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Posts Made By:
Pamelamary
Forum:
her2group
09-06-2022, 04:24 PM
Replies:
11
The party's over?
Views:
6,962
Posted By
Pamelamary
Re: The party's over?
Hi to my Her2 family,
I haven't done much updating lately... So much happening, and the demands of treatment have been arduous. Unfortunately recent MRIs have shown tumour growth and there aren't...
Forum:
her2group
08-28-2022, 02:41 PM
Replies:
11
AndiBB
Views:
5,678
Posted By
Pamelamary
Re: AndiBB
Andi will be sorely missed by this group. Condolences to her family and friends.
Forum:
her2group
01-12-2022, 01:19 PM
Replies:
11
The party's over?
Views:
6,962
Posted By
Pamelamary
The party's over?
Hi everybody,
After nearly 10 years stable on Herceptin and Letrozole, it seems the beast has struck again. It was no surprise when a tumour in the brain was discovered, but it isn't a breast met....
Forum:
her2group
11-29-2021, 12:46 PM
Replies:
5
No more 10 years
Views:
4,150
Posted By
Pamelamary
Re: No more 10 years
Hi Jackie,
No lung mets myself, but it does sound as if Enhertu is outperforming Kadcyla. However lung problems could be among the side-effects, so you would probably need careful monitoring from...
Forum:
her2group
11-24-2021, 11:57 PM
Replies:
6
Goodbye Herceptin?
Views:
5,595
Posted By
Pamelamary
Re: Goodbye Herceptin?
Donna,
Seems it shouldn't matter, though we will all be grateful for the original Herceptin! Hope you are going well........ Pam
Forum:
her2group
11-21-2021, 11:48 PM
Replies:
6
Goodbye Herceptin?
Views:
5,595
Posted By
Pamelamary
Re: Goodbye Herceptin?
Hi Dawn!
I don't think we need worry - but you would definitely be having the bio-similar now. Like you, I have been stable for ages. My oncologist says my cancer is "indolent". She hasn't suggested...
Forum:
her2group
11-09-2021, 10:57 PM
Replies:
6
Goodbye Herceptin?
Views:
5,595
Posted By
Pamelamary
Re: Goodbye Herceptin?
Thanks Paul - I kind of knew it was OK, but any change causes trepidation..... Pam
Forum:
her2group
11-08-2021, 12:59 PM
Replies:
14
radio-embolization
Views:
6,060
Posted By
Pamelamary
Re: radio-embolization
Good luck Donna!
Best wishes.....Pam
Forum:
her2group
11-08-2021, 12:54 PM
Replies:
6
Goodbye Herceptin?
Views:
5,595
Posted By
Pamelamary
Goodbye Herceptin?
Hi Everybody,
I have just found out that Australia's pharmaceutical benefits scheme will no longer be funding Roche's Herceptin and my treatment will continue with a "bio-similar" called Herzuma....
Forum:
her2group
10-31-2021, 07:52 PM
Replies:
2
10 year living with metastatic disease
Views:
3,982
Posted By
Pamelamary
Re: 10 year living with metastatic disease
Congratulations Jackie! And coming upright behind you - cheers for Vitamin H!
Best wishes..... Pam
Forum:
her2group
09-19-2021, 01:25 AM
Replies:
1
HER2-targeting antibody-drug improves progression-free survival
Views:
3,709
Posted By
Pamelamary
Re: HER2-targeting antibody-drug improves progression-free survival
Thanks again, Lani. We in Oz don't have access to this yet and probably not for a while. In the meantime, I am seeing friends with brain mets who can't access Tucatinib either. We have a pretty good...
Forum:
her2group
06-14-2021, 12:45 AM
Replies:
12
Hello from Flori
Views:
7,045
Posted By
Pamelamary
Re: Hello from Flori
So glad to hear from you, Flori! And congratulations on your grandson - after reading your history, who would have thought you would be here celebrating? An inspiration to us all.
Warm wishes from...
Forum:
her2group
04-22-2021, 02:19 PM
Replies:
9
Looks like I have progression
Views:
4,583
Posted By
Pamelamary
Re: Looks like I have progression
Sorry to hear about the progression. What about T.DXd? (Trastuzumab deruxtecan) Here in Melbourne it is being trialled in the Destiny 07 trial.
Good luck with your next treatment..... Pam
Forum:
her2group
03-11-2021, 09:42 PM
Replies:
7
update - liver resection after taxol/Herc/Perj
Views:
5,900
Posted By
Pamelamary
Re: update - liver resection after taxol/Herc/Perj
Great news!
It has been quiet here lately, but always worth checking in.
Here's to continuing stable...... Pam
Forum:
her2group
02-07-2021, 09:14 PM
Replies:
47
its back
Views:
21,822
Posted By
Pamelamary
Re: its back
Hi Donna,
It's 9 years since my metastatic diagnosis - still stable on Herceptin and Letrozole! A real roller coaster ride, but you will feel better once you have a treatment plan in place.
Best...
Forum:
her2group
10-07-2020, 11:27 PM
Replies:
8
Annual post
Views:
6,675
Posted By
Pamelamary
Re: Annual post
Good to hear from you, Jackie - I am still coming right behind you. This year has been really hard for many of us. Such a sense of loss and anxiety. Let's hope for better times to come.
Best...
Forum:
her2group
05-16-2020, 12:12 AM
Replies:
7
update - liver resection after taxol/Herc/Perj
Views:
5,900
Posted By
Pamelamary
Re: update - liver resection after taxol/Herc/Perj
Glad to hear the resection went well and wishing you a long time on the Herceptin/ Perjeta mix, as many of us have had. It is hard to be going through all this and Covid too, so take specially good...
Forum:
her2group
02-27-2020, 12:03 AM
Replies:
22
ENHERTU aka DS8401A
Views:
16,020
Posted By
Pamelamary
Re: ENHERTU aka DS8401A
Glad to hear your news, Flori - sounds as if you have been doing it tough, so I hope the new regime gives better QOL.
Best wishes.... Pam
Forum:
her2group
02-18-2020, 11:59 PM
Replies:
6
8 year stage 4 cancerversary.
Views:
5,398
Posted By
Pamelamary
Re: 8 year stage 4 cancerversary.
Hey Marie,
How are you going? You are way ahead of me in the survival stakes and of course, in the same country. Hope all is well.
Regards.... Pam
(By the way, you might be interested in looking...
Forum:
her2group
02-13-2020, 05:28 PM
Replies:
6
8 year stage 4 cancerversary.
Views:
5,398
Posted By
Pamelamary
8 year stage 4 cancerversary.
Just checking in... Given Doctor Google gave me 8 months in 2012, I feel profoundly grateful for the fact that I am still here. That first year was awful, but I have been lucky to have continued...
Forum:
Herceptin / Tykerb
12-03-2019, 01:14 PM
Replies:
10
After 9 years on Herceptin,heart ef crash
Views:
10,772
Posted By
Pamelamary
Re: After 9 years on Herceptin,heart ef crash
Diana, this is always a concern for long term users of Herceptin. My Echo has been slowly sliding downwards. Have you discussed what you could do to improve your heart function? I remember quite a...
Forum:
her2group
11-24-2019, 12:03 AM
Replies:
9
Looking for hope
Views:
5,999
Posted By
Pamelamary
Re: Looking for hope
Hi there! I am still basically first line, but I know a number of women through an Australian group I am in who are 10+ years and have had many different treatments, including some not specific to...
Forum:
her2group
11-19-2019, 12:02 AM
Replies:
8
Annual post
Views:
6,675
Posted By
Pamelamary
Re: Annual post
Congratulations Jackie - I am close behind you. Here's to many more years for us all! And so thankful for Vitamin H!!!
Best wishes..... Pam
Forum:
her2group
10-31-2019, 11:42 PM
Replies:
10
Wife's Demise
Views:
9,865
Posted By
Pamelamary
Re: Wife's Demise
Very sad news. Condolences to you, Ajit, and all your family and friends.
Forum:
her2group
09-11-2019, 12:57 AM
Replies:
3
Lasker award to Drs Slamon, Ullrich, Shepard
Views:
4,325
Posted By
Pamelamary
Re: Lasker award to Drs Slamon, Ullrich, Shepard
Nice to see a Melbournian among the luminaries.... Well deserved kudos for Slamon, though surely belated? Thanks Lani.
Showing results 1 to 25 of 477
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