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Posts Made By:
jojo
Forum:
her2group
09-03-2007, 03:58 PM
Replies:
5
For Those On Avastin
Views:
1,257
Posted By
jojo
For Irene
Hi Irene, how's FLA treating you? :-) I'd love to meet sweet dolphins once again!
I echo Sheila's note of side effects from Avastin, except for nosebleeds, of which I hardly got at all. I would...
Forum:
her2group
08-26-2007, 10:47 PM
Replies:
4
low potassium- anyone else have this problem?
Views:
2,489
Posted By
jojo
I was told that having low potassium would be too risky?...
I can't remember, if I was on chemo, when I got attacked with low potassium. As soon as my chemo nurse read over my lab work, she entered me into the hospital via ER. That was several months ago. ...
Forum:
her2group
08-18-2007, 03:05 AM
Replies:
5
started Navelbine + Herceptin today
Views:
1,178
Posted By
jojo
Hi! For julie2 re: nodes
Hi Julie,
I had not been aware of your situation until just yesterday. I'm sorry that you have to go through this, but you have proven to us her2 group that you are a strong woman!
Naveline is...
Forum:
her2group
08-01-2007, 04:12 PM
Replies:
24
New to the boards
Views:
3,064
Posted By
jojo
Hi Swanky from JoJo
Hi Swanky,
I was originally diagnosed 3b in 2003 (3c in new rulings since '04 or '05 or '06??) I didn't get to ask, if I just turned to stage 4 at that time; I just didn't think of it. Me duh!!...
Forum:
her2group
07-31-2007, 05:53 PM
Replies:
28
HELP -- Possible Brain Mets
Views:
2,821
Posted By
jojo
To: Kate (tousled) Re: Brain MRI
Hi Kate,
My heart goes out to you re: recently diagnosed stage 4. :-( Terryfing, huh? :-( I was a stage 3c (3b in the old standings) for some time, until I became stage 4. Been mets for 4...
Forum:
her2group
07-12-2007, 08:04 PM
Replies:
31
Desperate for hope: anyone er-, pr+, HER2+++ but nonresponsive to Herceptin/Tykerb?
Views:
4,067
Posted By
jojo
Hi to Theresa :-)
Hello,
I am sorry that you have been through a LOT of things that could've induce quite a handful of "tasing" to your body.
I feel bad that I dton't have any wisdom words to your case. This...
Forum:
Herceptin / Tykerb
07-12-2007, 07:54 PM
Replies:
10
Tykerb for Stage IIIc?
Views:
2,430
Posted By
jojo
Reply to Connie's post
Ask Michele U, from this message board, about getting some 800 phone numbers. Some organizations would be willing to help some patients with their fiances on purchasing Tykerb. Best luck to you!
Forum:
Herceptin / Tykerb
07-09-2007, 01:21 AM
Replies:
16
Tykerb/Xeloda - Not Working
Views:
3,538
Posted By
jojo
For a clinical trial, I am currently taking...
For a clinical trial, I am currently taking Tykerb & Avastin. I think it has been about 1-1/2 months so far. As side effects goes, like one of the most common symtom, the diarrhea. Instead, I get a...
Forum:
her2group
07-03-2007, 03:09 PM
Replies:
25
Here are the babies
Views:
2,716
Posted By
jojo
"Twin" Cousins?? :-)
Wow!!!
I hope that your grandkids will be close to one another, growing up together, being goofy and whatnot. May many more happy memories come down in your precious lane!!
Best of luck to...
Forum:
her2group
07-03-2007, 02:51 PM
Replies:
13
Tykerb/Xeloda didn't work...very scared
Views:
1,842
Posted By
jojo
Quick question for Eric...
Hi Eric,
Real sorry that T/X didn't work out for your wife, Caryn. In your previous post, you had said that Herceptin was questionable. Why is that?
BTW, as some of you may know, some chemo...
Forum:
her2group
06-20-2007, 08:52 PM
Replies:
14
My granddaughter is here
Views:
1,443
Posted By
jojo
Hey, Grandma! :-D
BIG, happy, exhilarating c-o-n-g-r-a-t-u-l-a-t-i-o-n-s!!!
Forum:
Herceptin / Tykerb
06-20-2007, 08:46 PM
Replies:
4
Poll Question: Tykerb / Herceptin?
Views:
2,071
Posted By
jojo
Poll Question: Tykerb / Herceptin?
Please reply your answers. Yes or No, that's easy, right? :-)
Please, pretty please! :-D
Thank you very much.
Forum:
her2group
06-20-2007, 08:29 PM
Replies:
2
Poll question: Herceptin / Tykerb combo
Views:
801
Posted By
jojo
Poll question: Herceptin / Tykerb combo
You on Herceptin / Tykerb together?
Please, input your answers on the poll. Yes, please! :-D
Thank you very much.
Forum:
her2group
06-20-2007, 08:15 PM
Replies:
6
To: Chrisy :-)
Views:
1,448
Posted By
jojo
Thanks to C :-)
I think I get it... thanks much for taking your time to explain your rather unique situation.
A lot of best luck to you, plus the trial! :-)
Forum:
her2group
06-20-2007, 08:12 PM
Replies:
6
Yea, I'm in! :-D
Views:
1,293
Posted By
jojo
Yea, I'm in! :-D
Brief announcement:
Joined in the Tykerb & Avasin trial. No major side effects so far.
Naturally, nervous about any outcomes. Wish me luck! Also, I would always welcome to receive positive...
Forum:
her2group
06-19-2007, 10:25 PM
Replies:
6
To: Chrisy :-)
Views:
1,448
Posted By
jojo
To: Chrisy :-)
Hi Chrisy,
If I'm not mistaken, you have 2 onc's; the 2nd one being Dr Rugo as a 2nd opinion. Is she aware of that? Is she even a "full-time" 2nd opinion for you? I'm just curious, as to why...
Forum:
her2group
06-19-2007, 09:52 PM
Replies:
10
and another change for me as well...
Views:
1,399
Posted By
jojo
Minize size for CT's imagery
Hello Shell,
If memory serves, the CT picks up 8mm or 3cm?.... Can somebody help us out here?
Shell, I am sorry for not having the answer for you -- I am embarrassed! <covering face with...
Forum:
her2group
06-02-2007, 07:54 PM
Replies:
4
My spring 2007 abstract...
Views:
1,118
Posted By
jojo
My spring 2007 abstract...
I haven't been to the website in a good long while, so I'm quite behind in catching up on our posts. But I'll try my best!
Disqualified for Tykerb / Avastin clinical trial, due to my echo (low...
Forum:
her2group
06-02-2007, 07:46 PM
Replies:
66
Sandy H - Remain dear in our hearts
Views:
6,659
Posted By
jojo
One of our dearest angels! Oh, and who is 2nd "ghost"??
Awww, shoot! :-(
I have never met Sandy in person, as we lived on the opposite coasts, but we have exchanged such personal emails, and I had always truly enjoyed reading from her.
I shall keep...
Forum:
her2group
05-05-2007, 06:12 PM
Replies:
15
Clotting in veins - dang side effect!
Views:
2,168
Posted By
jojo
Whoopsie! Typo....
I forgot to put in "hurt" before "if you took a double-check......"
Forum:
her2group
05-05-2007, 06:10 PM
Replies:
15
Clotting in veins - dang side effect!
Views:
2,168
Posted By
jojo
Allergic to Lovenox??
Hi Steph,
Oh boy, this sounds pretty annoying, huh? After all you have come through for the past few months....tsk, tsk, tsk! <shaking head, rolling eyes>
Honestly, the list of your symptoms...
Forum:
her2group
04-12-2007, 07:36 PM
Replies:
5
Having Chemo while doing Cyber Knife?
Views:
1,942
Posted By
jojo
Having Chemo while doing Cyber Knife?
My onc is thinking of giving me a chemo break during my CK treatments, just to reduce toxicity.
Just curious out there.... have ever done your chemo while undergoing your CK prodecure?
Thank...
Forum:
her2group
03-08-2007, 10:34 PM
Replies:
6
EF downslide -- doggone it!!!! :-(
Views:
1,062
Posted By
jojo
EF downslide -- doggone it!!!! :-(
Well, because of my low EF (I even took echo TWICE & muga once), I couldn't qualify for the trial, so here I just ended up with: taking GEMZAR two weeks, one week off.
Naturally, my Herceptin is...
Forum:
her2group
02-21-2007, 09:19 PM
Replies:
15
JoJo's new treatment regimen (clinical trial)
Views:
1,490
Posted By
jojo
JoJo's new treatment regimen (clinical trial)
I look forward to getting OFF those nasty chemo's. Yea!!!! :-D
I am expected to begin a new treatment on Mon, Feb 26. The new treatment regimen is Tykerb & Avastin.
Crossing fingers in hope...
Forum:
her2group
02-21-2007, 09:09 PM
Replies:
8
Happy Birthday JoJo!
Views:
1,163
Posted By
jojo
Thank you very much! :-)
Wow! I can't believe that my big 4-0 is just around the corner (in 2008).
My actual birthday was a quiet day, but I feel blessed to celebrate an early birthday luncheon with a small circle of...
Showing results 1 to 25 of 176
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