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Posts Made By:
Kmswilson
Forum:
Herceptin / Tykerb
06-17-2012, 03:39 PM
Replies:
39
herceptin + tykerb (no xeloda)
Views:
16,705
Posted By
Kmswilson
Re: herceptin + tykerb (no xeloda)
Anyone with blurry vision issues and/or severe weakness in legs on Tykerb and Herceptin? I was on Herceptin for about a year, went to Tykerb and Xeloda about four months ago, now on Tykerb and...
Forum:
her2group
06-14-2012, 03:51 PM
Replies:
32
Dizziness Question
Views:
3,757
Posted By
Kmswilson
Re: Dizziness Question
I just thought I'd weigh in. In January, I had a few blurry vision issues, and my doc sent me for a brain MRI, not really expecting it to show anything. It came back that I had nine very small...
Forum:
Herceptin / Tykerb
06-09-2012, 03:02 PM
Replies:
8
Tykerb + different chemo than Xeloda?
Views:
4,289
Posted By
Kmswilson
Re: Tykerb + different chemo than Xeloda?
Thanks, PatE and everyone! I don't know that I'm a good candidate for cyberknife in my liver. It's about 25% cancer, and unfortunately it's a bunch of different sized tumors and lesions throughout,...
Forum:
Herceptin / Tykerb
05-29-2012, 01:36 PM
Replies:
8
Tykerb + different chemo than Xeloda?
Views:
4,289
Posted By
Kmswilson
Re: Tykerb + different chemo than Xeloda?
Thanks so much for the info. I was on Taxol first, and it stopped working after a few months and I had progression. Same with Navelbine. I'll keep looking though. Hoping the Herceptin and Tykerb are...
Forum:
Herceptin / Tykerb
05-20-2012, 06:42 PM
Replies:
8
Tykerb + different chemo than Xeloda?
Views:
4,289
Posted By
Kmswilson
Tykerb + different chemo than Xeloda?
I'm looking for anyone who has used any other chemos (other than Xeloda) in conjunction with Tykerb. I'm told I'm running out of treatment options since I had some regression and some progression...
Forum:
her2group
05-07-2012, 11:55 AM
Replies:
2
liver biopsy
Views:
1,393
Posted By
Kmswilson
liver biopsy
I tried doing a search, but I'm terrible at finding in for that way. Please feel free to send links if I've just missed this somewhere. I'm having a liver biopsy thursday to see if my mets are HER2...
Forum:
her2group
05-07-2012, 11:12 AM
Replies:
17
Scan results weren't good
Views:
2,580
Posted By
Kmswilson
Re: Scan results weren't good
Sorry to hear progression. I'm in a similar situation. I had mixed results in my liver, some shrunk, some grew, some new. I'm on Tykerb because it breaks to blood brain barrier, and since I have...
Forum:
Herceptin / Tykerb
03-13-2012, 06:53 PM
Replies:
13
Questions on how you feel on Lapatinib and Xeloda
Views:
5,744
Posted By
Kmswilson
Re: Questions on how you feel on Lapatinib and Xeloda
Thank you for your reply, Bevilj! I am so much more reassured by the replies from everyone on here!
Amanda, I've been on the Tykerb now for two weeks, and the Xeloda for one week. I take five...
Forum:
her2group
03-06-2012, 01:51 PM
Replies:
18
Social Security benefits??
Views:
3,061
Posted By
Kmswilson
Re: Social Security benefits??
I am 37, diagnosed at 36, stage IV from the beginning. When I went on long term disability through my employer, the LTD company said I was rewuired to apply for Social security benefits on behalf of...
Forum:
her2group
02-28-2012, 12:35 PM
Replies:
12
JOINT PAIN & BODY ACHES AFTER CHEMO
Views:
8,754
Posted By
Kmswilson
Re: JOINT PAIN & BODY ACHES AFTER CHEMO
I'm glad to hear radiation can make you feel rough. I just finished 13 WBR treatments, and I'm still warning from the steroids, and I feel terrible. Meanwhile I've had to stop the chemo during the...
Forum:
her2group
02-26-2012, 03:20 PM
Replies:
12
Big Liver Met & Herceptin Resistance
Views:
2,397
Posted By
Kmswilson
Re: Big Liver Met & Herceptin Resistance
i started out with an 11x12 cm liver tumor, and several 6 cm and 3 and 4 cm along with countless small tumors. Basically, my liver is full of it. That was a 13 months ago. I've been dancing with it...
Forum:
Herceptin / Tykerb
02-22-2012, 10:33 AM
Replies:
13
Questions on how you feel on Lapatinib and Xeloda
Views:
5,744
Posted By
Kmswilson
Re: Questions on how you feel on Lapatinib and Xeloda
Hi Vicky,
I hate hearing that insurance won't cover the cost of medications we may need! I am extremely fortunate in that I just found out that my copay for the Tykerb and Xeloda is $0!!!! It's...
Forum:
Herceptin / Tykerb
02-22-2012, 04:13 AM
Replies:
13
Questions on how you feel on Lapatinib and Xeloda
Views:
5,744
Posted By
Kmswilson
Re: Questions on how you feel on Lapatinib and Xeloda
I cannot thank you enough for your reply. It's such a relief to hear from someone who has been on this one that it is manageable. With a 5-1/2 year old son, and an almost 3-year old daughter, I was...
Forum:
her2group
02-21-2012, 05:15 PM
Replies:
48
Today I Celebrate 10 Years as a Survivor
Views:
6,496
Posted By
Kmswilson
Re: Today I Celebrate 10 Years as a Survivor
Fantastic! You give me such hope that I will be around for years to come to see my kiddos grow! Congratulations on ten years! You are amazing!!!!
Forum:
her2group
02-20-2012, 05:15 AM
Replies:
14
3 Years NED
Views:
2,315
Posted By
Kmswilson
Re: 3 Years NED
That's wonderful news! Congratulations, and way to beat this crap three years running!
Forum:
Herceptin / Tykerb
02-20-2012, 12:23 AM
Replies:
13
Questions on how you feel on Lapatinib and Xeloda
Views:
5,744
Posted By
Kmswilson
Questions on how you feel on Lapatinib and Xeloda
I tried searching for a thread, but I couldn't find exactly what I was looking for, so I apologize if I'm doing a big repeat here! I'm going to be starting on Laptinib and Xeloda in a few weeks as...
Forum:
her2group
02-17-2012, 06:04 AM
Replies:
10
Checking in!
Views:
2,236
Posted By
Kmswilson
Re: Checking in!
Thank you so much, Jessica. I've been following your journey since last week when I did a search on WBR and found your thread. You are inspiring me and keeping me hopeful! Ten years is amazing. I've...
Forum:
her2group
02-16-2012, 05:53 PM
Replies:
10
Checking in!
Views:
2,236
Posted By
Kmswilson
Re: Checking in!
Thank you all so much. So far, I've had nine zaps to the old brain, and I have four more to go. The steroids are driving me nutty between starving all the time and not being able to sleep at all. And...
Forum:
her2group
02-16-2012, 05:44 PM
Replies:
39
Starting WBR tomorrow...nervous & scared
Views:
4,887
Posted By
Kmswilson
Re: Starting WBR tomorrow...nervous & scared
Will be praying for a good MRI for you. I just finished my ninth WBR zap this morning and have four more to go, finishing on 2/22 for the nine spots they found in my last MRI. I've been tolerating...
Forum:
her2group
02-16-2012, 05:38 PM
Replies:
7
pain meds and constipation
Views:
2,096
Posted By
Kmswilson
Re: pain meds and constipation
It's tough to manage, especially when the various side effects of chemo are messing with a system, too. I take a Senna S in the morning and one at night, and I'm still battling it. If it gets bad, I...
Forum:
her2group
02-13-2012, 06:03 AM
Replies:
10
Checking in!
Views:
2,236
Posted By
Kmswilson
Re: Checking in!
Thank you to those who responded and those who read. My news from scans last Monday was mixed. The AC knocked the liver mets back a little bit, and it kept the rest of the bone mets and breast tumor...
Forum:
her2group
02-03-2012, 09:50 PM
Replies:
12
Has anyone gone on disability?
Views:
3,539
Posted By
Kmswilson
Re: Has anyone gone on disability?
I've been on LTD through my company for about a year, and they required me to apply for social security disability for myself and my two children, which I received quickly (they move quicker when...
Forum:
her2group
02-03-2012, 09:17 PM
Replies:
8
bone mets and pain...does it go away
Views:
6,622
Posted By
Kmswilson
Re: bone mets and pain...does it go away
I have pretty significant mets to my spine and sacrum, and a compression fracture in my spine from the cancer weakening the vertebrae. I was in considerable pain last January before I was diagnosed....
Forum:
her2group
02-03-2012, 08:10 AM
Replies:
198
Just for fun...
Views:
36,025
Posted By
Kmswilson
Re: Just for fun...
I just saw this thread! What fun! I have been married for 11 years and have a 5-1/2-year-old son, Jake, and a daughter, Ellee, who will turn 3 at the beginning of March. Before my stage IV diagnosis...
Forum:
her2group
02-03-2012, 07:38 AM
Replies:
10
Checking in!
Views:
2,236
Posted By
Kmswilson
Checking in!
It's been a while since I've posted, so I just wanted to check in. My one-year anniversary of initial diagnosis and subsequent stage IV diagnosis a few days later just passed in January. My onc said...
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