
It took 3 weeks to finally get my tykerb prescription filled but the problem was CIGNA - my onc prescribed it without Xeloda (I had already had 10 months of Xeloda about 6 years ago and...
Forum:
her2group
04-14-2007, 05:26 AM
Replies:
7
Xeloda or Navelbine?
Views:
1,942
Posted By
Muldoonmom
Hi, I have had both Xeloda (for 10 months) and...
Hi,
I have had both Xeloda (for 10 months) and Navelbine (for nearly a year.) I found both drugs to be relatively easy - certainly much easier than Taxol or Taxotere. I did develop foot problems...
Forum:
her2group
02-17-2007, 08:16 PM
Replies:
0
Herceptin and Heart Medication
Views:
810
Posted By
Muldoonmom
Herceptin and Heart Medication
Has anyone ever been prescribed a heart medication to take along with Herceptin if your ejection fraction (MUGA scan) has been too low? I can't remember the name of the medication - begins with a C...
Forum:
her2group
02-16-2007, 05:26 AM
Replies:
10
Status of Tykerb (Lapatinib) FDA Approval?
Views:
1,978
Posted By
Muldoonmom
Status of Tykerb
Thanks, Gals.
I am anxiously awaiting its approval - my doc has said that he will start me on it immediatly, along with Herceptin.
I'll check out the "pink sheet."
Debbie
Forum:
her2group
02-15-2007, 04:55 PM
Replies:
10
Status of Tykerb (Lapatinib) FDA Approval?
Views:
1,978
Posted By
Muldoonmom
Status of Tykerb (Lapatinib) FDA Approval?
Does anyone have any info on the current status/projected approval date and release of tykerb??? I'm anxiously awaiting its approval!
Thank you,
Debbie
Forum:
her2group
07-19-2006, 08:22 AM
Replies:
6
Pleural Effusion Treatment
Views:
1,759
Posted By
Muldoonmom
Thanks for the great information
Hi Judiek,
Again, Wow! Thank you for taking the time to send me that terrific article on pleuradesis. I see my onc tomorrow and feel so much better and better informed.
This is a great...
Forum:
her2group
07-18-2006, 06:54 AM
Replies:
22
Weekly versus 3 week Herceptin dose studies
Views:
3,089
Posted By
Muldoonmom
Weekly vs 3 Week Herceptin
I've been on weekly herceptin for 7 years! My onc and I have talked a few times about switching me to every 3 weeks but I think we just feel that if it ain't broke, don't fix it! I'm on weekly Gemzar...
Forum:
her2group
07-18-2006, 05:42 AM
Replies:
6
Pleural Effusion Treatment
Views:
1,759
Posted By
Muldoonmom
Pleural Effusion Treatment
Wow, what a relief to know that the treatment isn't horrible. I have asked my onc if I would have any long term pain or "discomfort" and he has PROMISED me that I would not.... but he's never had it...
Forum:
her2group
07-18-2006, 05:04 AM
Replies:
6
Pleural Effusion Treatment
Views:
1,759
Posted By
Muldoonmom
Pleural Effusion Treatment
Has anyone ever had the chest tube treatment (with antibiotic) to stop pleural effusion? I have had two taps so far and will probably need a third tap next week. After that, if the fluid doesn't stop...
Showing results 1 to 25 of 25
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