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Posts Made By:
Kathy T
Forum:
her2group
05-28-2018, 05:03 AM
Replies:
8
Long time, no see!
Views:
6,217
Posted By
Kathy T
Re: Long time, no see!
Hi Ann, I have been stage 4 for 15 years. I received TDM1 for a little over 4 years. It remained successful in treating the cancer, but I developed nodular regenerative hyperplasia of the liver,...
Forum:
her2group
07-27-2017, 02:17 PM
Replies:
34
Insurance Frustrations
Views:
25,954
Posted By
Kathy T
Re: Insurance Frustrations
Hi Tracy, I have Aetna and they have been covering Herceptin and Perjeta for me the past 4 years. I hope this is not a new policy.
Kathy T
Forum:
her2group
03-20-2017, 07:09 AM
Replies:
17
How long for T-Dm1 induced neuropathy to go away ...
Views:
6,080
Posted By
Kathy T
Re: How long for T-Dm1 induced neuropathy to go away ...
Tiffany, I am not sure why that policy is in place. Perjeta and Herceptin have been helpful to me.
Forum:
her2group
03-18-2017, 02:01 PM
Replies:
17
How long for T-Dm1 induced neuropathy to go away ...
Views:
6,080
Posted By
Kathy T
Re: How long for T-Dm1 induced neuropathy to go away ...
My neuropathy is mainly numbness in both hands and feet. I have been receiving Perjeta and Herceptin since stopping TDM-1
Forum:
her2group
03-18-2017, 07:35 AM
Replies:
17
How long for T-Dm1 induced neuropathy to go away ...
Views:
6,080
Posted By
Kathy T
Re: How long for T-Dm1 induced neuropathy to go away ...
I still have neuropathy after being off Kadcyla for 4 years. I am assuming it is permanent.
Forum:
her2group
12-29-2016, 06:17 PM
Replies:
4
MBC Project
Views:
3,604
Posted By
Kathy T
Re: MBC Project
Also done!
Kathy T
Forum:
her2group
09-08-2016, 10:11 AM
Replies:
1
Pertuzumab for treated metastatic patients in Europe
Views:
4,142
Posted By
Kathy T
Re: Pertuzumab for treated metastatic patients in Europe
Hi ! I am stage 4 and have been stable with Herceptin and Pertuzumab for 2 1/2 years. I was previously on TDM1 for 4 1/2 years,stopping because of liver issues. I hope you can get this combo. ...
Forum:
her2group
09-04-2015, 10:26 AM
Replies:
5
On Herceptin for 5 years or more
Views:
3,722
Posted By
Kathy T
Re: On Herceptin for 5 years or more
I have been on Herceptin for over 12 years, since dx. Of stage 4. Now stable with Herceptin and Perjeta.
Kathy T.
Forum:
her2group
03-28-2015, 10:52 AM
Replies:
45
In Praise of Perjeta
Views:
26,122
Posted By
Kathy T
Re: In Praise of Perjeta
Amy, I've been receiving Perjeta and Heceptin alone for the past 14 months and have remained stable. 12 years at stage 4 for me! I am so grateful.
Kathy
Forum:
her2group
03-24-2015, 01:25 PM
Replies:
5
Anyone had Tachycardia during or just after Herceptin?
Views:
1,809
Posted By
Kathy T
Re: Anyone had Tachycardia during or just after Herceptin?
Jessica, I had one episode,requiring an ED visit. Troponin levels were not checked. I was on a low dose beta blocker and would have occasional bouts of tachycardia which were controlled with an...
Forum:
her2group
03-23-2015, 05:20 PM
Replies:
5
Anyone had Tachycardia during or just after Herceptin?
Views:
1,809
Posted By
Kathy T
Re: Anyone had Tachycardia during or just after Herceptin?
I developed extreme tachycardia while taking Herceptin. It was Dx. As supra ventricular tachycardia and is controlled with beta blockers. My onc. Did not think it was from Herceptin.
Kathy T
Forum:
her2group
11-26-2014, 07:56 AM
Replies:
25
Is it okay to cuss on here?? Cuz this is a Bitch
Views:
6,550
Posted By
Kathy T
Re: Is it okay to cuss on here?? Cuz this is a Bitch
Linn, I remember feeling just as you do now. I have been stage 4 for 12 years and on continuous tx. It has become normalcy for me and I truly am thankful for the time I've received with relatively...
Forum:
her2group
07-23-2014, 06:13 PM
Replies:
44
Sticky:
Kadcyla Side Effects
Views:
113,055
Posted By
Kathy T
Re: Kadcyla Side Effects
Amy, I received TDM 1 for 4 1/2 years. My liver enzymes were elevated and platelets low. I also developed nodular regenerative hyperplasia in the liver, subsequent portal hypertension resulting in...
Forum:
her2group
07-19-2014, 02:11 PM
Replies:
10
Drug Induced Interstitial Lung Disease
Views:
3,044
Posted By
Kathy T
Re: Drug Induced Interstitial Lung Disease
Amy, I have been off Kadcyla since Dec. and my liver enzymes remain elevated and platelets low. I'm wondering how many are experiencing the same.
Kathy T
Forum:
her2group
06-20-2014, 08:20 PM
Replies:
52
I'm NED
Views:
9,890
Posted By
Kathy T
Re: I'm NED
Wonderful news, Ann. I am now on Herceptin and Perjeta after experiencing difficulties with TDM-1. I hope for the same results!
Kathy T
Forum:
her2group
06-07-2014, 06:21 PM
Replies:
1
for thoseneeding dual her2 therapy whose liver is so involved it is not able to adeq-
Views:
1,689
Posted By
Kathy T
Re: for thoseneeding dual her2 therapy whose liver is so involved it is not able to a
Thank you, Lani, I may need this info.
Kathy T
Forum:
her2group
04-24-2014, 07:24 PM
Replies:
24
Afraid
Views:
3,632
Posted By
Kathy T
Re: Afraid
I did develop nodular regenerative hyperplasia. It seemed stable so we continued with the drug. I later developed portal hypertension, unaware, and finally esophageal varices which ruptured. It...
Forum:
her2group
03-01-2014, 06:22 AM
Replies:
6
Herceptin and Perjeta
Views:
2,566
Posted By
Kathy T
Re: Herceptin and Perjeta
Amy,
I had my first dose of P and H last week and had the same flu like symptoms-- fever ,chills etc. I'm hoping it's a one time thing.
Kathy t
Forum:
her2group
02-21-2014, 02:16 PM
Replies:
21
Has anyone been on TDM-1 for more than 2 years?
Views:
6,601
Posted By
Kathy T
Re: Has anyone been on TDM-1 for more than 2 years?
For those with varices be careful. I developed esophageal varices which subsequently ruptured,causing a major bleed,requiring endoscopies with banding, A very frightening and dangerous situation....
Forum:
her2group
02-21-2014, 11:04 AM
Replies:
18
On to next combo--H,P and ???
Views:
2,877
Posted By
Kathy T
Re: On to next combo--H,P and ???
Hi Amy! I just had my first dose of Herceptin and Perjeta after 41/2 years of TDM1. I stopped because of liver issues, not progression. I'm hoping it keeps me stable. Good luck to you.
Kathy T
Forum:
her2group
09-29-2013, 03:42 PM
Replies:
8
how long did kadcyla (tdm1) work for you?
Views:
3,476
Posted By
Kathy T
Re: how long did kadcyla (tdm1) work for you?
Mainly bone met, possibly lung, but not bx. And no issues in the last 10 years since I became stage 4. The side effects are typical, low platelets, elevated liver functions, etc. it has been a great...
Forum:
her2group
09-27-2013, 07:40 PM
Replies:
8
how long did kadcyla (tdm1) work for you?
Views:
3,476
Posted By
Kathy T
Re: how long did kadcyla (tdm1) work for you?
Stable for 4 years and counting.....with TDM1.
Kathy T
Forum:
her2group
09-02-2013, 03:23 PM
Replies:
21
Has anyone been on TDM-1 for more than 2 years?
Views:
6,601
Posted By
Kathy T
Re: Has anyone been on TDM-1 for more than 2 years?
Michka, by stable, I mean my bone mets have not improved, buts have not worsened either.
Kathy T
Forum:
her2group
09-01-2013, 05:50 AM
Replies:
21
Has anyone been on TDM-1 for more than 2 years?
Views:
6,601
Posted By
Kathy T
Re: Has anyone been on TDM-1 for more than 2 years?
I've been on TDM 1 for 4 years. I have problems with low platelets and liver issues. I am not NED, but stable.
Kathy T
Forum:
her2group
08-27-2013, 09:56 AM
Replies:
9
Come On, Waterdreamer
Views:
2,377
Posted By
Kathy T
Re: Come On, Waterdreamer
4 years for me. I've tolerated it well for the most part, but more problems with platelets and liver issues. I'm thinking I won' t be on it much longer. Then what?
Kathy T
Showing results 1 to 25 of 79
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