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Posts Made By:
snolan
Forum:
her2group
04-17-2017, 09:18 AM
Replies:
5
Any of you have Axillary Web Syndrome?
Views:
7,317
Posted By
snolan
Re: Any of you have Axillary Web Syndrome?
I had cords I was working out one day doing ring rows and I guess hanging from my arms they popped. Aggressive stretching with our physical therapist should help decrease the effects. I still have to...
Forum:
her2group
01-04-2017, 12:21 PM
Replies:
12
What Makes HER2 Positive Cancers Unique After Treatment?
Views:
5,131
Posted By
snolan
Re: What Makes HER2 Positive Cancers Unique After Treatment?
My Dr told me that if it came back it would come back somewhere else, ie. bone, brain, lung. I was stage I received the TCH treatment and I'm 6 yrs out.
Forum:
her2group
12-14-2016, 09:16 AM
Replies:
22
Other than Cancer: What's going on in your life?
Views:
205,918
Posted By
snolan
Re: Other than Cancer: What's going on in your life?
Busy with my kids activities, oldest daughter plays varsity basketball and youngest is in club soccer which just won a regional qualifying tournament and will be playing against teams from Arkansas,...
Forum:
Diet and Nutrition
11-28-2016, 01:10 PM
Replies:
25
Alcohol ban? Really?
Views:
16,248
Posted By
snolan
Re: Alcohol ban? Really?
Though I didn't drink during chemo due to tasting bad. I am 6 years out and I still drink 1-2 times a week. One drink only as I am a light weight.
Forum:
her2group
10-19-2016, 08:32 AM
Replies:
36
Add me to the 10 Years Out Club!
Views:
21,661
Posted By
snolan
Re: Add me to the 10 Years Out Club!
Congratulations!
Forum:
her2group
10-05-2016, 03:45 PM
Replies:
13
DCIS & her2+?
Views:
7,043
Posted By
snolan
Re: DCIS & her2+?
I was stage 1 and still did herceptin. Early on when herceptin was just strating it wasn't used for early stages but is now. You may want to recommend a second opinion. It is the main treatment...
Forum:
her2group
10-05-2016, 07:19 AM
Replies:
13
DCIS & her2+?
Views:
7,043
Posted By
snolan
Re: DCIS & her2+?
I had both. HER2 was treated with chemo TCH and DCIS radiation due to mine being at the skin level down to my chest wall.
Forum:
her2group
09-26-2016, 08:12 AM
Replies:
4
Paps after chemo & herceptin: When?
Views:
5,348
Posted By
snolan
Re: Paps after chemo & herceptin: When?
My OBGYN kept my normal schedule of once a year.
Forum:
her2group
08-04-2016, 02:30 PM
Replies:
2
Medical Insurance question
Views:
4,453
Posted By
snolan
Re: Medical Insurance question
You can have a private insurance as a secondary insurance only I think. It has to be set up as that. They would cover the 20% that Medicare doesn't.
Forum:
her2group
06-21-2016, 07:15 AM
Replies:
7
night sweats
Views:
6,314
Posted By
snolan
Re: night sweats
I had the sweats during chemo, they have since decreased I usually get them at night.
Forum:
her2group
05-17-2016, 07:18 AM
Replies:
4
tamoxifen side effects?
Views:
4,486
Posted By
snolan
Re: tamoxifen side effects?
I just finished my 5 years on tamoxifen, I didn't have any side effects. I know some have complained of joint pain.
Forum:
her2group
05-04-2016, 08:43 AM
Replies:
8
No Radiation and no chemo ???
Views:
6,577
Posted By
snolan
Re: No Radiation and no chemo ???
I was Stage 1 Er/Pr +. I did chemo and radiation. My Dr did mention though that in the past it was common not to do either even herceptin for stage I.
Forum:
her2group
04-18-2016, 09:14 AM
Replies:
21
Law suit due to Taxotere permanent hair loss/balding
Views:
9,621
Posted By
snolan
Re: Law suit due to Taxotere permanent hair loss/balding
All my hair grew back, was about 6 months after treatment, had a hair cut about 1 year after.
Forum:
her2group
04-06-2016, 07:35 AM
Replies:
5
Starting Tamoxifen 5 months after starting Herceptin. I thought I took this after H..
Views:
4,599
Posted By
snolan
Re: Starting Tamoxifen 5 months after starting Herceptin. I thought I took this after
I started Tamoxifen after I finished chemo, I did 5 yrs and just came off of it. No real side effects for me. I chose to do only the 5 years as I was only Stage I, my Dr felt confident that I only...
Forum:
her2group
03-01-2016, 08:47 AM
Replies:
19
10 years today
Views:
7,020
Posted By
snolan
Re: 10 years today
Congratulations, great milestone!
Forum:
Diet and Nutrition
03-01-2016, 08:46 AM
Replies:
2
going off tamoxifen
Views:
8,973
Posted By
snolan
Re: going off tamoxifen
I just stopped my tamoxifen last week after 5 yrs. I was getting water retention too. And have had a steady wt gain over the years. I haven't seen any changes yet but realize it will take a while to...
Forum:
her2group
02-15-2016, 10:48 AM
Replies:
5
going off tamoxifen
Views:
4,753
Posted By
snolan
Re: going off tamoxifen
I am coming up to my 5 yr mark this May, my Dr has been on the ropes as if I need to continue since I was Stage 1. She wants me to make the decision. I want to come off of it, I feel my weight gain...
Forum:
her2group
02-03-2016, 12:15 PM
Replies:
8
Mastectomy results
Views:
4,469
Posted By
snolan
Re: Mastectomy results
I developed a seroma right after they pulled the drains, tried to fight it with months of antibiotics with no avail. Has to remove the expanders. My reconstruction went better, had some swelling...
Forum:
her2group
01-15-2016, 09:58 AM
Replies:
6
Perjeta and Herceptin hair loss
Views:
5,074
Posted By
snolan
Re: Perjeta and Herceptin hair loss
Runny nose yes, I never had leg cramps, my hair grew back while on herceptin.
Forum:
her2group
11-20-2015, 09:11 AM
Replies:
4
Retesting Brca 1,2
Views:
4,689
Posted By
snolan
Retesting Brca 1,2
My Dr is retesting my Brac test since the one I had 5 yrs ago is outdated. I was adopted at birth so I do not have any information on my history other than a maternal grandmother who had uterin...
Forum:
her2group
11-13-2015, 10:56 AM
Replies:
6
Simple question re: Claritin for Neulesta
Views:
4,833
Posted By
snolan
Re: Simple question re: Claritin for Neulesta
I hadn't heard of this, hope it works. I had the Neulesta shot and the first couple kicked my ass, I had bad bone pain in both my legs. But as I went through chemo it got better and didn't bother me.
Forum:
her2group
11-12-2015, 01:06 PM
Replies:
20
4 years NED
Views:
8,331
Posted By
snolan
Re: 4 years NED
Congrats, I hope you get tons more
Forum:
her2group
11-10-2015, 08:12 AM
Replies:
15
Did anyone NOT lose hair OR nails on TCH protocol? All replies appreciated!
Views:
6,136
Posted By
snolan
Re: Did anyone NOT lose hair OR nails on TCH protocol? All replies appreciated!
I lost my hair two weeks into TCH, lost my finger nails but not my toe nails. I chose to shave my head when the hair started falling out it was easier to manage and less messy. I have heard people...
Forum:
her2group
11-09-2015, 08:27 AM
Replies:
11
Anyone taking/taken Taxotere and Carboplatin with Herceptin???
Views:
8,274
Posted By
snolan
Re: Anyone taking/taken Taxotere and Carboplatin with Herceptin???
I did the TCH protocol, overall I had minimal side effects, my hair fell out at 2 weeks, my nails on my hands fell off, but not my toes. Some nausea, a lot of fatigue usually the first week and then...
Forum:
Keeping Your Mind Off of BC
09-30-2015, 08:27 AM
Replies:
3
ode to my uterus
Views:
8,673
Posted By
snolan
Re: ode to my uterus
Love it- had mine taken out 7 yrs ago, do not miss it one bit.
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