HER2 Support Group Forums
>
Search Forums
Search Results
User Name
Remember Me?
Password
Register
Gallery
FAQ
Members List
Calendar
Today's Posts
Search
Search Forums
Show Threads
Show Posts
Advanced Search
Search Gallery
Advanced Search
Go to Page...
Showing results 1 to 18 of 18
Search took
0.01
seconds.
Search:
Posts Made By:
bevilj
Forum:
Clinical Trials
01-29-2013, 12:05 PM
Replies:
3
starting T-DM1 - what to expect?
Views:
5,614
Posted By
bevilj
starting T-DM1 - what to expect?
Hi,
I'm scheduled to start on the T-DM1 trial next week and am wondering what I am in for. I have googled and read several articles but am really interested in hearing from people who have...
Forum:
her2group
07-06-2012, 03:21 PM
Replies:
5
Swollen Pituitary Gland/Optic Nerve
Views:
2,933
Posted By
bevilj
Re: Swollen Pituitary Gland/Optic Nerve
Thanks all for your replies. I wanted to give you an update and let you know that prednizone seems to be helping so far. I haven't vomitted in 2 weeks now! And my headaches are seemingly better...
Forum:
her2group
06-28-2012, 01:46 PM
Replies:
5
Swollen Pituitary Gland/Optic Nerve
Views:
2,933
Posted By
bevilj
Swollen Pituitary Gland/Optic Nerve
Hi All,
For the last several weeks I have been getting sick regularly (vomiting/headaches/double vision). I think I have spent more time in bed than out of bed. My tumor markers have been good...
Forum:
her2group
05-21-2012, 01:12 PM
Replies:
37
Bilateral mastectomy support group
Views:
16,108
Posted By
bevilj
Re: Bilateral mastectomy support group
Hi Nancy,
I'm glad you posted to this string. For all the months I have been on this site, I hadn't read these stories until now. I have often wondered how many others are out there like me......
Forum:
her2group
05-21-2012, 12:39 PM
Replies:
19
T-DM1 & Pertuzumab Update
Views:
2,760
Posted By
bevilj
Re: T-DM1 & Pertuzumab Update
May you have a long and wonderful dance with NED!
I donated tissue awhile back myself after reading "The Immortal Life of Henrietta Lacks". If you haven't read it yet, I highly recommend it. ...
Forum:
Herceptin / Tykerb
05-18-2012, 10:19 AM
Replies:
22
Herceptin & Tykerb Together
Views:
10,557
Posted By
bevilj
Re: Herceptin & Tykerb Together
Hi Amy,
I am in the US and on the Tykerb / Herceptin (and Zometa) combo - although not part of a trial. I am also prescribed Xeloda but currently do not take it. My insurance would not approve...
Forum:
her2group
05-17-2012, 11:48 AM
Replies:
6
Managing Energy and Diet
Views:
1,344
Posted By
bevilj
Re: Managing Energy and Diet
Hi Alicia,
I think both diet and exercise are important during/after treatment. Having said that, I'm not the best example of what to do at all times.
I used to be very active but find that...
Forum:
her2group
05-17-2012, 11:07 AM
Replies:
12
Some Good News
Views:
2,091
Posted By
bevilj
Re: Some Good News
Amy -
I have been following you on the boards for awhile now and have read your postings with great interest over the months. How wonderful (and cathartic?) that you were asked to write the...
Forum:
her2group
05-17-2012, 10:16 AM
Replies:
9
Not the best PET--Need to brainstorm options
Views:
1,820
Posted By
bevilj
Re: Not the best PET--Need to brainstorm options
Hi, Sorry to read that you have progression and are in need of a different treatment plan. I read the other entries about Tykerb and Xeloda and wanted to share some details about both as I have had...
Forum:
her2group
05-17-2012, 09:55 AM
Replies:
29
One decade...
Views:
2,972
Posted By
bevilj
Re: One decade...
Congrats! Reading your treatment history gives me hope as a fellow stage IV patient. Here's to another 10~
Forum:
her2group
05-17-2012, 09:50 AM
Replies:
20
Stopping Working
Views:
3,255
Posted By
bevilj
Re: Stopping Working
Sorry to read that you are not feeling well enough to continue working. And lucky you to have full pay for a year so that you don't have to worry about income.
I hear you loud and clear on...
Forum:
Herceptin / Tykerb
04-20-2012, 09:22 AM
Replies:
10
how long does it take for zeloda and tykerb to kick in
Views:
6,381
Posted By
bevilj
Re: how long does it take for zeloda and tykerb to kick in
Hi Yanyan,
I was on the Xeloda/Tykerb combo for about a week when I started to notice a reduction in my skin mets. After a few months now, there is nothing visible. My tumor markers have also...
Forum:
Herceptin / Tykerb
04-10-2012, 09:32 AM
Replies:
5
eloda and tykerb optimum dosage
Views:
3,495
Posted By
bevilj
Re: eloda and tykerb optimum dosage
Hi Amanda,
Sorry you are experiencing side effects with the Xeloda/Tykerb combo. I had a horrible time when I first started as well.
I take 5 Tykerb pills every morning when I wake up...
Forum:
her2group
03-06-2012, 10:52 AM
Replies:
18
Social Security benefits??
Views:
3,061
Posted By
bevilj
Re: Social Security benefits??
Hi,
I was on medical leave from work for approx. 6 months during my first course of treatment (surgery, chemo) and went back to work part-time when I started radiation (I was 38 at the time). 2...
Forum:
her2group
03-06-2012, 10:21 AM
Replies:
389
Calling all stage iv sisters
Views:
168,625
Posted By
bevilj
Re: Calling all stage iv sisters
2.5 years and counting! Some 'inconvenient' moments along the journey for sure but still going strong~
Never, never, never give up!
Forum:
her2group
03-01-2012, 09:02 AM
Replies:
13
Herceptin and chills/joint pain?
Views:
3,143
Posted By
bevilj
Re: Herceptin and chills/joint pain?
I've experienced joint pain/discomfort, constant chills, and a runny nose since I started taking Herceptin. Since I've been taking a slew of other meds along the way, I never associated it with...
Forum:
Herceptin / Tykerb
02-29-2012, 03:53 PM
Replies:
13
Questions on how you feel on Lapatinib and Xeloda
Views:
5,744
Posted By
bevilj
Re: Questions on how you feel on Lapatinib and Xeloda
Hi Krissi,
Sorry to read that you have to start a new treatment plan. I'm hoping this one works wonders for you. I don't want to scare you with my story but I do want you to know that you are not...
Forum:
Herceptin / Tykerb
02-01-2012, 10:47 AM
Replies:
7
Tykerb and weight gain
Views:
11,369
Posted By
bevilj
Re: Tykerb and weight gain
I've only been on Tykerb for ~2 mos. now (also Xeloda, Herceptin and Zometa) and have not experienced weight gain. Just the opposite actually. Due to the side effects I keep losing weight. Over 6...
Showing results 1 to 18 of 18
Forum Jump
User Control Panel
Private Messages
Subscriptions
Who's Online
Search Forums
Forums Home
her2group
Herceptin / Tykerb
Caregivers Corner
Diet and Nutrition
Inflammatory Breast Cancer
Keeping Your Mind Off of BC
Profiles In Courage
My Healthcare Team
Clinical Trials
Articles of Interest
Events and Social Calendar
Breast Cancer Meeting Highlights
General Cancer News
Breast Cancer News
Breast Cancer Newsfeed
All times are GMT -7. The time now is
08:47 AM
.