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Posts Made By:
Kim in CA
Forum:
her2group
02-26-2020, 05:10 PM
Replies:
22
ENHERTU aka DS8401A
Views:
17,058
Posted By
Kim in CA
Re: ENHERTU aka DS8401A
Oh Flori,
So glad you checked in. We have all been thinking and worrying about you!
You are such an amazing woman! My Onc tells me Enhertu will be my next chemo too. I wonder if it is easier on...
Forum:
her2group
02-26-2020, 05:02 PM
Replies:
11
It's Been Awhile
Views:
10,009
Posted By
Kim in CA
It's Been Awhile
Haven't posted in awhile, so thought I'd check in. I've been dealing with a steady worsening right arm/ hand weakness for the last two years. After being referred to a neurologist and trying...
Forum:
her2group
06-25-2019, 09:16 AM
Replies:
72
Whack-a-mole next...
Views:
45,285
Posted By
Kim in CA
Re: Whack-a-mole next...
Dear Flori,
I can't imagine how very tired you must be of this battle that just rages on and on and on....
I was so hoping you would finally get some positive results. At the risk of sounding...
Forum:
her2group
03-22-2018, 10:28 PM
Replies:
3
Three-in-one molecule shows promise in her2+ bc
Views:
5,344
Posted By
Kim in CA
Re: Three-in-one molecule shows promise in her2+ bc
Love the part that says: “The newly crafted molecule is non toxic, simple to produce, and cost-effective”!
Thanks for posting Lani, this one sounds so promising!
Forum:
her2group
03-12-2018, 06:13 PM
Replies:
5
Chemo-Induced Osteoporosis:beating it naturally?
Views:
5,604
Posted By
Kim in CA
Re: Chemo-Induced Osteoporosis:beating it naturally?
Hi Jessica,
I too will be following this thread for ideas. I broke my leg last April when my horse spooked and ran me into a tree, twisting my leg until my tibia and fibula snapped.
I had a...
Forum:
her2group
03-10-2018, 10:27 AM
Replies:
33
Cyberknife or Whole Brain?
Views:
14,098
Posted By
Kim in CA
Re: Cyberknife or Whole Brain?
Wishing you good luck on Thursday Katherine. If the cyber knife is anything like the gamma knife, which I had on a single brain met, it should be fairly easy. I had mine done at UCSF, and we even...
Forum:
her2group
03-01-2018, 11:51 PM
Replies:
33
Cyberknife or Whole Brain?
Views:
14,098
Posted By
Kim in CA
Re: Cyberknife or Whole Brain?
Katherine,
I would try to do the cyber knife if possible because your mets are fairly small. I think they can do a few at a time, if memory serves.
Thank you Laurel for reminding me of who it...
Forum:
her2group
02-13-2018, 05:39 PM
Replies:
31
Need input, KADCYLA or TAS116?
Views:
12,226
Posted By
Kim in CA
Re: Need input, KADCYLA or TAS116?
Hi Flori,
I'm thinking of you too and sending positive thoughts your way.
As a side note, since I have been on the Kadcyla, as opposed to the Herceptin and Perjeta, my heart function has...
Forum:
her2group
02-07-2018, 10:28 AM
Replies:
16
When to consider ending treatment?
Views:
8,762
Posted By
Kim in CA
Re: When to consider ending treatment?
I will be thinking of you on Monday Fiori and hoping your first infusion goes well.
On my infusion days, I take a generic Zyrtec 2 hours before, and when I get to the infusion suite, they give...
Forum:
her2group
02-02-2018, 10:44 PM
Replies:
16
When to consider ending treatment?
Views:
8,762
Posted By
Kim in CA
Re: When to consider ending treatment?
Hi Colleen,
Just my 2 cents here, but I wish that I had never stopped my good old Vitamin H! I too was in Long term remission, and really thought perhaps I was cured. Inspired by our own Steph...
Forum:
her2group
01-27-2018, 10:28 PM
Replies:
15
News old or new -- i recently found out
Views:
7,851
Posted By
Kim in CA
Re: News old or new -- i recently found out
Another courageous sister gone far too soon. So very, very sad.
My deepest condolences to her family.
Forum:
her2group
01-19-2018, 03:23 PM
Replies:
31
Need input, KADCYLA or TAS116?
Views:
12,226
Posted By
Kim in CA
Re: Need input, KADCYLA or TAS116?
Hi Supportwife,
I've been fortunate in that my treatments have never been suspended due to low platelets. When my platelets got down to around 100, I started to worry as my doctor said they might...
Forum:
her2group
01-18-2018, 11:10 PM
Replies:
31
Need input, KADCYLA or TAS116?
Views:
12,226
Posted By
Kim in CA
Re: Need input, KADCYLA or TAS116?
Dear Flori,
Just wanted to share my experience with Kadcyla. I've been on it two years now, and have found it to be quite tolerable. However, Herceptin alone, was the easiest drug I've ever been...
Forum:
her2group
01-18-2018, 10:40 PM
Replies:
40
Amy? (Mtngrl)
Views:
24,173
Posted By
Kim in CA
Re: Amy? (Mtngrl)
I've been absent too long, and kept telling myself I would check in come the New Year. I sure didn't expect to hear of dear Amy's passing. She was such a doer and a fighter. Her positive attitude...
Forum:
her2group
10-03-2016, 10:26 AM
Replies:
45
In Praise of Perjeta
Views:
25,888
Posted By
Kim in CA
Re: In Praise of Perjeta
Good advice Phil!
I had pretty much stopped having PET scans because of all the radiation over the years, and just relied on tumor markers which had always been so accurate for me.
Big...
Forum:
her2group
09-17-2016, 11:12 AM
Replies:
20
Linn65.. sister
Views:
12,457
Posted By
Kim in CA
Re: Linn65.. sister
So sorry to hear about your sisters passing.
I lost my sister 3 years ago to a deadly brain glioblastoma a little over a year after diagnosis, and I am still in disbelief sometimes on how cruel...
Forum:
her2group
09-17-2016, 11:04 AM
Replies:
7
My really big supplements list
Views:
5,213
Posted By
Kim in CA
Re: My really big supplements list
Thanks for reposting this Andi. I printed it out, so I can update my cabinet of supplements!
Kim
Forum:
her2group
09-17-2016, 10:58 AM
Replies:
9
Palliative vs. Curative Intent
Views:
6,151
Posted By
Kim in CA
Re: Palliative vs. Curative Intent
Hi Amy,
Glad to hear you are finally getting some localized treatment for your lung mets. Unfortunately many oncs are behind when it comes to treating stage IV patients with oligometastatic...
Forum:
her2group
05-27-2016, 09:39 AM
Replies:
36
12 years Stage 4 - Still A-OK
Views:
18,356
Posted By
Kim in CA
Re: 12 years Stage 4 - Still A-OK
Dear Kim,
What fabulous news! You are always not far from my thoughts, and this news just makes me beam.
I wonder if I can reach NED again on the Kadcyla, if I too might get a booster. ...
Forum:
her2group
05-08-2016, 09:22 AM
Replies:
45
Looking for hope
Views:
29,247
Posted By
Kim in CA
Re: Looking for hope
Hi Benk,
Please do not despair. I know this is devastating news, and your lives will never be the same, but their is reason to have great hope.
Being her2 + is no longer the terrible...
Forum:
her2group
04-25-2016, 09:18 AM
Replies:
11
Unexpected trigger for GERD
Views:
5,136
Posted By
Kim in CA
Re: Unexpected trigger for GERD
Amy,
good that you've found the trigger for your GERD. It is far better to try to prevent it, than having to treat it after the fact.
My esophagus has never been the same since my stem cell...
Forum:
her2group
04-25-2016, 09:09 AM
Replies:
17
Today marks 9 years living with cancer; stage 4
Views:
6,972
Posted By
Kim in CA
Re: Today marks 9 years living with cancer; stage 4
Beautiful Flori. You have a way with words, and an amazing resolve!
Congrats and XOXOXO!
Kim
Forum:
her2group
04-25-2016, 09:07 AM
Replies:
11
Ceesun... Here😎
Views:
6,491
Posted By
Kim in CA
Re: Ceesun... Here😎
Cathy,
Just joining the others to say I hope your next chemo puts a halt to your progression. Herceptin + a taxane seems to be very effective for many. It worked twice for me. Maybe worth...
Forum:
her2group
04-25-2016, 09:04 AM
Replies:
22
Five Years Stage IV
Views:
10,062
Posted By
Kim in CA
Re: Five Years Stage IV
Thanks for sharing this Amy. Very wise words indeed. Something even us old timers need to remember sometimes!
Congratulations, and here's to many more years of living life!
Kim
Forum:
her2group
04-22-2016, 07:07 PM
Replies:
7
Checking In: Bad News (Hello Kadcyla) and Good New!
Views:
6,931
Posted By
Kim in CA
Checking In: Bad News (Hello Kadcyla) and Good New!
Hello Her2 Fam,
It's been a while since I posted, but thought I would post an update. After nearly 3 years maintaining on Herceptin and Perjeta, I had a PET scan in Dec. that showed a mass in...
Showing results 1 to 25 of 404
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