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Posts Made By:
belle
Forum:
her2group
06-10-2011, 03:33 PM
Replies:
5
Trouble swallowing while on TDM1
Views:
1,956
Posted By
belle
Re: Trouble swallowing while on TDM1
Sheila,
Thank you so much for the good tips. I'm afraid it really may be a stricture of the esophagus. Mom practically stopped eating:-( She received her recent infusion on Thursday. The doctor...
Forum:
her2group
06-06-2011, 02:38 PM
Replies:
13
How to start over...
Views:
2,722
Posted By
belle
Re: How to start over...
Hi Ginny,
I second all the great replies you have received already. It brings nothing to dwell on what the onc said. Doctors tend to have different opinions about the same case. Maybe your onc...
Forum:
her2group
06-06-2011, 01:55 PM
Replies:
5
Trouble swallowing while on TDM1
Views:
1,956
Posted By
belle
Re: Trouble swallowing while on TDM1
Hi Chrisy and Oregon,
Thanks a lot for your advices. We have been to the doctor today. She said we need to wait and see if the next infusions will shrink her enlarged lymphnodes more and mom may...
Forum:
her2group
06-05-2011, 03:11 PM
Replies:
5
Trouble swallowing while on TDM1
Views:
1,956
Posted By
belle
Trouble swallowing while on TDM1
My mom has been on TDM1 since end of February after progression on Herceptin that followed Taxol+Herceptin. Her bc is HER2 pos, mets to lungs, bones and lymphnodes (supraclavicular, on the neck,...
Forum:
her2group
06-05-2011, 01:22 PM
Replies:
18
Lost
Views:
2,567
Posted By
belle
Re: Lost
Dear Michka,
Have you seen this link:
http://clinicaltrials.gov/ct2/show/study/NCT00829166?show_locs=Y#locn
My mom got enrolled in EMILIA trial (randomized: TDM1 vs Xeloda+Tykerb) in Germany...
Forum:
her2group
08-14-2010, 04:11 AM
Replies:
139
Joe passed on this evening
Views:
22,395
Posted By
belle
Re: Joe passed on this evening
Like for all the HER2 sisters, it's a loss of a man I've never met and known personally, but always felt close and connected to. He has touched so many lives with the way he was. The very first time...
Forum:
her2group
05-27-2010, 02:23 AM
Replies:
8
Mom has recurrence - please advice..
Views:
1,321
Posted By
belle
Re: Mom has recurrence - please advice..
Mom received her first chemo and is tolerating so far well. She sais symptoms have subsided as well a little, no more frequent cough and pain in her breast. With little steps we are moving on.
We...
Forum:
her2group
05-25-2010, 03:35 PM
Replies:
21
some people get all the luck-Not-
Views:
2,981
Posted By
belle
Re: some people get all the luck-Not-
Dear Fullofbeans,
I am very sorry to hear about your recurrence and do understand how you feel re Dr's negligence.
My mom's onc was sick at her 3 months checkup and there was another young guy...
Forum:
her2group
05-25-2010, 03:19 PM
Replies:
8
Mom has recurrence - please advice..
Views:
1,321
Posted By
belle
Re: Mom has recurrence - please advice..
Thank you all so much for your warm support and taking your time to share you knowledge! I loved every bit of your advices and will try to stick to them throughout this treatment. We have our first...
Forum:
her2group
05-24-2010, 11:16 AM
Replies:
75
Update on our sister Sheila
Views:
8,731
Posted By
belle
Re: Update on our sister Sheila
I don't post much here but have been following Sheila as one of the inspiring Warriors here. Adding my prayers and wishes for the quick recovery you deserve so much.
((Hugs)),
belle
Forum:
her2group
05-24-2010, 10:33 AM
Replies:
8
Mom has recurrence - please advice..
Views:
1,321
Posted By
belle
Mom has recurrence - please advice..
Hi,
My mom was diagnosed and had a rt. mastectomy in Feb. 2007. She had stage III bc, er+ pr+ HER2+ and was to receive a high-dose chemotherapy followed by Herceptin. However, she tolerated the...
Forum:
her2group
05-08-2010, 11:40 PM
Replies:
11
How fast can the tumor grow?
Views:
24,981
Posted By
belle
Re: How fast can the tumor grow?
Thanks, Lani. When operated 3 years ago, mom's bc was grade 2. From the ultrasound report she got at home, my fear is that this time it may be more aggressive if in 2-3 months it became lobular and...
Forum:
her2group
05-08-2010, 11:12 PM
Replies:
11
How fast can the tumor grow?
Views:
24,981
Posted By
belle
Re: How fast can the tumor grow?
Valerie, Tricia,
Thank you for sharing your experiences. So, everyone is different. Tricia, I'm in Germany.
I just talked to mom, she will try to get the earliest ticket next week.
...
Forum:
her2group
05-07-2010, 02:01 PM
Replies:
11
How fast can the tumor grow?
Views:
24,981
Posted By
belle
Re: How fast can the tumor grow?
Thank you, Courtney. I hope so, too.
We also missed out several opportunities this time, partly due to incompetence of the drs, unfortunately. Mom was here in early April for her routine 4 months...
Forum:
her2group
05-07-2010, 01:32 PM
Replies:
11
How fast can the tumor grow?
Views:
24,981
Posted By
belle
Re: How fast can the tumor grow?
Courtney,
when you had hip and rib pain in December, could they not detect anything in scans?
Sometimes things get just out of our control, no matter how hard we try. I still have hard time...
Forum:
her2group
05-07-2010, 12:05 PM
Replies:
17
TriciaK checking in!
Views:
1,762
Posted By
belle
Re: TriciaK checking in!
Dear Tricia,
You are so beautiful! Where do you take all this grace from? I guess it's just your personality. Please come here more often and share your light with us.
Love you,
belle
Forum:
her2group
05-07-2010, 11:56 AM
Replies:
11
How fast can the tumor grow?
Views:
24,981
Posted By
belle
Re: How fast can the tumor grow?
Courtney and Nguyen, thank you for your answers.
I still hope that it is something benign as ultrasound cannot tell much... but the worse outcome is also possible. Mom's face has been swollen last...
Forum:
her2group
05-07-2010, 06:18 AM
Replies:
11
How fast can the tumor grow?
Views:
24,981
Posted By
belle
How fast can the tumor grow?
Dear Her2 sisters,
I've been lurking mostly here for the last few years but have always followed and shared our journey.
My mom had her last mammography screening in January with no signs of...
Forum:
her2group
04-26-2010, 02:51 AM
Replies:
4
worried about mom...
Views:
1,260
Posted By
belle
Re: worried about mom...
Dear Juanita,
Thanks a lot for your quick reply! Dr's said it's most likely goiter, which seems to have the symptoms I described. Mom also seems to feel her left breast to be a bit dense. Her last...
Forum:
her2group
04-26-2010, 12:51 AM
Replies:
4
worried about mom...
Views:
1,260
Posted By
belle
worried about mom...
Dear her2 sisters,
It's been 3+ years since mom had surgery on stage 3 her2 er+ pr+ bc.
She's been having shortness of breath, wheezing and occasional coughing during the last week. There also...
Forum:
her2group
08-31-2009, 02:48 AM
Replies:
64
~This Sounds So Terrible Of Me, Please Forgive Me
Views:
6,368
Posted By
belle
Re: ~This Sounds So Terrible Of Me, Please Forgive Me
Marie,
Just want to say that I love you the way you are.
Hugs,
belle
Forum:
her2group
08-25-2009, 01:56 PM
Replies:
19
Marie.......
Views:
2,139
Posted By
belle
Re: Marie.......
Dearest Marie,
You and Ed are in my deepest prayers.
Hugs,
belle
Forum:
Clinical Trials
12-28-2008, 03:55 PM
Replies:
3
Lapatinib trials for 4 yrs out?
Views:
5,217
Posted By
belle
Thank you, Liza! Best wishes for the New Year to...
Thank you, Liza! Best wishes for the New Year to you and your family, too!
Forum:
her2group
12-28-2008, 03:53 PM
Replies:
24
~Mighty Oak~Reoccurrence In Spine
Views:
2,467
Posted By
belle
Dearest Marie, Let me also give you a warm...
Dearest Marie,
Let me also give you a warm hug and encourage you to take care of yourself. I hope the treatment will go well for your Mighty Oak. Don't go down too deeply into scairy...
Forum:
Clinical Trials
12-21-2008, 10:29 AM
Replies:
3
Lapatinib trials for 4 yrs out?
Views:
5,217
Posted By
belle
Hi Liza, Here in Europe ALTTO (Adjuvant...
Hi Liza,
Here in Europe ALTTO (Adjuvant Lapatinib Trastuzumab Treatment Options?) trial is on for newly diagnozed bc patients. So, has surely been there for awhile in the US. I was wondering about...
Showing results 1 to 25 of 42
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